Data Core

数据核心的目的是将数据活动集中到拟议的四个项目中的三个 自闭症卓越中心，公共卫生和自闭症科学促进公平战略 生命过程(阶段)“，利用动态健康数据。拟议的数据核心的设计有助于 跨来源获取、存储、管理和分析动态健康数据的专业知识汇聚： 电子健康记录(EHR)、国家行政索赔、死亡率数据和小区域背景数据。 数据核心将提供项目间和项目内的数据管理、协作和统计 专门知识，并与行政、传播和外联阶段的核心合作，以推动 中心和项目特定目标。对于所有数据源，数据核心将获取和存储以下所需的数据 并针对每个项目进行定制，监督并遵守合规和安全要求，并与 项目人员建设和执行分析任务的能力。集中化的数据核心有助于提高效率 在数据操作中，提高了跨研究的效率，特别是在共享数据源的情况下，集中 数据专业知识，并增强和增加协作。数据核心与 传播和外联核心将包括强调数据可视化和其他创新 使研究成果在各阶段项目中产生最大影响的策略。数据核心将充当 集中联系并为Data Core员工提供统一的运营和数据分析，以部署任务 所有项目都需要。数据核心的设计利用了人员和机构的独特专业知识 AJ德雷克塞尔自闭症研究所和德雷克塞尔大学的优势。数据分析请求流程 由各阶段项目的Data Core教职员工领导，将建设能力以推动整体 该中心旨在通过建立共享和适应性强的分析方法来促进公共卫生影响。这个 Data Core将由MPI博士雷内·摩尔和博士林赛·谢伊领导。领导力的分配 数据核心的职责基于MPI、教职员工的专业知识。接合处 领导力提供了跨阶段项目的数据任务构建协同效应的机会。数据核心将 建立在现有自闭症研究所和大学基础设施的基础上，以跨研究协作；目标员工 开发以提高类似任务的效率并增强动态健康数据方面的专业知识 管理和分析；并集中合规和管理工作。数据核心结合了 团队拥有动态的健康数据专业知识，并拥有成熟的大学基础设施以实现安全存储和 管理大规模数据，确保分析操作顺畅、科学严谨。

The purpose of the Data Core is to centralize data activities across three of the four Projects of the proposed Autism Center of Excellence, “Public Health and Autism Science advancing Equitable Strategies across the life course (PHASES)” that utilize dynamic health data. The design of the proposed Data Core facilitates the confluence of expertise to acquire, store, manage, and analyze dynamic health data across sources: electronic health records (EHR), national administrative claims, mortality data, and small area contextual data. The Data Core will provide across- and within-project data management, collaboration, and statistical expertise, and partner with the Administrative and Dissemination and Outreach PHASES Cores to advance the Center and project-specific aims. For all data sources, the Data Core will acquire and store data required for and customized to each project, oversee and adhere to compliance and safety requirements, and engage Project personnel to build capacity for and execute analytic tasks. A centralized Data Core facilitates efficiency in data operations, increases efficiency across studies especially when data sources are shared, concentrates data expertise, and enhances and increases collaboration. Linkages between the Data Core and the Dissemination and Outreach Core will include an emphasis on data visualization and other innovative strategies to maximize the impact of research findings across PHASES projects. The Data Core will act as a central contact and provide Data Core staff with unified operations and data analyses to deploy the tasks required across projects. Design of the Data Core leverages unique expertise of personnel and institutional strengths of the AJ Drexel Autism Institute and Drexel University. The process for requests for data analyses conducted by Data Core faculty and staff from PHASES Projects will build capacity to advance the overall Center aims and advance public health impact by building shared and adaptable analytic approaches. The Data Core will be led by MPIs Reneé Moore, PhD, and Lindsay Shea, DrPH. The distribution of leadership responsibilities of the Data Core is based upon the expertise of the MPIs, faculty, and staff. The joint leadership provides opportunities to build synergy across data tasks of PHASES projects. The Data Core will build upon existing Autism Institute and University infrastructure to collaborate across studies; target staff development to increase efficiency across similar tasks and enhance expertise in dynamic health data management and analysis; and centralize compliance and management efforts. The Data Core combines a team with dynamic health data expertise with an established university infrastructure for safe storage and management of large-scale data to ensure smooth analytic operations and rigorous science.