Core E: Outreach, Recruitment, and Engagement Core

核心 E：外展、招聘和参与核心

• 批准号: 10264192
• 负责人: DAVID W COON
• 金额: $ 17.76万
• 依托单位: ARIZONA STATE UNIVERSITY-TEMPE CAMPUS
• 依托单位国家: 美国
• 财政年份: 2021
• 资助国家: 美国
• 起止时间: 2021-09-05 至 2026-06-30
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10264192
• 关键词: Address; Adult; Affect; Age; Aging; Alzheimer disease prevention; Alzheimer' s Disease; Alzheimer' s disease related dementia; Arizona; Award; Awareness; Brain; California; Caregivers; Caring; Clinical; Communities; Community Health Education; Complement; Decision Making; Dementia; Development; Diagnosis; Education; Enrollment; Ensure; Evaluation; Event; Facebook; Family; Family Caregiver; Family member; Feedback; Focus Groups; Fostering; Friends; General Population; Geography; Goals; Hearing; Hispanics; Hour; Individual; Institutes; Latino; Methods; Minority; Minority Recruitment; Native Americans; Organizational Models; Outcome; Participant; Patient Care; Persons; Play; Population; Prevention; Qualitative Methods; Quality of Care; Registries; Research; Research Methodology; Research Project Grants; Resources; Risk Factors; Role; Social Marketing; Source; Twitter; Underserved Population; United States National Institutes of Health; Universities; Update; Voice; Washington; blood-based biomarker; cohort; community based participatory research; education research; ethnic minority population; flexibility; health economics; human old age (65+); innovation; interest; member; neuropathology; normal aging; outreach; preclinical study; prevent; programs; promoter; racial minority; recruit; research study; social media; success; symposium; underserved community; web site

PROJECT SUMMARY/ABSTRACT - OUTREACH, RECRUITMENT AND ENGAGEMENT CORE The Outreach, Recruitment and Engagement (ORE) Core plays a critical role in the ADRC, interacting with all other Cores, and developing and coordinating its outreach, recruitment, and engagement efforts across our geographically diverse state.1 Arizona's population of 7.27 million people2 that are aged 65 and older and living with Alzheimer's disease (AD) is expected to grow 33.3% by 2025—the largest increase in the US.3 Hispanics/Latinos constitute Arizona's largest ethnic minority (31.7%), and Native Americans alone (5.3%) represent the state's largest racial minority.2 The ORE Core reaches out to underserved communities for education, engagement, and research and to help ensure diverse participant cohorts in the Clinical Core, the Neuropathology Core (via brain and body donation), multicenter programs initiated by NIA, and related research. The ORE Core recognizes that ADRD not only affects people living with ADRD, but also Arizona's 346,000 ADRD family caregivers.3 It serves as a unique resource by disseminating up-to-date information on ADRD, research studies for interested healthy adults, and advancements in ADRD research, treatment, and care for patients and caregivers. Arizona's diversity and our multi-organizational model require that our ORE Core approach be intentionally multifaceted to meet the needs and nuances of our ADRC's organizations, community partners, and diverse communities. We use social marketing and community participatory research methods to help identify best practices, build on past successes and lessons learned, and leverage new opportunities. Examples include: (1) leading or collaborating on events about advances in ADRD research, treatment, and care, including events for underserved communities (e.g., Banner Alzheimer's Institute's Annual Native Americans & Alzheimer's Disease Conference); (2) expanding Zoom delivery of events and award- winning caregiver programs in English and Spanish;15-18 (3) developing new or updating existing products (e.g., Latino Personal Stories videos); (4) fostering minority recruitment through registries and other studies like MindCrowd,21,22 Alzheimer's Prevention Registry,19 and NIH's All of Us; (5) partnering with the Native AD Resource Center for Minority Aging Research (NAD RCMAR) at Washington State University and the Minority Aging Health Economics Research Center at University of Southern California; (6) advancing our social media presence through an updated website and via Facebook, Twitter, and YouTube; and (7) gathering feedback on community needs and ORE Core strategies from our Community Advisory Board, stakeholder focus groups, and recruitment and retention tracking forms. ORE activities will incorporate our ADRC's theme of “blood- based biomarkers (BBB) in the diagnosis, preclinical study and prevention of ADRD.”

项目摘要/摘要--外联、征聘和参与核心 外联、招募和接触(ORE)核心在ADRC中发挥关键作用，与所有人互动 其他核心，并开发和协调其在我们的 亚利桑那州人口727万65岁及以上人口 预计到2025年，阿尔茨海默病(AD)的发病率将增长33.3%，是美国增幅最大的。 拉美裔/拉丁裔是亚利桑那州最大的少数民族(31.7%)，只有美洲原住民(5.3%) 代表该州最大的少数族裔。2 ORE核心向服务不足的社区伸出援助之手 教育、参与和研究，并帮助确保临床核心的不同参与者队列， 神经病理学核心(通过大脑和身体捐赠)，由NIA发起的多中心计划，以及相关 研究。ORE Core认识到，ADRD不仅影响ADRD患者，还影响亚利桑那州的ADRD患者 346,000名ADRD家庭照顾者。3它是一个独特的资源，传播关于以下方面的最新信息 ADRD，对感兴趣的健康成年人的研究，以及ADRD研究、治疗和治疗的进展 关爱病人和护理者。亚利桑那州的多样性和我们的多组织模式要求我们的矿石 有意识地采取多方面的核心方法，以满足我们ADRC组织的需求和细微差别， 社区合作伙伴和多样化的社区。我们使用社会营销和社区参与式研究 帮助确定最佳实践、基于过去的成功和经验教训并利用新的 机遇。例如：(1)领导或合作关于ADRD研究进展的活动， 治疗和护理，包括针对服务不足社区的活动(例如，班纳阿尔茨海默氏症研究所年度 美洲原住民和阿尔茨海默病会议)；(2)扩大活动和奖项的Zoom交付- 赢得英语和西班牙语的护理者计划；15-18(3)开发新产品或更新现有产品(例如， 拉丁裔个人故事视频)；(4)通过登记和其他研究促进少数族裔招募 MindCrowd，21，22阿尔茨海默氏症预防登记处，19岁，NIH‘s All Our；(5)与土著AD合作 华盛顿州立大学少数族裔老龄化研究资源中心(NAD RCMAR) 南加州大学老龄健康经济学研究中心；(6)推进社交媒体 通过更新的网站和Facebook、Twitter和YouTube呈现；以及(7)收集有关 社区需求和ORE核心战略来自我们的社区咨询委员会、利益相关者焦点小组、 以及招聘和留任跟踪表。ORE活动将融入我们ADRC的主题--“血-- 基础生物标志物(BBB)在ADRD的诊断、临床前研究和预防中的作用。