Health Education and Community Core (HECC)

健康教育和社区核心（HECC）

• 批准号: 10264956
• 负责人: Claire Amanda Berman
• 金额: $ 55.08万
• 依托单位: HARVARD SCHOOL OF PUBLIC HEALTH
• 依托单位国家: 美国
• 财政年份: 2020
• 资助国家: 美国
• 起止时间: 2020-09-18 至 2025-07-31
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10264956
• 关键词: AIDS/HIV problem; Address; Adopted; Advocacy; Affect; Award; Awareness; Books; Collaborations; Communication; Communities; Community Health Education; Community Integration; Complex; Data; Data Analyses; Data Collection; Decision Making; Disclosure; Disease remission; Education; Education Projects; Effectiveness; Ensure; Ethics; Family; Feedback; Foundations; Funding; General Population; Goals; HIV; Health; Health Educators; Health education; Incubators; Individual; Informed Consent; Infrastructure; International; Intervention; Joints; Knowledge; Leadership; Legitimacy; Longitudinal Studies; Medical; Mentorship; Methodology; Modeling; Participant; Pediatric HIV/AIDS Cohort Study; Phase; Politics; Procedures; Process; Program Research Project Grants; Publishing; Quality of life; Recommendation; Research; Research Design; Research Personnel; Research Priority; Research Project Grants; Research Proposals; Research Support; Resolution; Resources; Rights; Safety; Series; Services; Social Problems; Structure; Translating; United Nations; Validation; Voice; Woman; Work; clinical research site; community engaged research; community engagement; community involvement; contextual factors; design; education resources; experience; health communication; human subject protection; improved; innovation; insight; interest; member; multidisciplinary; novel; perinatal HIV; population based; prevent; programs; social; social stigma; symposium; transmission process; web portal; young adult

PROJECT SUMMARY/ABSTRACT Meaningful community engagement in HIV research supports the equitable collaborations between researchers, study participants, and the community. It brings together the theoretical and methodological expertise of academics and researchers, with the expertise of participants’ lived experiences and cultural- and context-rich perspectives, an orientation that has gained increasing credibility in addressing complex health and social problems. While the existence of Community Advisory Boards (CABs) in HIV research has been well-established, their contribution to the research process has typically been relegated to reviewing study materials and disseminating study findings. There is an unmet need for infrastructure and processes that ensure the meaningful inclusion and integration of community members and other stakeholders throughout all stages of the research process. A lack of meaningful community engagement has the potential to undermine not only effective study design and study procedures, but also the ability of findings to be implemented more broadly in the affected communities researchers ultimately seek to serve and benefit. As the PHACS Network has grown and matured over the past 14 years, so have the membership and scope of its CAB (established in 2008) and Young Adult CAB (established in 2013). They have provided vital input that has created new study questions, improved study procedures, and created more effective and innovative ways to disseminate findings. In 2013, an innovative multidisciplinary Health Education and Communication Committee was formed, comprised of CAB and YACAB members, clinical site staff, health educators, researchers, and investigators. This committee has been a model in PHACS for the integration of community engagement into research processes and has provided critical insights as PHACS has encountered unforeseen barriers to long-term study retention and data collection. Additionally, it has produced a wide array of innovative, community-driven health education resources, including an award-winning short documentary about perinatal HIV, a comic book series on maternal disclosure, whiteboard videos explaining informed consent and study procedures, and a web portal for young adult participants. To support the expanding scope of work and domains of interest in PHACS 2020, the innovative Health Education and Community Core (HECC) will formalize and expand these existing structures through targeted services that support the Research Projects, Emerging Research Pilots, and Cores and promote meaningful collaboration among researchers, clinical site staff, and CAB and YACAB members at all stages of the research process: when setting research priorities, crafting research questions, collecting data, analyzing and interpreting data. The HECC will also serve as an “innovation incubator” for novel efforts to communicate PHACS’ findings to participants and the community, thus modeling a more broadly adoptable feedback loop structure that includes and values community voices at all stages.

项目总结/摘要 有意义的社区参与艾滋病毒研究支持以下方面的公平合作： 研究人员、研究参与者和社区。它汇集了理论和方法， 学者和研究人员的专业知识，与参与者的生活经验和文化的专业知识， 背景丰富的观点，在解决复杂的健康问题方面， 和社会问题。虽然艾滋病毒研究中存在社区咨询委员会， 他们对研究过程的贡献通常被降级为审查研究， 材料和传播研究结果。对基础设施和流程的需求尚未得到满足， 确保社区成员和其他利益攸关方的有意义的包容和融合， 研究过程的各个阶段。缺乏有意义的社区参与有可能破坏 不仅有效的研究设计和研究程序，而且研究结果的实施能力更强 在受影响的社区中，研究人员最终寻求服务和受益。作为PHACS网络 在过去的14年里，它已经成长和成熟，其CAB的成员和范围也是如此（成立于 2008年）和青年成人CAB（成立于2013年）。他们提供了重要的投入，创造了新的研究 问题，改进了研究程序，并创造了更有效和创新的方式来传播 调查结果。2013年，成立了一个创新的多学科健康教育和宣传委员会， 由CAB和YACAB成员、临床研究中心工作人员、健康教育工作者、研究人员和调查人员组成。 该委员会是PHACS将社区参与融入研究的典范 过程，并提供了重要的见解，因为PHACS遇到了不可预见的障碍，长期 研究保留和数据收集。此外，它还产生了一系列创新的、社区驱动的 健康教育资源，包括一部关于围产期艾滋病毒的获奖纪录短片，一本漫画书， 关于产妇披露的系列，解释知情同意和研究程序的白板视频，以及 为年轻的成年参与者提供的门户网站。支持扩大工作范围和感兴趣的领域， PHACS 2020，创新的健康教育和社区核心（HECC）将正式化和扩展 这些现有的结构，通过有针对性的服务，支持研究项目，新兴的研究 试点和核心，促进研究人员、临床研究中心工作人员和CAB之间有意义的合作， YACAB成员参与研究过程的各个阶段：在确定研究优先事项时， 问题，收集数据，分析和解释数据。HECC还将作为一个“创新 孵化器"的新的努力，沟通PHACS的研究结果，以参与者和社区，从而建模 一个更广泛采用的反馈循环结构，包括并重视所有阶段的社区声音。