Enhancing ADRD Research in NHATS: Expanding Representation of the Hispanic Population

本补编的主要目的是扩大拉美裔人口在全国的代表性 2021年至2023年健康和老龄化趋势研究(NHATS)和全国护理研究(NSOC) 能够分析ADRD的趋势和轨迹、对个人和家庭的护理需求和后果。 随着居住在美国的拉美裔人口的增长和老龄化，了解疟疾的流行病学 阿尔茨海默病和相关痴呆症(ADRD)，包括护理需要和后果以及ADRD 流行率和趋势，是高度优先的科学目标。NHATS采访了具有全国代表性的 老年人每年为了(1)促进对晚年残疾趋势和动态的科学研究，他们的 前因和相关因素，以及其中的差异；和(2)促进对社会和经济的研究 晚年残疾对个人、家庭和社会的影响。NHATS样本补充完毕 定期；第一次补给于2015年部署，第二次补给计划于2021年进行(一次-- 由于新冠肺炎大流行而推迟一年)。因为NHATS样本是从联邦医疗保险登记中提取的 65岁及以上人士档案，范围是全国性的，提供有关种族/族裔、西班牙裔的信息 可以以高效和具有成本效益的方式对个人进行抽样，从而提供提供 西班牙裔老年人口对ADRD的重要见解。此外，其补充的国家研究 护理，它采访了NHATS参与者的家人和无偿照顾者，可以提供重要的 洞察西班牙裔家庭在照顾患有ADRD的年长亲戚时的不同经历。具体的 本附录的目的是：1)在NHATS 2021-2023轮中采访附加的西班牙裔样本 2021年对西班牙裔个人的约2000次采访，其中包括750次可能或可能 痴呆症；2)采访家庭照顾者，由国家研究中的附加西班牙裔样本产生 2021-2023轮护理，对西班牙裔NHAT的照顾者进行了大约700次访谈 2021年的参与者，包括400名可能或可能患有痴呆症的人；以及3)纳入附加样本 进入NHATS和NSOC的公共、敏感和受限文件，包括重量，并传播给用户 社区。西班牙裔附加样本将使研究人员能够研究ADRD的护理需求和对 年长的西班牙裔成年人，将他们与非西班牙裔群体与ADRD及其照顾者的经历进行对比 由于其他原因，西班牙裔老年人需要护理。

The overarching aim of this supplement is to expand representation of the Hispanic population in the National Health and Aging Trends Study (NHATS) and the National Study of Caregiving (NSOC) in 2021 to 2023 so as to allow analyses of ADRD trends and trajectories, care needs and consequences for individuals and families. As the Hispanic population living in the United States grows and ages, understanding the epidemiology of Alzheimer's Disease and Related Dementias (ADRD), including care needs and consequences as well as ADRD prevalence and trends, are high priority scientific aims. NHATS interviews a nationally representative sample of older adults annually in order to (1) promote scientific inquiry into late-life disability trends and dynamics, their antecedents and correlates, and disparities therein and (2) to advance study of the social and economic consequences of late-life disability for individuals, families, and society. The NHATS sample is replenished periodically; the first replenishment was fielded in 2015 and a second replenishment is planned for 2021 (a one- year delay due to the COVID-19 pandemic). Because the NHATS sample is drawn from the Medicare enrollment file of persons 65 and older, which is national in scope and provides information on race/ethnicity, Hispanic individuals may be sampled in an efficient and cost-effective manner providing the opportunity to provide important insights into ADRD for the Hispanic older population. Moreover, its supplemental National Study of Caregiving, which interviews family and unpaid caregivers of NHATS participants, could provide important insights into how Hispanic families' experiences differ when caring for an older relative with ADRD. The specific aims of this supplement are to: 1) Interview an add-on Hispanic sample in NHATS 2021-2023 rounds yielding approximately 2000 interviews with Hispanic individuals in 2021, including 750 with probable or possible dementia; 2) Interview family caregivers generated by the add-on Hispanic sample in the National Study of Caregiving 2021-2023 rounds, yielding approximately 700 interviews with caregivers to Hispanic NHATS participants in 2021, including 400 with probable or possible dementia; and 3) Incorporate the add-on samples into the NHATS and NSOC public, sensitive and restricted files, including weights, and disseminate to the user community. The Hispanic add-on sample will allow researchers to study ADRD care needs and care giving to older Hispanic adults, contrasting them with experiences of non-Hispanic groups with ADRD and their caregivers and with Hispanic older adults needing care for other reasons.