Development of a technology-enabled care coaching service for families caring for AD/ADRD & a 300-family study to assess the service's impact on CG financial knowledge, efficacy, strain & action.

为 AD/ADRD 护理家庭开发技术支持的护理指导服务

• 批准号: 10681361
• 负责人: Joseph Chung
• 金额: $ 113.34万
• 依托单位: KINTO
• 依托单位国家: 美国
• 财政年份: 2022
• 资助国家: 美国
• 起止时间: 2022-09-01 至 2024-05-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10681361
• 关键词: Address; Age; Alzheimer' s Disease; Alzheimer' s disease related dementia; American; Behavior; Behavioral; Caregiver support; Caregivers; Caring; Client; Collaborations; Confusion; Decision Making; Dementia; Dementia caregivers; Development; Disease; Distress; E-learning; Educational Curriculum; Effectiveness; Elements; Empathy; Evaluation; Family; Family Caregiver; Family Study; Feasibility Studies; Feedback; Financial Hardship; Grant; Health Benefit; Human; Hybrids; Journals; Knowledge; Methodological Studies; Modeling; Multilingualism; Paper; Participant; Patients; Peer Review; Persons; Phase; Protocols documentation; Publishing Peer Reviews; Quality of Care; Readiness; Research; Self Efficacy; Services; Source; Stress; Support Groups; Surveys; Technology; Testing; Time; Training; Uninsured Medical Expense; United States; Work; care costs; caregiving; community living; experience; family caregiving; family support; financial decision making; financial literacy; human old age (65+); improved; life time cost; loved ones; mobile computing; novel; peer support; prototype; psychosocial wellbeing; randomized, controlled study; symposium; technological innovation; usability; virtual; virtual healthcare

5.8 million Americans age 65+ are living with AD/ADRD and by 2050, the number of people over the age of 65 with AD is projected to reach 13.8 million. There are currently 16.1 million unpaid U.S. caregivers providing care to people with dementia. Family caregivers are typically untrained in this work, uneducated about the disease and their treatment options, and struggling to take care of their loved ones while managing their own lives and families. The total lifetime cost of care is estimated at $357,297 per person with 70% of this borne by family caregivers in the form of unpaid care and out-of-pocket expenses, and many AD/ADRD caregivers bear the responsibility of making financial decisions on behalf of the person they’re caring for. Research has recently begun to examine the connection between financial strain and caregiver psychosocial well-being; many findings suggest that financial stress is a significant predictor of caregiver distress, which often may lead to suboptimal decision making and lower quality of care. In partnership with the Alzheimer’s Association, Kinto proposes to help to address this challenge by developing a solution which leverages mobile technology to deliver a highly scalable caregiver support and training service that combines three mutually reinforcing elements: Virtual Care Coaching, Personalized eLearning Curriculum, and Virtual Peer Support Groups. We are collaborating with the Alzheimer’s Association to provide trained and experienced Masters-level coaches who develop an individualized action plan with each client, imparting expert advice and introducing relevant curriculum modules to address each family’s specific needs. Regular peer support groups facilitated via video conference and in-app messaging underpin the coaching and curriculum by providing a forum for caregivers to share experiences, solutions, and empathy. In Phase I, we propose integrating these elements to develop a prototype platform and service, and testing the usability and efficacy of the solution to address caregivers’ financial literacy and planning needs. The prototype solution will be tested by a diverse group of caregivers in both English and US-Spanish to establish its impact on financial knowledge, efficacy, strain and action. Based on these results, and feedback from participant caregivers and coaches, Phase II proposes the development of a fully scalable and integrated solution that will then be tested in a detailed 300-person study. Kinto and the Alzheimer’s Association will collaborate to share results from these studies in peer-reviewed journals and at dementia and caregiving conferences.

5.8百万65岁以上的美国人患有AD/ADRD，到2050年， 65岁的AD患者预计将达到1380万人。目前，美国有1610万名无薪护理人员 为痴呆症患者提供护理。家庭照顾者通常没有受过这项工作的训练， 他们对疾病和治疗方案一无所知，并努力照顾他们的亲人 同时管理自己的生活和家庭。一生的护理总费用估计为357 297美元， 其中70%由家庭照料者以无偿照料和自付形式承担 许多AD/ADRD护理人员承担着代表他们做出财务决定的责任 他们要照顾的人的照片最近，研究人员开始研究 经济压力和照顾者的心理健康;许多研究结果表明，经济压力是一个 护理人员痛苦的重要预测因素，这通常可能导致次优决策和较低的 护理质量。 在与阿尔茨海默氏症协会的合作中，Kinto建议通过以下方式帮助应对这一挑战： 开发利用移动的技术提供高度可扩展的护理人员支持的解决方案 和培训服务，结合了三个相互加强的要素：虚拟护理教练， 个性化的电子学习课程和虚拟同伴支持小组。我们正在与 阿尔茨海默氏症协会提供训练有素和经验丰富的大师级教练谁开发一个 与每个客户制定个性化的行动计划，提供专家建议并介绍相关课程 模块，以满足每个家庭的具体需求。通过视频促进定期同侪支持小组 会议和应用程序内消息传递通过提供一个论坛来支持辅导和课程， 护理人员分享经验，解决方案和同情心。 在第一阶段，我们建议整合这些元素来开发原型平台和服务， 测试解决方案的可用性和有效性，以解决护理人员的财务知识和规划问题 需求原型解决方案将由一组不同的护理人员用英语和 美国-西班牙建立其对金融知识，效率，应变和行动的影响。基于这些 结果，以及参与者护理人员和教练的反馈，第二阶段提出了一个 完全可扩展和集成的解决方案，然后将在300人的详细研究中进行测试。金托和 阿尔茨海默氏症协会将合作在同行评议的期刊上分享这些研究的结果， 在痴呆症和痴呆症的会议上。