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Autism Spectrum Disorder in Rural Georgia: Education and Resources

乔治亚州农村的自闭症谱系障碍：教育和资源

基本信息

批准号：
10671672
负责人：
Sarah Elizabeth Rotschafer
金额：
$ 14.18万
依托单位：
MERCER UNIVERSITY MACON
依托单位国家：
美国
项目类别：
财政年份：
2022
资助国家：
美国
起止时间：
2022-08-01 至 2025-07-31
项目状态：
未结题

来源：
https://reporter.nih.gov/project-details/10671672
关键词：
Address Adult Advertisements Affect Age Area Autism Diagnosis Awareness Cellular Phone Child Child Care Clinical Trials Code Collaborations Communities County Databases Dedications Dentists Diagnosis Diagnostic Disease Disparity Early Intervention Education Failure Family Feedback Focus Groups Friends Geography Goals Health Health Personnel Health Resources Home Impairment Income Independent Living Individual Information Resources Intervention Knowledge Language Link Literature Maps Medical Students MedlinePlus Mission Newsletter Pamphlets Parents Patient Care Patients Physicians Process Provider Psyche structure Reading Research Resources Rural Rural Community Rural Health Services Severities Shapes Signs and Symptoms Social support Support Groups Symptoms Testing Therapeutic Therapeutic Intervention Thinking Time Training United States National Library of Medicine Universities Urban Community Writing autism spectrum disorder autistic children biomedical resource commune continuing medical education diagnostic criteria evidence base executive function experience health care availability individuals with autism spectrum disorder innovation insight language impairment literacy medical schools medically underserved meetings member neighborhood disadvantage online course prevent programs repetitive behavior rural area rural counties rural families sensory processing disorder service providers sixth grade social social communication socioeconomic disadvantage symptomatic improvement telehealth tool treatment center underserved community usability web page web site

项目摘要

PROJECT SUMMARY Autism spectrum disorder (ASD) is a condition characterized by atypical social communication, rigid thinking, and repetitive behavior that is becoming increasingly prevalent, with 1 in every 54 children meeting the diagnostic criteria. ASD signs and symptoms can vary broadly in their presentation, from relatively mild impairments to symptoms severe enough that they prevent individuals with ASD from living independently. Social support and early intervention therapies however can significantly ameliorate the severity of several ASD symptoms. Notably, the younger children are when therapies and interventions are begun, the more effective they will ultimately be. While children can be reliably diagnosed with ASD at as young as 18 months, the average age at time of diagnosis is 4.5 years which means that children with ASD often miss therapeutic opportunities for lack of a diagnoses. Delayed diagnoses are especially common in children from rural communities. Research that investigated possible causes for delayed ASD diagnoses in rural communities found lack of parental knowledge about ASD, hesitancy among clinicians to diagnose young children with ASD, and a lack of knowledge regarding steps to take to have a child tested for ASD to be significant factors. In order to address ASD-related disparities in rural communities, we created a webpage dedicated to helping families and individuals effected by ASD navigate the diagnostic process. Our webpage directs users to ASD “on-boarding’ organizations, and also has resources for finding early intervention therapy centers near their home communities, provides links to financial resources, and links to community based support organizations. We would like to expand our webpage into an online ASD ToolKit that will be reviewed by rural families who have a child with ASD. Our ToolKit will also give families opportunities to direct content creation by soliciting families’ input through user feedback questions and focus groups. The goal of the ASD ToolKit is to create an easy to use guide for living with and managing ASD in rural Georgia that has been shaped insights from families affected by ASD. We will also create an online course about ASD diagnosis and resources for rural physicians that will be informed by input from families affected by ASD. We will invite feedback from our targeted physicians though user feedback questions and an ASD resources quiz. Ultimately, we will use the physician input we receive on the course to develop a continuing medical education (CME) program that will be available through Project ECHO.

项目总结