RememberStuff: a dyadic-focused technology to support persons with Alzheimer's disease in the community

RememberStuff：一种以二元为重点的技术，为社区中的阿尔茨海默病患者提供支持

• 批准号: 10004975
• 负责人: Nicole R. Fowler
• 金额: $ 31.69万
• 依托单位: EPERTURE, LLC
• 依托单位国家: 美国
• 财政年份: 2020
• 资助国家: 美国
• 起止时间: 2020-09-01 至 2022-12-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10004975
• 关键词: Address; Adult; Affect; Age; Age-Years; Aging; Alzheimer' s Disease; Alzheimer' s disease related dementia; American; Americas; Basic Science; Businesses; Caregiver Burden; Caregivers; Caring; Clinical Sciences; Clinical effectiveness; Communication; Communities; Computer software; Computers; Cost Savings; Custom; Data; Data Collection; Dementia; Dependence; Development; Disease; Doctor of Philosophy; Effectiveness; Elderly; Family; Family member; Feedback; Friends; Goals; Home environment; Hour; Impaired cognition; Indiana; Individual; Instruction; Long-Term Care; Measurable; Monitor; Neurobehavioral Manifestations; Nursing Homes; Outcome Study; Patients; Perception; Persons; Phase; Play; Population; Preparation; Research; Research Personnel; Resolution; Risk; Secure; Services; Small Business Technology Transfer Research; Societies; Stress; Supervision; Symptoms; System; Target Populations; Technology; Testing; Universities; Update; Visualization software; Woman; Work; base; burnout; care systems; caregiving; cognitive function; cost; data visualization; dementia care; design; experience; global health; graphical user interface; human old age (65+); informal care; informal caregiver; meetings; mild cognitive impairment; operation; primary caregiver; tool; touchscreen; usability

Project Abstract An estimated 5.7 million Americans have Alzheimer’s disease or a related dementia (ADRD) and one in ten people age 65 or older show symptoms of Alzheimer’s disease. As ADRD progresses so does the level of dependency on others. As the disease progresses, higher levels of dependence in people with Alzheimer’s disease are associated with significantly increased burden and costs of informal care. Today, 41 percent of care support provided to older adults with ADRD is provided by family members, friends or other unpaid informal caregivers. Eperture, an Indiana-based woman-owned small business, is developing a technology known as RememberStuff® (R/S) that is designed to address many of the shortcomings seen in current solutions to serve ADRD patients and their caregivers on the market. R/S manages and supports common tasks of caregiving and keeps open the lines of communication between the patient-caregiver dyad. R/S is an in-home kiosk with customized hardware and software!(touch-screen computer screen with a camera) that enables secure (e.g. off line) bi-directional communications between caregivers and individuals with Alzheimer’s disease. The overall goal of R/S technology is to work with the ADRD dyad to: 1) keep the person with ADRD as independent as possible for as long as possible, and 2) support that person’s caregiving network.!R/S has been designed from the ground up by a team with caregiving and technology experience to address the limitations and shortfalls of other caregiving options on the market. Once fully developed, R/S will also provide data and feedback for clinical and basic science researchers to gain a further understanding of the relationship between dementia patient needs and the burden of stress experienced by caregivers. In this STTR, Eperture and its research partners at Indiana University Center for Aging Research and technical partners will continue to develop and enhance the R/S technology to enhance its acceptance to the affected market. Specifically, the overall goal of Phase I is to demonstrate feasibility and usability of RememberStuff among the Alzheimer’s disease dyad. To achieve this goal, Eperture will complete the following Specific Aims: 1) Test the usability and acceptability of R/S among 25 dyads of older adults with ADRD and their primary caregiver; 2) Enhance R/S to include data collection and data visualization tools for both caregiver and patient; and, 3) Prioritize results of Aim 2 with the full team to identify both design and function (software and hardware) enhancements for resolution in the next R/S design iteration in preparation for the outcomes study (Phase II). At the end of Phase I, Eperture and its research partners will have demonstrated the usability of R/S among its target population. Phase II efforts will focus on updates and enhancements identified in Phase I and a larger scale study to determine the effectiveness of R/S on measurably reducing caregiver stress and helping older adults with ADRD maintain independence.

项目摘要 据估计，570万美国人患有阿尔茨海默病或相关痴呆症（ADRD），十分之一的人患有阿尔茨海默病。 65岁或以上的人表现出阿尔茨海默病的症状。随着ADRD的进展， 依赖他人。随着病情的发展，老年痴呆症患者的依赖程度越来越高， 疾病与非正规护理的负担和费用显著增加有关。今天，41%的护理 向患有ADRD的老年人提供的支持由家庭成员、朋友或其他无报酬的非正式组织提供。 照顾者Eperture是一家位于印第安纳州的女性拥有的小企业，正在开发一种名为 RememberStuff®（R/S）旨在解决当前解决方案中的许多缺点， ADRD患者及其护理人员在市场上。R/S管理和支持常见的任务， 保持病人-护理者二元体之间的沟通渠道畅通。R/S是一个家庭信息亭， 定制的硬件和软件！（带摄像头的触摸屏计算机屏幕），可实现安全（例如关闭 线）之间的双向沟通照顾者和个人与阿尔茨海默氏症。整体 R/S技术的目标是与ADRD二人组一起工作：1）保持ADRD人员的独立性， 尽可能长的时间，2）支持那个人的社交网络。R/S设计自 由一个拥有丰富经验和技术经验的团队来解决 市场上的其他选择。一旦完全开发，R/S还将为临床提供数据和反馈， 和基础科学研究人员进一步了解痴呆症患者之间的关系， 照顾者的需求和压力负担。在这个STTR中，Eperture及其研究合作伙伴在 印第安纳州大学老龄化研究中心和技术合作伙伴将继续开发和加强 R/S技术，以提高其接受受影响的市场。具体而言，第一阶段的总体目标是 证明RememberStuff在阿尔茨海默病二分体中的可行性和可用性。实现这一 目标，Eperture将完成以下具体目标：1）测试R/S的可用性和可接受性25 ADRD老年人及其主要照顾者的二人组; 2）加强R/S，包括数据收集和数据 为护理人员和患者提供可视化工具;以及3）与整个团队一起优先考虑目标2的结果，以确定 设计和功能（软件和硬件）增强，以便在下一个R/S设计迭代中解决问题 为结果研究（第二阶段）做准备。在第一阶段结束时，Eperture及其研究伙伴将 已经证明了R/S在其目标人群中的可用性。第二阶段的工作将侧重于更新和 在第一阶段确定的增强和更大规模的研究，以确定R/S的有效性， 减轻照顾者的压力，帮助患有ADRD的老年人保持独立。