Test of an Innovative, Scalable Support Program for Parents with a Young Child Recently Diagnosed with Autism Spectrum Disorder

针对最近被诊断患有自闭症谱系障碍的幼儿的父母测试创新的、可扩展的支持计划

• 批准号: 10573205
• 负责人: MARK Ethan FEINBERG
• 金额: $ 67万
• 依托单位: PENNSYLVANIA STATE UNIVERSITY, THE
• 依托单位国家: 美国
• 财政年份: 2020
• 资助国家: 美国
• 起止时间: 2020-06-17 至 2025-02-28
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10573205
• 关键词: Address; Aggressive behavior; Anxiety; Autism Diagnosis; Behavioral; Birth; Characteristics; Child; Child Behavior; Child Rearing; Conflict (Psychology); Country; Data; Diagnosis; Disease; Early Intervention; Environment; Family; Family Relationship; Family Violence; Financial Hardship; Foundations; Health Services; Health Services Accessibility; Healthcare; Home; Home visitation; Individual; Intervention; Life; Manuals; Mediating; Medical; Mental Depression; Mental Health; Mentors; Modeling; Monitor; Outcome; Parents; Pathway interactions; Patient Recruitments; Problem behavior; Procedures; Process; Quality of life; Randomized; Reporting; Schools; Self Efficacy; Services; Social Work; South Carolina; Strategic Planning; Stress; Structure; Syndrome; Testing; Training; Voice; Work; autism spectrum disorder; autistic children; cohort; cost; cost effective; design; efficacy evaluation; evidence base; family support; flexibility; follow-up; high risk population; improved; innovation; parental influence; peer coaching; peer support; preventive intervention; primary outcome; programs; randomized trial; recruit; secondary outcome; skills; stressor; treatment program

Abstract Improving the family environment, service access, and behavioral adjustment of children with Autism Spectrum Disorder (ASD) has high relevance both for the children and their families as well as for health care and service payors. Family environment is a critical influence on ASD children’s adjustment: Poor parent adjustment increases behavior problems in ASD children, reduces parents’ capacity to access and adhere to critical services, and dampens or eliminates the benefits of early intervention. However, due to the stressors of navigating ASD-related and medical services, as well as managing child behavior challenges, parents of children with ASD report low levels of individual and couple adjustment. Parents report high levels of depression and anxiety, and low levels of parental efficacy and couple relationship quality compared to parents of typically developing children. To address the dual needs of parents for support in navigating ASD services and maintaining positive family functioning, we propose to test Autism Parent Navigators (APN), an innovative in-home, peer support model for parents with a young child recently diagnosed with ASD. APN was designed to be feasible and scalable by relying on parent peer mentors to conduct sessions. Extensive pilot work over the past 3 years has generated evidence of feasibility, acceptability, and impact. This pilot work has allowed us to fine-tune the parent mentor training, participant recruitment, delivery, and fidelity monitoring procedures. Aim 1. To assess the efficacy of APN in a randomized trial with 180 families. Aim 2. To test the mediating pathways through which APN impacts outcomes: We will test whether impact on proximal targets (ASD-related appraisals; coparenting; parent self-efficacy about accessing services; and peer mentor support) influence parent mental health, parenting, and treatment engagement, and if these in turn influence child outcomes. Aim 3. To assess whether baseline parent characteristics (financial stress, mental health, relationship conflict), child characteristics, or program processes (fidelity, parent engagement) moderate outcomes.

摘要