UAS-CLEAR: A new nationally representative longitudinal study of caregiving experiences and well-being across the lifecourse

UAS-CLEAR：一项新的全国代表性纵向研究，涉及整个生命过程中的护理体验和福祉

• 批准号: 10729032
• 负责人: Marco Angrisani
• 金额: $ 97.38万
• 依托单位: UNIVERSITY OF MICHIGAN AT ANN ARBOR
• 依托单位国家: 美国
• 财政年份: 2023
• 资助国家: 美国
• 起止时间: 2023-08-15 至 2028-04-30
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10729032
• 关键词: Activities of Daily Living; Address; Adult; Age; Alzheimer' s disease related dementia; American; Behavior; Biometry; Buffers; Caregivers; Caring; Cellular Phone; Child Care; Communities; Coping Skills; Data; Data Collection; Data Set; Dementia caregivers; Disabled Persons; Eating; Ecological momentary assessment; Elderly; Emotional; Exhibits; Extended Family; Family; Family Caregiver; Financial Hardship; Future; Generations; Health; Health behavior; Heart Rate; Individual; Internet; Life; Life Cycle Stages; Link; Long-Term Care; Longitudinal Studies; Measures; Mental Health; Outcome; Participant; Patient Self-Report; Personal Satisfaction; Persons; Phase; Physical activity; Physiological; Predictive Factor; Probability; Productivity; Reporting; Research; Respondent; Risk Factors; Role; Sampling; Sleep; Smoking; Spouses; Stepfamilies; Stress; Surveys; Time; Underrepresented Populations; Work; age group; care recipients; caregiving; cost; digital technology; disability; expectation; experience; fitbit; health data; heart rate variability; human old age (65+); improved; informal caregiver; informal caregiving; machine learning method; modifiable risk; nonalzheimer dementia; physical conditioning; protective factors; psychosocial resources; resilience; resilience factor; smartphone application; social; social relationships; socioeconomics; statistical and machine learning; stress reactivity; tool; wearable device; young adult

Project Summary Up to 36 million Americans provide caregiving to disabled adults and approximately 16.1 million provide informal caregiving to people with Alzheimer’s disease and related dementias (ADRD). Given the rising number of older adults with disability and ADRD and the accompanying shortage and cost of paid caregivers, family and other unpaid caregivers are increasingly vital in the long-term care of older adults. Caregiving is often shared across multiple social partners across the life course, across generations within family, extended family, stepfamily and non-family ties who may experience heterogeneous burden. Yet, most research focuses on spouse and child caregivers. Digital technology-enabled studies of daily stress exposure (e.g., interpersonal tensions, work stress) and reactivity (i.e., the link between exposure and daily well-being outcomes) may provide crucial information regarding the mechanisms by which caregiving is linked with greater burden or worse psychological and physical health outcomes. The present study develops and administers new survey instruments in the Understanding America Study (UAS) to identify caregivers and implements new EMA assessments and wearable devices to capture caregivers’ daily experiences and their links with daily emotional and physiological well-being among ADRD and non-ADRD family and non-family caregivers ranging in age from young adulthood to old age. The UAS is a well-established, probability-based Internet panel currently comprising 10,000 individuals ages 18 and older and is expected to grow to 20,000 respondents by 2027. We address three aims: 1) Build a representative, life-course sample of unpaid caregivers to follow longitudinally and collect real-time daily experience and physiological data, called UAS-Caregiving Lifecourse Experiences Assessed in Real-time (UAS-CLEAR). 2) Compare daily experiences (stress exposure, stress reactivity) among ADRD and non-ADRD family and non-family caregivers from young adulthood to old age. 3) Identify individuals who are more or less resilient to daily stress and examine whether resilience factors vary between ADRD and non-ADRD family and non-family caregivers. Family caregivers are essential to the nation’s well-being and economy yet little information exists regarding the daily lives of ADRD and non-ADRD caregivers across the diverse social partners who provide care. Understanding daily experiences and reactivity and the factors that predict greater resilience and vulnerability to stress in a national sample of caregivers will provide unprecedented information regarding potentially modifiable risk and protective factors for improving caregiver health and well-being.

项目摘要 多达3600万美国人为残疾成年人提供服务，大约1610万人为残疾成年人提供服务。 阿尔茨海默氏症和相关痴呆症（ADRD）患者的非正式称呼。鉴于越来越多的 残疾和ADRD的老年人以及随之而来的有偿照顾者、家庭 在老年人的长期护理中，老年人和其他无酬照顾者越来越重要。护理往往是 在整个生命过程中，在家庭、大家庭中的几代人之间， 继家庭和非家庭关系谁可能会经历异质的负担。然而，大多数研究都集中在 配偶和子女照顾者。数字技术支持的日常压力暴露研究（例如， 人际关系紧张，工作压力）和反应性（即，暴露与日常健康之间的联系 成果）可提供关于将生育与健康联系起来的机制的重要信息 更大的负担或更差的心理和身体健康结果。本研究发展了 并在“了解美国研究”（UAS）中管理新的调查工具，以确定护理人员， 实施新的EMA评估和可穿戴设备，以捕捉护理人员的日常体验， 与ADRD和非ADRD家庭和非家庭之间的日常情绪和生理健康的联系 照顾者的年龄从青年到老年不等。无人机系统是一个完善的，基于概率的 互联网小组目前由10 000名18岁及以上的人组成，预计将增加到20 000人 到2027年的受访者。我们致力于三个目标： 1)建立一个有代表性的，无薪照顾者的生命历程样本，纵向跟踪和收集 实时的日常经验和生理数据，称为UAS-护理生命过程体验 实时评估（UAS-CLEAR）。2)比较日常经历（压力暴露，压力反应） ADRD和非ADRD家庭和非家庭照顾者从年轻成年到老年。第三章 找出对日常压力或多或少有弹性的人，并检查弹性是否 ADRD和非ADRD家庭和非家庭照顾者之间的因素不同。家庭照顾者是 对国家的福祉和经济至关重要，但关于ADRD日常生活的信息却很少 和非ADRD照顾者在不同的社会合作伙伴谁提供照顾。理解日常 经验和反应以及预测国民更大的弹性和对压力的脆弱性的因素 护理人员样本将提供有关潜在可改变风险的前所未有的信息， 保护因素，以改善照顾者的健康和福祉。