FASTT telehealth behavioral support service for caregivers of children with developmental delay or disability

项目摘要 在美国，超过700万儿童因发育迟缓或残疾（DD）而获得支持。为照顾者 在这些孩子中，伴随着他们的孩子的状况的行为问题通常会造成高度的压力 导致心理和身体健康问题增加，并对儿童与儿童的互动和家庭产生影响 功能尽管存在基于证据的实践来帮助照顾者改善孩子的行为， 发展，获得这些服务往往受到严格的交付模式的限制，需要亲自访问， 这可能会延迟支持并进一步增加家庭负担。这些障碍不成比例地高， 有色人种家庭和资源匮乏的家庭：这种影响因减少 提供服务。该项目的总体目标是开发和实施远程保健系统， 提供快速反应、基于证据的行为支持的模式， 现有的家庭导航计划（未分割）服务于DD儿童的父母，以创建一个商业 这是一种适销对路的产品，将减少全国各地当地社区的服务障碍。基础上 Undivided与一个庞大的儿童家庭社区建立了系统和信任关系， DD，该项目将通过与护理人员的文本和电话支持服务合作来扩展这种支持 幼儿（FASTT）第一阶段的应用将使协作过程适应证据- 为12岁以下DD儿童家庭的具体需求提供基于行为的支持， 支持现有的家庭导航服务。这项工作的基本原理是， 通过广泛使用的文本和电话媒介提供个性化支持， 他们需要时间和地点来访问它，并及时接近他们需要的行为问题， 帮助，从而减少照顾者的压力，增加他们的能力感和积极的互动 带着他们的孩子目标1确定了向照顾者提供循证行为支持的可行性 残疾儿童使用按需短信。目标2衡量基于文本的 向照顾者提供支助服务。目标3评估基于文本的支持在多大程度上减少了照顾者的压力， 提高照顾者的能力感，并建立对孩子行为的更积极的看法， 他们和孩子的关系。该项目的积极影响是双重的。第一，整合 具有FASTT行为支持的一体化支持平台代表了解决以下问题的创新方法 DD儿童的照顾者在早期干预服务方面存在重大差距， 为这些家庭提供长期福利。第二，创建一个交付模式，使家庭导航服务 提供基于证据的远程健康行为支持作为其服务组合的一部分， 通过增加与家庭的互动，从而增加潜在的订阅收入来实现价值。

Project Abstract Over 7 million children in the U.S. receive support for a developmental delay or disability (DD). For caregivers of these children, behavior issues that often accompany their child's condition create high levels of stress leading to increased mental and physical health issues and impacts on caregiver-child interactions and family functioning. Although evidence-based practices exist to help caregivers with their child's behavioral development, access to these services is often limited by rigid delivery models requiring in-person visits that can delay support and further increase the burden on families. These barriers are disproportionately higher for families of color and for those in low resource situations: an effect that has been exacerbated by reductions in services due to COVID-19. The overall objective of this project is to develop and implement a telehealth delivery model of rapid-response, evidence-based behavioral support to be provided in conjunction with an existing family navigation program (Undivided) serving parents of children with DD to create a commercially marketable product that will reduce barriers to services in local communities across the country. Building on Undivided's established systems and trusted relationships with a large community of families of children with DD, this project will extend that support by partnering with a text and telephone support service for caregivers of young children (FASTT). This Phase 1 application will enable a collaborative process to adapt evidence- based behavioral support to the specific needs of families of children ages birth to 12 with DD and integrate that support within the existing family navigation service. The rationale for the work is that providing effective, personalized support through the widely accessible mediums of text and telephone will get caregivers the help they need when and where they have time to access it and close in time to the behavioral issues they need help with, thus reducing caregiver stress and increasing their sense of competence and positive interactions with their child. Aim 1 determines the feasibility of delivering evidence-based behavioral support to caregivers of children with disabilities using on-demand text messaging. Aim 2 gauges the acceptability of the text-based support service to caregivers. Aim 3 assesses the extent to which text-based support reduces caregiver stress, improves caregiver sense of competence, and builds more positive perceptions of their child's behavior and their relationship with their child. The positive impacts of the project are twofold. First, the integration of the Undivided support platform with FASTT behavioral support represents an innovative approach to addressing the critical gap in early intervention services for caregivers of children with DD with significant immediate and long-term benefits for those families. Second, creating a delivery model that enables family navigation services to provide evidence-based telehealth behavioral support as part of their service portfolio will create marketable value by increasing engagement with families and subsequently increasing potential subscription revenue.