Digital Transformation to Reduce Social Isolation and Improve the Engagement, Care, and Support of Individuals Living with Alzheimer's Disease and Related Dementias

社交孤立和孤独会加速认知和功能衰退，增加过早死亡，以及 显著降低美国老年人的生活质量。社交孤立和孤独与6.7美元有关 每年增加数十亿美元的医疗保险支出，是低效、低效和昂贵医疗保健的关键驱动因素。 阿尔茨海默病和相关痴呆(ADRD)患者及其照顾者的经历 在这些人群中，孤独和孤立的比率更高，增加社会连通性的解决方案 需要的。然而，现有的干预措施往往覆盖范围有限，未能克服重大障碍 可伸缩性，并不是专门针对个人与ADRD及其 照顾者。确定健康创建了Connect CallHub(CCH)，以提供端到端解决方案 寻求打击社会孤立和改善健康和福祉的组织，特别是 强调满足ADRD患者个人和非正式照顾者的需求 阿德勒。促进安全、可靠、有意义和有效的参与，该平台解决了隔离问题，同时 建立针对全面健康社会决定因素的基础设施(SDoH)-相关因素 人们在哪里/如何生活、学习、工作和娱乐，这对健康和福祉产生了深远的影响。驾驶数字化 跨这些努力的转型将使所投资的不同利益相关者之间实现有效协作 在降低医疗成本的同时，改善弱势老年人的健康和福祉。整体而言 该第一阶段SBIR项目的目标是部署将改进CCH平台的关键功能，并 确保对患有ADRD的个人及其照顾者使用这一更新平台的可行性。目标1： 功能开发：利用从初始测试版测试中获得的见解，进一步开发软件以增加 功能和特性。里程碑包括部署新功能，如短信、电子邮件和语音 面向所有用户或选定用户组的通信；用于测量和筛选的语音自动调查 促进为流程改进和临床验证研究收集数据；以及改进报告和 用于跟踪关键呼叫指标的用户控制面板。目标2：可行性(可用性/可接受性)：进行试点 评估更新后的平台及其在整个利益攸关方和最终用户生态系统中的可接受性。 里程碑包括1)定性和定量数据收集和综合以及2)跨 生态系统用于评估使用该平台接触到的患者群体的可行性 ADRD和ADRD患者的护理人员，验证新功能以进行更广泛的分发，从而提高疗效 可以进行研究。这将为第二阶段SBIR应用程序扩展部署和 评估CCH在这些人群中是否在减少社交孤立、焦虑、抑郁方面有效， 以及整体医疗成本以及是否可以利用通过该平台收集的数据来改进检测 了解未满足的SDoH需求，检测认知变化，并协助支持现有老龄化工作。

Social isolation and loneliness accelerate cognitive and functional decline, increase premature mortality, and significantly reduce quality of life in older Americans. Social isolation and loneliness are associated with $6.7 billion in additional Medicare spending annually, and are key drivers of inefficient, ineffective, and costly care. Individuals living with Alzheimer’s disease and related dementias (ADRD) and their caregivers experience loneliness and isolation at greater rates and solutions to increase social connectivity in these populations are needed. However, existing interventions are often limited in reach, fail to overcome significant barriers to scalability, and are not specifically tailored towards the effective engagement of individuals with ADRD and their caregivers. Determined Health created the Connect CallHub (CCH) to provide an end-to-end solution for organizations seeking to combat social isolation and improve health and well-being, with particular emphasis in meeting the needs of individuals living with ADRD and informal caregivers of people with ADRD. Facilitating safe, secure, meaningful, and effective engagement, the platform addresses isolation while establishing an infrastructure to target a full range of social determinants of health (SDoH) – the factors related to where/how people live, learn, work, and play that profoundly impact health and well-being. Driving digital transformation across these efforts will enable effective collaboration between disparate stakeholders invested in improving the health and well-being of vulnerable seniors while reducing healthcare costs. The overall objectives of this Phase I SBIR project are to deploy key features that will improve the CCH platform and to ensure the feasibility of using this updated platform with individuals with ADRD and their caregivers. Aim 1: Feature Development: Using insights from initial beta-testing, further develop the software to increase capabilities and features. Milestones include deploying new features such as SMS, email, and voice communications to all users or select user groups; voice automated surveys for measurement and screening to facilitate data collection for process improvement and clinical validation studies; and refinement of reporting and user dashboards to track key call metrics. Aim 2: Feasibility (usability/acceptability): Conduct a pilot assessment of the updated platform and its acceptability across the ecosystem of stakeholders and end-users. Milestones include 1) qualitative and quantitative data collection and synthesis and 2) collaboration across the ecosystem for an assessment of the feasibility of using the platform for reaching a population of patients with ADRD and caregivers of people with ADRD, validating new features for broader distribution so that efficacy studies can be performed. This will lay the groundwork for a Phase II SBIR application to scale deployment and evaluate whether CCH is effective among these populations in reducing social isolation, anxiety, depression, and overall healthcare costs and whether data collected over the platform can be leveraged to improve detection of unmet SDoH needs, detect changes in cognition, and assist efforts to support aging in place.