Core E: Outreach & Recruitment Core

核心 E：外展

• 批准号: 9755293
• 负责人: DAVID W COON
• 金额: $ 13.34万
• 依托单位: ARIZONA STATE UNIVERSITY-TEMPE CAMPUS
• 依托单位国家: 美国
• 资助国家: 美国
• 起止时间: 至
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/9755293
• 关键词: Address; Age; Aging; Alaska Native; Alzheimer disease prevention; Alzheimer' s Disease; Alzheimer' s Disease Core Center; Alzheimer' s disease related dementia; American Indians; Area; Arizona; Award; Brain; Caregivers; Caring; Clinical; Collaborations; Communities; Complement; Continuing Education; Dementia; Development; Diagnosis; Down Syndrome; Education; Education and Outreach; Educational Materials; Enrollment; Ensure; Evaluation; Evaluation Research; Event; Family; Family Caregiver; Focus Groups; Funding; Future; Health; Health Professional; Health education; Hearing; Heart; Hispanics; Information Distribution; Institutes; Institution; International; Latino; Memory; Minority; Minority Enrollment; Native Americans; Participant; Patients; Persons; Play; Professional Education; Progress Reports; Race; Registries; Research; Research Personnel; Research Project Grants; Research Training; Resources; Risk Factors; Role; Scientist; Stroke; Training; Underserved Population; Universities; Voice; Washington; Work; biomedical referral center; brain health; caregiver interventions; cohort; education research; ethnic minority population; human old age (65+); improved; innovation; interest; neuropathology; normal aging; outreach; programs; racial and ethnic; racial minority; recruit; screening; symposium; tool

OUTREACH AND RECRUITMENT CORE – PROJECT SUMMARY/ABSTRACT The Outreach and Recruitment Core (ORC; formerly the Education and Information Transfer Core) plays a critical role in the Arizona ADCC, interacting closely with all other Cores, and developing and coordinating the ADCC's outreach, recruitment, and retention efforts. The proportion of persons in Arizona aged 65 and older with Alzheimer's disease (AD) is expected to grow 66.7% by 2025. This is the second largest increase in the nation (Alzheimer's Association, 2015), and these numbers rise substantially when AD is combined with other related dementias (ADRD), and people under the age of 65 are included. Hispanics/Latinos constitute Arizona's largest ethnic minority (30.3%), and American Indians and Alaska Natives alone (5.3%) represent the state's largest racial minority. The ORC reaches out to these underrepresented communities for research participation to help ensure a diverse cohort of participants in the Clinical Core, the Neuropathology Core (via enrollment in the Brain and Body Donation Program), multicenter research programs initiated by NIA, and related research projects. In addition, our ADCC and its ORC serve as a unique resource for Arizona, particularly in disseminating up-to-date information on ADRD treatment, care, and research opportunities and findings. We use multiple strategies to identify and implement best practices, such as improving our conferences by analyzing evaluations from research, professional, and lay participants who attend them; convening focus groups with diverse communities to hear their voices regarding ways to expand outreach; seeking input from underserved communities to develop culturally sensitive tools for healthcare professionals; and more deeply tapping into resources (e.g., the Alzheimer's Prevention Registry) to promote recruitment efforts and enhance liaison activities within Arizona, across the nation, and internationally. Our uniqueness also builds upon our own ORC initiatives across ADCC institutions and our partnerships with organizations such as the state-wide Alzheimer's Association and the local Area Agencies on Aging in the delivery and tailoring of award-winning family caregiver interventions to meet the needs of diverse communities (e.g., Spanish speakers, caregivers of those with Down Syndrome and dementia). For the upcoming funding cycle, the ORC will complement proven outreach, recruitment, and education activities (e.g., scientific and public conferences, memory screening events, brain health education programs tailored for underserved populations) with new, innovative initiatives to increase Latino and Native American enrollment (e.g., collaborations with both Mountain Park Health Center serving the Latino community and the University of Washington ADRC Strong Heart Stroke Study with Native Americans, Banner Alzheimer's Institute's Inaugural National Conference for Professionals on AD in Native Americans, and the expanding involvement of promotores networks).

外展和再培训核心-项目总结/摘要 外展和招聘核心（ORC;前身为教育和信息传输核心）发挥着 在亚利桑那州ADCC中发挥关键作用，与所有其他核心密切互动，并制定和协调 ADCC的推广，招聘和保留工作。亚利桑那州65岁及以上的人口比例 预计到2025年，阿尔茨海默病（AD）的发病率将增长66.7%。这是第二大增幅， 国家（阿尔茨海默氏症协会，2015），这些数字大幅上升时，AD与其他 相关性痴呆（ADRD）和65岁以下的人也包括在内。西班牙裔/拉丁裔构成 亚利桑那州最大的少数民族（30.3%），以及美国印第安人和阿拉斯加原住民（5.3%）代表了亚利桑那州的少数民族。 最大的少数民族。ORC接触这些代表性不足的社区进行研究 参与，以帮助确保临床核心，神经病理学核心（通过 脑和身体捐赠计划的注册），NIA发起的多中心研究计划，以及 相关研究项目。此外，我们的ADCC及其ORC是亚利桑那州的独特资源， 特别是在传播关于ADRD治疗、护理和研究机会的最新信息方面， 调查结果。我们使用多种策略来确定和实施最佳实践，例如改进我们的 通过分析来自研究，专业人士和参加会议的非专业参与者的评价来进行会议; 召集不同社区的重点小组，听取他们关于如何扩大外联的意见; 寻求服务不足社区的意见，为医疗保健专业人员开发文化敏感的工具; 并且更深入地挖掘资源（例如，老年痴呆症预防登记处），以促进招募 努力和加强亚利桑那州内的联络活动，在全国范围内，和国际。我们的独特性 还建立在我们自己的ORC跨ADCC机构的倡议和我们与组织的伙伴关系基础上 如全州范围内的阿尔茨海默氏症协会和当地的老龄化机构， 定制获奖的家庭照顾者干预措施，以满足不同社区的需求（例如， 讲西班牙语的人，唐氏综合症和痴呆症患者的照顾者）。在即将到来的融资周期中， ORC将补充经过验证的外联、招募和教育活动（例如，科学和公众 会议，记忆筛查活动，为服务不足的人群量身定制的大脑健康教育计划） 新的，创新的举措，以增加拉丁美洲和美洲原住民的入学率（例如，合作与 为拉丁裔社区服务的山地公园健康中心和华盛顿大学ADRC 美国原住民的强有力的心脏卒中研究，班纳阿尔茨海默氏症研究所的就职全国 美洲原住民广告专业人士会议，以及推广人的不断扩大参与 网络）。