FASTT telehealth behavioral support service for caregivers of children with developmental delay or disability

项目摘要 在美国，超过700万儿童因发育迟缓或残疾(DD)而获得支持。对于护理者来说 在这些孩子中，经常伴随着他们的病情的行为问题造成了高度的压力 导致心理和身体健康问题增加，并对照顾者与儿童的互动和家庭产生影响 功能正常。尽管存在基于证据的做法来帮助照顾者处理他们孩子的行为 在发展中，对这些服务的访问往往受到僵化的交付模式的限制，需要面对面访问， 可能会延误支持，并进一步增加家庭的负担。这些门槛对于 对于有色人种家庭和资源匮乏的家庭：这种影响因 服务归功于新冠肺炎。该项目的总体目标是开发和实施远程医疗 快速响应、基于证据的行为支持的交付模式将与 现有的家庭导航计划(未分割)服务于患有DD儿童的父母，以创建一个商业 适销对路的产品，将减少全国各地当地社区的服务壁垒。在基础上建设 UnDivide已建立的系统和与大型社区儿童家庭的信任关系 DD，该项目将通过与护理人员的短信和电话支持服务合作来扩展这一支持 幼儿(FASTT)。这个第一阶段的应用程序将使协作过程能够调整证据- 以行为支持为基础，满足出生至12岁患有发育迟缓和融合的儿童的家庭的特定需求 在现有的家庭导航服务中提供支持。这项工作的基本原理是提供有效的、 通过文本和电话等广泛使用的媒介提供个性化支持将为照顾者提供帮助 他们需要随时随地有时间访问它，并及时解决他们需要的行为问题 帮助照顾者，从而减轻照顾者的压力，增加他们的能力感和积极互动 带着他们的孩子。目标1确定向照顾者提供循证行为支持的可行性 使用按需短信服务的残疾儿童。目标2衡量基于文本的 为照顾者提供支持服务。AIM 3评估了基于文本的支持在多大程度上减轻了照顾者的压力 提高照顾者的能力，并建立对孩子行为的更积极的看法 他们和孩子的关系。该项目的积极影响是双重的。第一，整合 具有FASTT行为支持的统一支持平台代表了一种创新的解决方案 对患有严重即刻和严重营养不良的儿童照料者的早期干预服务的严重差距 为这些家庭提供长期福利。第二，创建支持家庭导航服务的交付模式 将提供基于证据的远程健康行为支持作为其服务组合的一部分，将创造有市场的 通过增加与家庭的接触并随后增加潜在的订阅收入来实现价值。

Project Abstract Over 7 million children in the U.S. receive support for a developmental delay or disability (DD). For caregivers of these children, behavior issues that often accompany their child's condition create high levels of stress leading to increased mental and physical health issues and impacts on caregiver-child interactions and family functioning. Although evidence-based practices exist to help caregivers with their child's behavioral development, access to these services is often limited by rigid delivery models requiring in-person visits that can delay support and further increase the burden on families. These barriers are disproportionately higher for families of color and for those in low resource situations: an effect that has been exacerbated by reductions in services due to COVID-19. The overall objective of this project is to develop and implement a telehealth delivery model of rapid-response, evidence-based behavioral support to be provided in conjunction with an existing family navigation program (Undivided) serving parents of children with DD to create a commercially marketable product that will reduce barriers to services in local communities across the country. Building on Undivided's established systems and trusted relationships with a large community of families of children with DD, this project will extend that support by partnering with a text and telephone support service for caregivers of young children (FASTT). This Phase 1 application will enable a collaborative process to adapt evidence- based behavioral support to the specific needs of families of children ages birth to 12 with DD and integrate that support within the existing family navigation service. The rationale for the work is that providing effective, personalized support through the widely accessible mediums of text and telephone will get caregivers the help they need when and where they have time to access it and close in time to the behavioral issues they need help with, thus reducing caregiver stress and increasing their sense of competence and positive interactions with their child. Aim 1 determines the feasibility of delivering evidence-based behavioral support to caregivers of children with disabilities using on-demand text messaging. Aim 2 gauges the acceptability of the text-based support service to caregivers. Aim 3 assesses the extent to which text-based support reduces caregiver stress, improves caregiver sense of competence, and builds more positive perceptions of their child's behavior and their relationship with their child. The positive impacts of the project are twofold. First, the integration of the Undivided support platform with FASTT behavioral support represents an innovative approach to addressing the critical gap in early intervention services for caregivers of children with DD with significant immediate and long-term benefits for those families. Second, creating a delivery model that enables family navigation services to provide evidence-based telehealth behavioral support as part of their service portfolio will create marketable value by increasing engagement with families and subsequently increasing potential subscription revenue.