F32 Administrative Supplement for Childcare Costs: Addressing Fertility Information Needs and Fertility-related Distress among Female Adult Survivors of Childhood Cancer
F32 儿童保育费用行政补充:解决儿童癌症成年女性幸存者的生育信息需求和与生育相关的困扰
基本信息
- 批准号:10811353
- 负责人:
- 金额:$ 0.25万
- 依托单位:
- 依托单位国家:美国
- 项目类别:
- 财政年份:2022
- 资助国家:美国
- 起止时间:2022-09-01 至 2025-08-31
- 项目状态:未结题
- 来源:
- 关键词:AchievementAddressAdministrative SupplementAdultAreaBehavior TherapyBehavioral ModelBiologicalCancer PatientCancer SurvivorCancer SurvivorshipCaregiversCaringChildClinicalCognitiveCommunicationDataDevelopmentDiagnosisDistressEmotionalEvaluationFeedbackFellowshipFemaleFertilityFoundationsFutureGatekeepingGoalsGrief reactionHealthHealth BenefitImpairmentIndividualInfertilityInterventionInterviewKnowledgeLate EffectsLeadLeftLengthLifeLinkLiteratureMalignant Childhood NeoplasmMalignant NeoplasmsManualsMedicalMental DepressionModalityModelingNational Cancer InstituteOvarian tissue cryopreservationPatientsPatternPhasePopulationProviderPublic HealthQuality of lifeQuestionnairesReportingReproductive HealthResearch PersonnelResearch PriorityResourcesRiskRisk EstimateRoleSamplingSecondary toSelf EfficacySexual HealthStressStructureSurvivorsTarget PopulationsTestingTimeTrainingUniversitiesWomanacceptability and feasibilityagedcancer therapycareerchild bearingchildcare allowancechildhood cancer survivorcombination intervention strategycostdesignevidence basefertility improvementfertility preservationflexibilityhealth knowledgeimprovedintervention refinementmotherhoodnoveloocyte cryopreservationphase 1 studypost interventionprepubertypreservationprimary ovarian insufficiencypsychologicside effectskillssurvivorshiptheoriestherapy designtherapy developmenttraining opportunity
项目摘要
Impaired fertility is a highly distressing, under-addressed, late effect of cancer and cancer treatment among
female adult survivors of childhood cancer. Many female survivors are uncertain about their fertility status and
report unmet fertility information needs and fertility-related distress. For those who desire biological children,
overestimation of risk for impaired fertility may cause unnecessary emotional and relational distress.
Underestimation may lead to a missed opportunity to pursue having biological children due to factors such as
premature ovarian insufficiency. Yet, to date, fertility-related information needs and distress remain largely
unaddressed in this population. Following the ORBIT Model for behavioral intervention development, the
proposed study seeks to design and refine a behavioral intervention to address unmet fertility-related information
needs and fertility-related distress among female adult survivors of childhood cancer (aged 18-44). Phase I of
the study will involve conducting individual interviews with female adult survivors of childhood cancer (N=20) and
medical providers who care for this population (N=10) to inform the development of a preliminary, manualized,
intervention. Based on existing literature and feedback from experts in behavioral interventions for cancer
survivors, adult survivors of childhood cancer, and infertility, it is anticipated that an intervention combining
strategies from Patient Activation Theory and Acceptance and Commitment Therapy will be developed.
Intervention development is flexible and will be tailored based on feedback received from stakeholders. In Phase
2, preliminary intervention content will be delivered to a small sample of the target population (N=30). Feasibility
and acceptability, as well as examination of pre- to post-intervention patterns of change in intervention targets
(primary: fertility health knowledge, fertility-related distress; secondary: psychological flexibility, patient
activation, and self-efficacy), will be assessed and utilized to further refine the intervention (e.g., intervention
strategies, intervention length, and delivery modality). In line with the National Cancer Institute’s priority research
area focused on cancer survivorship, the overall goal of the fellowship is to support Dr. Stalls to develop expertise
that will enable her to become a leading clinical researcher in the development and evaluation of behavioral
interventions to address reproductive and sexual health late effects among cancer survivors. To do so requires
a unique combination of knowledge and skills in the areas of, 1) Reproductive and Sexual Health, 2) Behavioral
Intervention Development and Evaluation, and 3) Professional Development. Training in these areas will be
accomplished through guidance from expert sponsors and collaborators as well as the many resources and
training opportunities offered at Duke University. Completion of this fellowship would not only advance the
survivorship literature in this area and propel Dr. Stalls toward her career goals, but help address the significant
gap in well-trained clinical researchers who are equipped to address these highly personal and time-sensitive
reproductive and sexual health late effects of cancer and cancer treatment.
在癌症和癌症治疗中,生育能力受损是一个非常令人痛苦的、未得到充分重视的晚期影响
项目成果
期刊论文数量(0)
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科研奖励数量(0)
会议论文数量(0)
专利数量(0)
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Juliann Stalls其他文献
Juliann Stalls的其他文献
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{{ truncateString('Juliann Stalls', 18)}}的其他基金
Addressing Fertility Information Needs and Fertility-related Distress among Female Adult Survivors of Childhood Cancer
解决儿童癌症成年女性幸存者的生育信息需求和与生育相关的困扰
- 批准号:
10533845 - 财政年份:2022
- 资助金额:
$ 0.25万 - 项目类别:
Addressing Fertility Information Needs and Fertility-related Distress among Female Adult Survivors of Childhood Cancer
解决儿童癌症成年女性幸存者的生育信息需求和与生育相关的困扰
- 批准号:
10700879 - 财政年份:2022
- 资助金额:
$ 0.25万 - 项目类别:
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