Person-Centered Mobile App for AD/ADRD Family Caregivers

面向 AD/ADRD 家庭护理人员的以人为本的移动应用程序

• 批准号: 10019464
• 负责人: Joseph Chung
• 金额: $ 79.14万
• 依托单位: KINTO
• 依托单位国家: 美国
• 财政年份: 2018
• 资助国家: 美国
• 起止时间: 2018-08-15 至 2022-05-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10019464
• 关键词: Address; Adoption; Alzheimer' s Disease; Alzheimer' s disease related dementia; Arts; Belief; Caregiver Burden; Caregivers; Caring; Communication; Communities; Data; Development; Disease; Ecosystem; Emotional; Emotional Stress; Family; Family Caregiver; Family member; Feedback; Feeling; Focus Groups; Fostering; Funding; Goals; Home environment; Hour; Hypersensitivity; Individual; Medical; Medical History; Personal Satisfaction; Persons; Pharmaceutical Preparations; Phase; Play; Positioning Attribute; Privacy; Protocols documentation; Recommendation; Recording of previous events; Reporting; Residencies; Role; Security; Stress; Stretching; Talents; Technology; Vision; Visit; base; care preference; care recipients; caregiving; dementia care; design; family caregiving; family support; innovation; loved ones; member; mobile application; mobile computing; person centered; phase 1 testing; prototype; rapid growth; tool; treatment duration; usability

PROJECT SUMMARY More than 5 million people in the US suffer from AD/ADRD, and the Alzheimer's Association predicts that the number of sufferers will increase to as many as 14 million by 2050. New recommendations for the care of dementia place a strong focus on Person-Centered care. Family caregivers can play a vital role in supporting this approach, but they are already stretched. The Alzheimer's Association estimates that 15.9 million people in the US contribute 18.2 billion hours of unpaid care in support of people suffering from AD/ADRD (averaging >21.9 hours per week). Half of all caregivers for AD/ADRD sufferers report feeling emotional stress, resulting from the practical, financial, and emotional strains of this role. Family caregivers need more help, and a significant majority want technology to support them in their caregiving activities; however, technology solutions are limited, adoption rates are low, and existing solutions are failing to keep pace with the rapid growth of mobile technology. Kinto has begun to address this gap by developing a mobile application designed to promote and support person-centered care. The proposed application will allow caregivers to create a detailed profile of the care recipient called the Person-Centered Care Profile. This information is then used to generate Kinto's Care Reports, summaries that are personalized to the care recipient, and tailored to the information needs of specific members of the circle of care (including doctors, caregivers and family members). Users will also receive expert recommendations tailored to their needs and caregiving situation, in addition to the support of Kinto's caregiving community. Phase II aims are to: 1. Expand the breadth and depth of data capture to create a Person-Centered Care Profile: a detailed profile of the care recipient organized by care topics that include care preferences and goals, doctors, conditions, medications, allergies, medical history, personal history, likes, dislikes, values, and beliefs 2. Enhance communication within the circle of care through the introduction of new Kinto Care Reports: detailed summaries that are personalized to the care recipient, and specifically tailored to the information needs of doctors, family members, and paid caregivers 3. Implement new privacy and security protocols to support deeper connections with the medical ecosystem The goals of the application will be to promote person-centered care, increase family engagement in AD/ADRD caregiving activities, reduce individual caregiver burdens and overall stress, prolong in-home residency, and to provide family caregivers access to best-in-class support and guidance relating to AD/ADRD caregiving.

项目摘要 美国有超过500万人患有AD/ADRD，阿尔茨海默氏症协会预测， 到2050年，患者人数将增加到1400万人。新的护理建议 老年痴呆症将重点放在以人为本的护理上。家庭照顾者可以在支持方面发挥重要作用 这种方法，但他们已经捉襟见肘。阿尔茨海默氏症协会估计有1590万人 在美国，为支持AD/ADRD患者提供了182亿小时的无偿护理（平均 >每周21.9小时）。所有AD/ADRD患者的照顾者中有一半报告感到情绪压力， 从这个角色的实际，财务和情感压力中解脱出来。 家庭照顾者需要更多的帮助，而且绝大多数人希望技术能够支持他们的工作。 然而，技术解决方案有限，采用率低，现有的解决方案 无法跟上移动的技术的快速发展。 Kinto已经开始通过开发一个移动的应用程序来解决这一差距，该应用程序旨在促进和支持 以人为本的护理拟议的应用程序将允许护理人员创建护理的详细资料 被称为以人为本的护理档案。这些信息然后被用来生成Kinto的护理 报告、摘要针对护理接受者进行个性化设置，并根据以下信息需求量身定制： 护理圈的特定成员（包括医生、护理人员和家庭成员）。用户也将 除了获得支持外，还可以获得针对其需求和护理情况的专家建议 Kinto的社区。 第二阶段的目标是： 1.扩展数据采集的广度和深度，以创建以人为本的护理概况：详细的概况 按护理主题组织的护理接受者，包括护理偏好和目标，医生，条件， 药物、过敏、病史、个人史、好恶、价值观和信仰 2.通过引入新的Kinto护理报告，加强护理圈内的沟通： 为护理接受者提供个性化的详细摘要，并专门针对信息量身定制 医生、家庭成员和有偿护理人员的需求 3.实施新的隐私和安全协议，以支持与医疗生态系统的更深层次连接 该应用程序的目标是促进以人为本的护理，增加AD/ADRD的家庭参与 减少活动，减轻个人照顾者的负担和整体压力，延长家庭居住时间， 为家庭护理人员提供与AD/ADRD治疗相关的一流支持和指导。