Digital Transformation to Reduce Social Isolation and Improve the Engagement, Care, and Support of Individuals Living with Alzheimer's Disease and Related Dementias

数字化转型可减少社会孤立并改善阿尔茨海默病和相关痴呆症患者的参与、护理和支持

• 批准号: 10383590
• 负责人: Scott Kaiser
• 金额: $ 50万
• 依托单位: DETERMINED HEALTH INC.
• 依托单位国家: 美国
• 财政年份: 2022
• 资助国家: 美国
• 起止时间: 2022-02-01 至 2024-01-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10383590
• 关键词: Acute; Address; Administrator; Alzheimer' s disease related dementia; American; Anxiety; Automobile Driving; COVID-19 pandemic; Caregivers; Caring; Client; Clinical; Cognition; Collaborations; Communication; Communities; Data; Data Collection; Dementia; Dementia caregivers; Detection; Development; Devices; Ecosystem; Elderly; Electronic Mail; Ensure; Face; Funding; Grant; Health; Health Care Costs; Health system; Impaired cognition; Individual; Infrastructure; Internet; Intervention; Investments; Learning; Loneliness; Measurement; Medicare; Mental Depression; Older Population; Outcome; Patients; Personal Satisfaction; Persons; Phase; Play; Population; Premature Mortality; Privacy; Process; Public Health; Quality of life; Reporting; Secure; Services; Small Business Innovation Research Grant; Social isolation; Surveys; System; Telephone; Testing; Update; Voice; Work; aging in place; base; care costs; cloud based; combat; cost; dashboard; digital; efficacy study; experience; functional decline; improved; informal caregiver; innovation; insight; meetings; member; novel; pandemic disease; patient population; privacy protection; programs; response; screening; service organization; social; social health determinants; software development; tool; usability; validation studies; volunteer; web app

Social isolation and loneliness accelerate cognitive and functional decline, increase premature mortality, and significantly reduce quality of life in older Americans. Social isolation and loneliness are associated with $6.7 billion in additional Medicare spending annually, and are key drivers of inefficient, ineffective, and costly care. Individuals living with Alzheimer’s disease and related dementias (ADRD) and their caregivers experience loneliness and isolation at greater rates and solutions to increase social connectivity in these populations are needed. However, existing interventions are often limited in reach, fail to overcome significant barriers to scalability, and are not specifically tailored towards the effective engagement of individuals with ADRD and their caregivers. Determined Health created the Connect CallHub (CCH) to provide an end-to-end solution for organizations seeking to combat social isolation and improve health and well-being, with particular emphasis in meeting the needs of individuals living with ADRD and informal caregivers of people with ADRD. Facilitating safe, secure, meaningful, and effective engagement, the platform addresses isolation while establishing an infrastructure to target a full range of social determinants of health (SDoH) – the factors related to where/how people live, learn, work, and play that profoundly impact health and well-being. Driving digital transformation across these efforts will enable effective collaboration between disparate stakeholders invested in improving the health and well-being of vulnerable seniors while reducing healthcare costs. The overall objectives of this Phase I SBIR project are to deploy key features that will improve the CCH platform and to ensure the feasibility of using this updated platform with individuals with ADRD and their caregivers. Aim 1: Feature Development: Using insights from initial beta-testing, further develop the software to increase capabilities and features. Milestones include deploying new features such as SMS, email, and voice communications to all users or select user groups; voice automated surveys for measurement and screening to facilitate data collection for process improvement and clinical validation studies; and refinement of reporting and user dashboards to track key call metrics. Aim 2: Feasibility (usability/acceptability): Conduct a pilot assessment of the updated platform and its acceptability across the ecosystem of stakeholders and end-users. Milestones include 1) qualitative and quantitative data collection and synthesis and 2) collaboration across the ecosystem for an assessment of the feasibility of using the platform for reaching a population of patients with ADRD and caregivers of people with ADRD, validating new features for broader distribution so that efficacy studies can be performed. This will lay the groundwork for a Phase II SBIR application to scale deployment and evaluate whether CCH is effective among these populations in reducing social isolation, anxiety, depression, and overall healthcare costs and whether data collected over the platform can be leveraged to improve detection of unmet SDoH needs, detect changes in cognition, and assist efforts to support aging in place.

社交孤立和孤独会加速认知和功能衰退，增加过早死亡率， 严重降低了美国老年人的生活质量。社交孤立和孤独与6.7美元有关 每年额外的医疗保险支出达10亿美元，是低效，无效和昂贵的医疗保健的关键驱动力。 阿尔茨海默病和相关痴呆（ADRD）患者及其护理人员的经验 孤独和孤立的比率更高，增加这些人群社会联系的解决方案是 needed.然而，现有的干预措施往往覆盖面有限，未能克服重大障碍， 可扩展性，并且不是专门针对ADRD患者及其 照顾者Determined Health创建了Connect CallHub（CCH），为以下用户提供端到端解决方案： 致力于消除社会孤立、改善健康和福祉的组织，特别是 强调满足ADRD患者和ADRD患者的非正式照顾者的需求， ADRD。通过促进安全、可靠、有意义和有效的参与，该平台解决了隔离问题， 建立基础设施，针对健康的各种社会决定因素-相关因素 人们在哪里/如何生活、学习、工作和娱乐，这些都对健康和福祉产生深远影响。驱动数字 这些工作的转型将使投资的不同利益相关者之间能够进行有效协作 改善弱势老年人的健康和福祉，同时降低医疗保健成本。整体 SBIR项目第一阶段的目标是部署关键特性，这些特性将改进CCH平台， 确保ADRD患者及其护理人员使用此更新平台的可行性。目标1： 功能开发：使用从初始beta测试中获得的见解，进一步开发软件， 能力和特点。重大举措包括部署新功能，如短信、电子邮件和语音 通信到所有用户或选定的用户组;语音自动化调查的测量和筛选， 促进工艺改进和临床验证研究的数据收集; 用户仪表板可跟踪关键通话指标。目标2：可行性（可用性/可接受性）：进行试点 评估更新后的平台及其在利益攸关方和最终用户生态系统中的可接受性。 主要内容包括：1）定性和定量数据收集和综合; 2） 生态系统，以评估使用该平台接触患有以下疾病的患者人群的可行性 ADRD和ADRD患者的护理人员，验证新功能以扩大分布范围， 可以进行研究。这将为第二阶段SBIR应用奠定基础，以扩展部署， 评估CCH是否在这些人群中有效减少社会孤立，焦虑，抑郁， 以及是否可以利用通过平台收集的数据来改善检测 未满足的SDoH需求，检测认知的变化，并协助支持就地老化的努力。