Alternative Approaches to Supporting ASD Services for Young Adults

支持年轻人 ASD 服务的替代方法

• 批准号: 10225311
• 负责人: Lindsay Lawer Shea
• 金额: $ 47.77万
• 依托单位: DREXEL UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2018
• 资助国家: 美国
• 起止时间: 2018-09-01 至 2023-06-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10225311
• 关键词: 18 year old; Administrator; Adolescent; Adult; Advocacy; Advocate; Affect; Age; Age-Years; Aging; Automobile Driving; Behavioral; Caring; Catalogs; Characteristics; Childhood; Complex; Cost Control; Data; Data Collection; Developmental Disabilities; Diagnosis; Diagnostic; Disease; Drug Prescriptions; Education; Eligibility Determination; Enrollment; Ensure; Foundations; Funding; Healthcare; Home; Hospitalization; Impairment; Individual; Inpatients; Insurance; Insurance Coverage; Intellectual functioning disability; Interview; Longevity; Measures; Medicaid; Medicaid eligibility; Mental Retardation; Outpatients; Participant; Peer Review; Policies; Prevalence; Research; Review Literature; Risk; Service provision; Services; Source; System; Time; adolescent with autism spectrum disorder; adult with autism spectrum disorder; autism spectrum disorder; behavioral health; care costs; care systems; child health care service; community based service; comparison group; cost; disability; experience; health care availability; health care delivery; health care service utilization; individuals with autism spectrum disorder; insight; programs; waiver; young adult

PROJECT ABSTRACT The proposed study requests funding to conduct a detailed comparison of eligibility for healthcare coverage and healthcare service use in the Medicaid system among adolescents with autism spectrum disorder (ASD) as they age into adulthood. Given the recent increased number of adolescents diagnosed with ASD, the lifelong presentation of ASD, and the under-researched changes in the needs of adolescents with ASD as they age, examining healthcare access and service use among adolescents with ASD as they transition into adulthood is critical to developing an efficient and effective system of care. Most states have mechanisms to utilize Medicaid to pay for healthcare for a similar group (adolescents with intellectual disability, or ID) as they age into adulthood but it remains unclear if or how these mechanisms also support aging adolescents with ASD. We propose to use 2006-2014 national Medicaid claims data to identify individuals with ASD between 14 and 18 years of age in 2006 who were followed until they were 22 to 26 years of age in 2014. Specifically, we will compare Medicaid eligibility among adolescents with ASD, including the extent to which they remain eligible for Medicaid-funded services into adulthood compared with adolescents with ID. Differences across states with ASD-specific programs, those that serve individuals with ASD through programs established for ID, and states with no programs will be compared. Many states created new programs during the study period, which will be catalogued to measure impact on adolescents with ASD aging into adulthood. We will also examine differences across states in changes in type and quantity of ambulatory, inpatient and residential services among Medicaid-eligible adolescents with ASD and adolescents with ID as they age into adulthood. Interviews with administrators and advocates in states with the most and least discrepant differences in enrollment and service use for adolescents with ASD and ID will also be conducted. Completion of this study will provide a foundation for how differing state approaches to establishing Medicaid programs impact adolescents with ASD during the transition into adulthood.

项目摘要 拟议的研究要求提供资金，对医疗保险的资格进行详细比较 自闭症谱系障碍（ASD）青少年在医疗补助系统中的医疗保健服务使用情况 随着年龄的增长，鉴于最近被诊断患有ASD的青少年人数增加， ASD的终身表现，以及ASD青少年需求的研究不足的变化， 年龄，检查ASD青少年在过渡到 成年期对于建立一个高效和有效的护理系统至关重要。大多数国家都有机制， 利用医疗补助支付类似群体（智力残疾青少年或ID）的医疗保健费用，因为他们 但目前尚不清楚这些机制是否或如何支持青少年的衰老， 自闭症我们建议使用2006-2014年的国家医疗补助索赔数据来识别14岁之间的ASD患者。 2006年18岁，2014年22至26岁。我们特别 将比较患有ASD的青少年的医疗补助资格，包括他们仍然存在的程度。 与ID青少年相比，有资格获得医疗补助资助的服务，直到成年。 具有ASD特定项目的州，通过为ID建立的项目为ASD患者提供服务的州， 和没有节目的州进行比较。许多州在研究期间制定了新的计划， 将被分类以衡量对ASD青少年进入成年的影响。我们还将 检查各州在门诊、住院和住院病人的类型和数量变化方面的差异 在符合医疗补助条件的ASD青少年和ID青少年中，随着他们进入成年期， 与管理人员和倡导者在国家的最大和最小的差异， 还将对患有ASD和ID的青少年进行登记和服务使用。完成本研究 将为不同的州建立医疗补助计划的方法如何影响提供基础 ASD青少年在向成年过渡期间。

项目成果

Co-occurring conditions and racial-ethnic disparities: Medicaid enrolled adults on the autism spectrum.

• DOI: 10.1002/aur.2644
• 发表时间: 2022-01
• 期刊: Autism research : official journal of the International Society for Autism Research
• 作者: Schott W;Tao S;Shea L
• 通讯作者: Shea L

Occupational Therapy Service Delivery Among Medicaid-Enrolled Children and Adults on the Autism Spectrum and With Other Intellectual Disabilities.

为参加医疗补助的自闭症谱系障碍和其他智力障碍儿童和成人提供职业治疗服务。

• DOI: 10.5014/ajot.2022.049202
• 发表时间: 2022
• 期刊: The American journal of occupational therapy : official publication of the American Occupational Therapy Association
• 作者: Benevides,TealW;Tao,Sha;Becker,Alec;Verstreate,Kate;Shea,Lindsay
• 通讯作者: Shea,Lindsay

Transition-Age Medicaid Coverage for Adolescents With Autism and Adolescents With Intellectual Disability.

针对自闭症青少年和智力障碍青少年的过渡年龄医疗补助覆盖范围。

• DOI: 10.1352/1944-7558-124.2.174
• 发表时间: 2019
• 期刊: American journal on intellectual and developmental disabilities
• 作者: Shea,LindsayL;Field,Robert;Xie,Ming;Marcus,Steven;Newschaffer,Craig;Mandell,David
• 通讯作者: Mandell,David

Emergency Visits for Autistic Children and Children With ADHD.

自闭症儿童和多动症儿童的紧急就诊。

• DOI: 10.1542/peds.2020-049437v
• 发表时间: 2022
• 期刊: Pediatrics
• 影响因子: 8
• 作者: Schott,Whitney;Tao,Sha;Shea,Lindsay
• 通讯作者: Shea,Lindsay

The prevalence and incidence of early-onset dementia among adults with autism spectrum disorder.

• DOI: 10.1002/aur.2590
• 发表时间: 2021-10
• 期刊: Autism research : official journal of the International Society for Autism Research
• 作者: Vivanti G;Tao S;Lyall K;Robins DL;Shea LL
• 通讯作者: Shea LL