Examining the clinical workflow and outcomes of integrating health information technology to educate and support dementia caregivers

检查整合健康信息技术以教育和支持痴呆症护理人员的临床工作流程和结果

• 批准号: 9788229
• 负责人: ELLEN Leslie BROWN
• 金额: $ 13.37万
• 依托单位: UNIVERSITY OF ALABAMA IN TUSCALOOSA
• 依托单位国家: 美国
• 财政年份: 2018
• 资助国家: 美国
• 起止时间: 2018-09-30 至 2022-09-29
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/9788229
• 关键词: Examining; clinical; workflow; outcomes; integrating

PROJECT SUMMARY. The proposed project, “Examining the clinical workflow and outcomes of integrating health information technology to educate and support dementia caregivers,” is a comprehensive study that will evaluate the integration of CareHeroes, a web- and smartphone- based health information technology (HIT) app into clinical care while supporting and empowering caregivers of adults with Alzheimer's disease and other forms of dementia (AD). AD is a leading cause of disability worldwide and the stress and challenges of managing AD symptoms often results in depression, burden, and compromised health for AD caregivers. AD also disproportionately affects patients and caregivers who are African American and Hispanic. Simultaneously, there are barriers for providers in collecting patient-related information to use for AD clinical decision making and AD caregivers report challenges to shared decision making. HIT has been suggested as a way to address the challenges associated with AD clinical care and caregiving, though little is known about how to utilize mobile technologies to link caregivers and providers for clinical care. To address these issues, the research team has developed CareHeroes, a multi-functional app that: educates AD caregivers, provides support to AD caregivers, and provides a secure platform for AD caregivers to share patient-related information with providers from the home or community setting in real-time. Following the success of its feasibility study, this project proposes to integrate CareHeroes into the clinical workflow of two memory clinics that serve large proportions of AD patients and caregivers from disadvantaged backgrounds (Hispanic, African American, rural dwelling). As part of the study, caregivers will use the app for a period of 12 months as a support for caregiving and to elevate their role as part of the care team along with providers. The specific aims of this project are to: (1) evaluate the feasibility of integrating CareHeroes into clinical workflow and the effects of its usage on clinical and shared decision making between providers and caregivers; and (2) examine the effects of usage of the app on caregivers' self-efficacy and health literacy. The findings will have high public health importance, because it will inform future efforts on implementing HIT as an adjunct to AD clinical care, which may result in improved responses to AD care and better physical and mental health outcomes for AD caregivers and patients. The multi-disciplinary team has devised a feasible intervention and evaluation plan, led by PIs, Dr. Nicole Ruggiano, Associate Professor of Social Work at the University of Alabama, and Dr. Ellen Brown, Associate Professor of Nursing at Florida International University (FIU).

项目总结。建议的项目，“检查临床工作流程和结果 整合健康信息技术以教育和支持痴呆症照顾者 一项全面的研究，将评估CareHeroes，一种网络和智能手机的集成- 基于健康信息技术(HIT)应用程序进入临床护理，同时支持和 为阿尔茨海默病和其他形式的痴呆症(AD)成年人的照顾者提供支持。 AD是全球残疾的主要原因以及管理AD的压力和挑战 症状通常会导致抑郁、负担，并损害AD照顾者的健康。广告 对非洲裔美国人和西班牙裔美国人的患者和照顾者的影响也不成比例。 同时，提供者在收集与患者相关的信息以供使用方面也存在障碍 对于AD临床决策和AD照顾者报告共享决策的挑战。 HIT已被建议作为解决与AD临床相关的挑战的一种方式 护理和护理，尽管人们对如何利用移动技术将 临床护理的护理人员和提供者。为了解决这些问题，研究小组已经 开发的CareHeroes是一款多功能应用程序，用于教育AD照顾者，为 AD护理者，并为AD护理者提供一个安全的平台，以分享与患者相关的 与来自家庭或社区设置的提供商实时提供信息。紧随其后的是 其可行性研究的成功，该项目提出将CareHeroes整合到临床 为大部分AD患者和照顾者提供服务的两家记忆诊所的工作流程 弱势背景(西班牙裔、非裔美国人、农村居民)。作为研究的一部分， 护理者将使用这款应用程序12个月，作为对护理的支持和提升 他们作为护理团队的一部分与提供者一起发挥作用。该项目的具体目标是： (1)评估将CareHeroes整合到临床工作流程的可行性及其效果 在临床和提供者和照顾者之间共享决策方面的使用；以及(2) 考察使用该应用程序对照顾者自我效能感和健康素养的影响。 这些发现将具有高度的公共卫生重要性，因为它将为未来的努力提供信息 关于实施HIT作为AD临床护理的辅助措施，可能会改善反应 为AD照顾者和患者提供AD护理和更好的身心健康结果。这个 多学科团队已经制定了一个可行的干预和评估计划，由PI领导，Dr。 阿拉巴马大学社会工作副教授Nicole Ruggiano和Dr。 佛罗里达国际大学(FIU)护理学副教授艾伦·布朗说。