权益分类	功能权益	普通用户	{{item.name}}会员
{{category.name}}	{{benefitItem.name}}

Utilizing mHealth Technology to Support Caregivers in the Medical Management of their Child with Cancer

利用移动医疗技术支持护理人员对患有癌症的孩子进行医疗管理

基本信息

批准号：
10653855
负责人：
Emily L Mueller
金额：
$ 21.76万
依托单位：
INDIANA UNIV-PURDUE UNIV AT INDIANAPOLIS
依托单位国家：
美国
项目类别：
财政年份：
2019
资助国家：
美国
起止时间：
2019-07-01 至 2024-06-30
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/10653855
关键词：
Accident and Emergency department Address Adult Award Behavioral Caregiver Burden Caregiver support Caregivers Caring Child Childhood Clinic Visits Clinical Clinical Research Clinical Skills Communication Competence Data Development Development Plans Education Emotions Evaluation Event Faculty Feeling Financial Hardship Frequencies Funding Goals Health Health Services Healthcare Healthcare Systems Intervention Knowledge Lead Life Malignant Childhood Neoplasm Malignant Neoplasms Medical Mentorship Meta-Analysis Oncology Outcome Parents Patient-Focused Outcomes Patients Pediatric Oncology Physiological Play Positioning Attribute Process Qualitative Methods Quality of Care Quality of life Randomized, Controlled Trials Research Research Personnel Research Proposals Resources Role Self Efficacy Stress Techniques Technology Testing Time Training Visit Work cancer diagnosis care providers career career development caregiver interventions caregiver stress caregiving coping design experience health care service utilization health information technology improved mHealth multidisciplinary parental role patient oriented psychosocial skills stress reduction tool usability user centered design wireless communication

项目摘要

A diagnosis of cancer in a child is a life-altering event not just for the patient, but also for their caregivers. A child’s diagnosis of cancer multiplies the demands placed on caregivers and they often feel ill equipped to handle these activities, particularly if there are unmet information, communication, or resource needs. This can lead caregivers to experience physical stress, negative emotions, financial burden, and undesirable behavioral and physiological impacts. Ultimately, this can reduce caregivers’ quality of life, which may impact their ability to provide appropriate medical care to their children. Due to the important role caregivers play, researchers have embarked on the development of supportive interventions to alleviate caregiver burden and facilitate coping and quality care. Van Houtven et al created the Caregiver Intervention Organizing Framework to align and advance caregiver focused oncology research. This framework postulates that interventions to improve a caregiver’s clinical skills/knowledge, psychosocial (self-efficacy and coping) competency, support seeking (organizational and coordination), and/or quantity of caregiving will lead to benefits for both them and the patient with cancer. To date though, most caregiver focused interventions have been targeted at caregivers of adults with cancer, completely ignoring the unique needs of caregivers of children with cancer. Therefore, using the Van Houtven framework as a guide, we propose to develop a pediatric oncology caregiver focused intervention. This intervention will be delivered in the form of a mobile health information technology (mHealth) tool. mHealth, defined as the application of mobile or wireless communication technologies to health and healthcare, has great potential to assist caregivers in navigating the healthcare system and support them in the medical management of their children. Caregivers believe that technology can help them to make caregiving more efficient, effective, safer and less stressful. Our hypothesis is that an mHealth tool that aims to support caregivers in their ability to provide medical care to their child with cancer will lead to improvements in their sense of self-efficacy, mastery of caregiving skills/knowledge, and will reduce stress, which will ultimately result in improvement of both caregiver and patient-centered outcomes. The Specific Aims of this proposal are to: (1) Co-design and perform usability testing of an mHealth tool to address the medical management needs of caregivers of children with cancer utilizing a user-centered design process; and (2) Conduct a pilot randomized controlled trial of the mHealth tool for caregivers of children with cancer, assessing a) feasibility of caregiver use over extended period of time, b) acceptability of the mHealth tool by caregivers in a real-world setting, c) impact of the mHealth tool on caregiver outcomes, and d) effect on healthcare utilization of the child with cancer. Following this work, I will be well positioned to apply for R01 funding to conduct a larger-scale randomized controlled trial that further evaluates the impact of the caregiver focused mHealth tool on caregiver outcomes, as well as patient outcomes including clinical outcomes, quality of life, and healthcare utilization.

儿童癌症的诊断不仅对患者而且对他们的照顾者都是一个改变生活的事件。一儿童的癌症诊断成倍增加了对照顾者的要求，他们往往感到装备不足，处理这些活动，特别是如果有未满足的信息，通信或资源需求。这可以导致照顾者经历身体压力、负面情绪、经济负担和不良行为和生理影响。最终，这会降低照顾者的生活质量，这可能会影响他们的能力。为他们的孩子提供适当的医疗服务。由于照顾者扮演的重要角色，研究人员已着手制定支助性干预措施，以减轻照顾者的负担，应对和优质护理。货车Houtven等人创建了护理人员干预组织框架，和先进的以护理人员为中心的肿瘤学研究。该框架假设改善健康状况的干预措施照顾者的临床技能/知识，心理社会（自我效能和应对）能力，寻求支持（组织和协调），和/或数量的增加将导致双方的利益，癌症患者。然而，迄今为止，大多数以照顾者为重点的干预措施都是针对儿童的照顾者。这是一个非常严重的问题，因为它完全忽视了癌症儿童照顾者的独特需求。因此，我们认为，使用货车Houtven框架作为指导，我们建议开发一个儿科肿瘤护理人员集中干预这一干预措施将以移动的卫生信息技术（mHealth）的形式提供工具.移动健康，定义为将移动的或无线通信技术应用于健康，医疗保健，有很大的潜力，以协助护理人员在导航医疗保健系统，并支持他们在对孩子的医疗管理。护理人员相信科技可以帮助他们更有效率、更有效、更安全、压力更小。我们的假设是，一个移动健康工具，旨在支持照顾者为患有癌症的孩子提供医疗护理的能力将导致他们的自我效能感，掌握技能/知识，并将减少压力，这将最终导致改善护理人员和以患者为中心的结果。该提案的具体目标是： (1)共同设计和执行移动健康工具的可用性测试，以满足医疗管理需求，利用以用户为中心的设计过程的癌症儿童的照顾者;和（2）进行试点随机对照试验的mHealth工具的照顾者的儿童癌症，评估a）的可行性，照顾者长期使用，B）护理人员在现实环境中对移动健康工具的可接受性，c） mHealth工具对护理人员结果的影响，以及d）对患有癌在这项工作之后，我将很好地申请R 01资金进行更大规模的一项随机对照试验，进一步评估以护理人员为中心的移动健康工具对护理人员的影响结果以及患者结果，包括临床结果、生活质量和医疗保健利用。