Integration of Health Information Technology and Promotion of Personhood in Family-Centered Dementia Care
在以家庭为中心的痴呆症护理中整合健康信息技术和提升人格
基本信息
- 批准号:10045979
- 负责人:
- 金额:$ 34.51万
- 依托单位:
- 依托单位国家:美国
- 项目类别:
- 财政年份:2020
- 资助国家:美国
- 起止时间:2020-09-15 至 2025-05-31
- 项目状态:未结题
- 来源:
- 关键词:AddressAfrican AmericanAlabamaAlzheimer&aposs disease related dementiaAmericanAnomiaAphasiaAttentionAttentional deficitBehaviorBehavioralCaregiver supportCaregiversCaringClinicClinicalClinical ServicesClinical assessmentsCollectionCommunicationCommunitiesComplexComputer softwareConflict (Psychology)CustomDataDecision MakingDementiaDementia caregiversDepression screenDesire for foodDevicesDisadvantagedEarly DiagnosisElderlyFamilyFamily memberFeedbackFriendsFundingFutureGoalsHabitsHealth PersonnelHispanicsHome environmentInformation TechnologyInfrastructureInstitutionalizationInteractive CommunicationInternetInterpersonal RelationsInterventionKnowledgeLeadMeasuresMedicalMemoryMemory LossMental DepressionMental HealthMonitorMoodsMultimediaOutcomePatientsPeriodicityPersonhoodPersonsPilot ProjectsPopulationPrimary Progressive AphasiaProviderQuality of CareQuality of lifeRecommendationRegimenResearchRetrievalSecureSelf EfficacySelf-Help DevicesSleepSocial isolationTechnologyTestingTextTimeTrainingTranslatingTriad Acrylic ResinUnited States Agency for Healthcare Research and QualityWorkalternative communicationassociated symptombasebilingualismbiopsychosocialcare preferencecaregivingclinical careclinical decision-makingcommunication devicecost efficientdata integrationdementia caredementia caregivingdesigndisabilitydosageexperienceflexibilityhealth information technologyimprovedmembermobile applicationnovelperson centeredprematurepsychosocialrecruitrural residenceskillssleep qualitytheoriestouchscreentrend
项目摘要
Currently, approximately 5.8 million Americans have Alzheimer’s disease and related dementias (ADRD) and
are cared for by 16 million family members, friends or other unpaid caregivers. Communication deficits are
common among persons with ADRD and are due to a variety of symptoms associated with ADRD, including
(but not limited to) various types of primary progressive aphasia, memory loss, word-retrieval anomia, and
decreased attention span. For the persons with ADRD, these deficits can lead to a number of poor outcomes,
such as depression, social isolation, mood and behavioral disturbances, and premature institutionalization.
Communication deficits also pose challenges to caregiving and clinical care, which is already complex. Our
team has previously developed and tested an information technology (IT) intervention, called CareHeroes (CH)
app that assists caregivers with common caregiving challenges and to improve clinical communication
between ADRD caregivers and providers. The team has successfully integrated CH into clinical care at two
memory clinics and have translated CH into Spanish. The proposed project builds on this previous work by
modifying CH to include an Assistive Alternative Communication (AAC) device that relies on touchscreen
technology to increase communication by the persons with ADRD about their daily care preferences,
experiences, and habits. This new interface is customizable and grounded in evidence on AAC and
touchscreen-use by persons with dementia. Essentially, the CH AAC would compensate for the persons’
communication deficits by using photographs, graphics and text to promote engagement of the person with
ADRD, promote personhood, and offer providers access to real-time, tracked behavioral trends that support
early detection, intervention, and monitoring of community dwelling older adults. The study has two Specific
Aims: (1) Develop a novel, electronic AAC interface for an existing IT intervention (CH) that assists the person
with dementia in communicating their daily care preferences with caregivers; and communicate everyday
habits and behaviors (e.g., sleep quality, appetite, daily activities) with providers involved in their care; (2)
Examine the impact and conduct a pilot study that evaluates biopsychosocial outcomes of 120 triads (person
with dementia/ caregivers/providers) utilizing the CH3.0 intervention as an adjunct to care and caregiving for 12
months. Triads will be recruited from two memory clinics (Miami, Alabama) where we have already integrated
the current version of CH into care for use by caregivers and providers. These clinics serve several
disadvantaged ADRD populations (e.g., African American, Hispanic, rural-dwelling). Measures will be
administered at baseline, 6 month, and 12 months and focus on psychosocial and communication/engagement
among members of the triad and we will track all CH3.0 user actions for the 12 month study. The project
design is highly feasible and cost efficient, given that the infrastructure has already been established through
the team’s currently funded (AHRQ R21 HS026571- 9/18- 09/20) study.
目前,大约有580万美国人患有阿尔茨海默病和相关痴呆(ADRD)
项目成果
期刊论文数量(0)
专著数量(0)
科研奖励数量(0)
会议论文数量(0)
专利数量(0)
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ELLEN Leslie BROWN其他文献
ELLEN Leslie BROWN的其他文献
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{{ truncateString('ELLEN Leslie BROWN', 18)}}的其他基金
Integration of Health Information Technology and Promotion of Personhood in Family-Centered Dementia Care
在以家庭为中心的痴呆症护理中整合健康信息技术和提升人格
- 批准号:
10256775 - 财政年份:2020
- 资助金额:
$ 34.51万 - 项目类别:
Integration of Health Information Technology and Promotion of Personhood in Family-Centered Dementia Care
在以家庭为中心的痴呆症护理中整合健康信息技术和提升人格
- 批准号:
10665602 - 财政年份:2020
- 资助金额:
$ 34.51万 - 项目类别:
Integration of Health Information Technology and Promotion of Personhood in Family-Centered Dementia Care
在以家庭为中心的痴呆症护理中整合健康信息技术和提升人格
- 批准号:
10427421 - 财政年份:2020
- 资助金额:
$ 34.51万 - 项目类别:
Examining the clinical workflow and outcomes of integrating health information technology to educate and support dementia caregivers
检查整合健康信息技术以教育和支持痴呆症护理人员的临床工作流程和结果
- 批准号:
9788229 - 财政年份:2018
- 资助金额:
$ 34.51万 - 项目类别:
Treatment Initiation of Late-life Depression in Home Care
家庭护理中晚年抑郁症的治疗启动
- 批准号:
7176840 - 财政年份:2002
- 资助金额:
$ 34.51万 - 项目类别:
Treatment Initiation of Late-life Depression in Home
晚年抑郁症的家庭治疗开始
- 批准号:
6684114 - 财政年份:2002
- 资助金额:
$ 34.51万 - 项目类别:
Treatment Initiation of Late-life Depression in Home
晚年抑郁症的家庭治疗开始
- 批准号:
6827870 - 财政年份:2002
- 资助金额:
$ 34.51万 - 项目类别:
Treatment Initiation of Late-life Depression in Home Car
家庭车内晚年抑郁症的治疗启动
- 批准号:
6558134 - 财政年份:2002
- 资助金额:
$ 34.51万 - 项目类别:
Treatment Initiation of Late-life Depression in Home
晚年抑郁症的家庭治疗开始
- 批准号:
7007000 - 财政年份:2002
- 资助金额:
$ 34.51万 - 项目类别:
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