Person-Centered Mobile App for AD/ADRD Family Caregivers

项目总结 美国有500多万人患有AD/ADRD，阿尔茨海默氏症协会预测， 到2050年，患者数量将增加到多达1400万人。关于护理的新建议 痴呆症将重点放在以人为中心的护理上。家庭照顾者可以在支持 这种方法，但他们已经捉襟见肘了。阿尔茨海默氏症协会估计，1590万人 在美国，贡献182亿小时的无偿护理，以支持患有AD/ADRD的人(平均 每周工作21.9小时)。AD/ADRD患者的所有照顾者中有一半报告感到情绪压力，结果 从这个角色的实际，fi财务和情感压力。 家庭照顾者需要更多的帮助，而很明显，大多数fi不希望技术支持他们在他们的 护理活动；然而，技术解决方案有限，采用率低，现有解决方案 跟不上移动技术的快速增长。 Kinto已经开始通过开发一款旨在推广和支持的移动应用程序来解决这一差距 以人为本的关怀。拟议的应用程序将允许护理人员创建详细的护理过程fiLE 接受者称其为以人为中心的护理专业人员fiLe。这些信息随后被用来产生金托的关怀 针对护理对象个性化的报告和摘要，并根据患者的信息需求量身定制 fic护理圈成员(包括医生、护理员和家庭成员)。用户还将 接受针对他们的需要和照料情况而量身定做的专家建议，此外还得到 金托的关爱社区。 第二阶段的目标是： 1.拓展数据采集的广度和深度，打造以人为本的护理专业fiLE：A Detail ProfiLE 按护理主题组织的护理接受者，包括护理偏好和目标、医生、病情、 药物、过敏、病史、个人病史、喜好、厌恶、价值观和信仰 2.通过推出新的金托护理报告，加强护理圈内的沟通： 针对护理对象个性化的详细摘要，以及专门针对信息定制的fi 医生、家庭成员和付费照顾者的需求 3.实施新的隐私和安全协议，以支持与医疗生态系统更深层次的连接 该应用程序的目标将是促进以人为中心的护理，增加家庭对AD/ADRD的参与 照看活动，减轻个人照顾者负担和总体压力，延长居家居住时间，并 为家庭照顾者提供与AD/ADRD照看相关的一流支持和指导。

PROJECT SUMMARY More than 5 million people in the US suffer from AD/ADRD, and the Alzheimer's Association predicts that the number of sufferers will increase to as many as 14 million by 2050. New recommendations for the care of dementia place a strong focus on Person-Centered care. Family caregivers can play a vital role in supporting this approach, but they are already stretched. The Alzheimer's Association estimates that 15.9 million people in the US contribute 18.2 billion hours of unpaid care in support of people suffering from AD/ADRD (averaging >21.9 hours per week). Half of all caregivers for AD/ADRD sufferers report feeling emotional stress, resulting from the practical, financial, and emotional strains of this role. Family caregivers need more help, and a significant majority want technology to support them in their caregiving activities; however, technology solutions are limited, adoption rates are low, and existing solutions are failing to keep pace with the rapid growth of mobile technology. Kinto has begun to address this gap by developing a mobile application designed to promote and support person-centered care. The proposed application will allow caregivers to create a detailed profile of the care recipient called the Person-Centered Care Profile. This information is then used to generate Kinto's Care Reports, summaries that are personalized to the care recipient, and tailored to the information needs of specific members of the circle of care (including doctors, caregivers and family members). Users will also receive expert recommendations tailored to their needs and caregiving situation, in addition to the support of Kinto's caregiving community. Phase II aims are to: 1. Expand the breadth and depth of data capture to create a Person-Centered Care Profile: a detailed profile of the care recipient organized by care topics that include care preferences and goals, doctors, conditions, medications, allergies, medical history, personal history, likes, dislikes, values, and beliefs 2. Enhance communication within the circle of care through the introduction of new Kinto Care Reports: detailed summaries that are personalized to the care recipient, and specifically tailored to the information needs of doctors, family members, and paid caregivers 3. Implement new privacy and security protocols to support deeper connections with the medical ecosystem The goals of the application will be to promote person-centered care, increase family engagement in AD/ADRD caregiving activities, reduce individual caregiver burdens and overall stress, prolong in-home residency, and to provide family caregivers access to best-in-class support and guidance relating to AD/ADRD caregiving.