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The Impact of COVID-19 on End-of-Life Care for Vulnerable Populations

COVID-19 对弱势群体临终关怀的影响

基本信息

批准号：
10598634
负责人：
MELISSA Diane ALDRIDGE
金额：
$ 49.04万
依托单位：
ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI
依托单位国家：
美国
项目类别：
财政年份：
2021
资助国家：
美国
起止时间：
2021-07-12 至 2025-03-31
项目状态：
未结题

来源：
https://reporter.nih.gov/project-details/10598634
关键词：
Address Admission activity Area Businesses COVID-19 COVID-19 impact COVID-19 pandemic COVID-19 stress Caregivers Caring Cessation of life Clinical Communities Complex Consult Containment Contracts Data Decision Making Development Dyspnea Education Elderly Emergency Situation Enrollment Ensure Ethnic Origin Failure Family Family Caregiver Fright Future Geriatrics Goals Health Personnel Health Professional Health Services Accessibility Health system Healthcare Height Home Home visitation Hospice Care Hospitals Human Resources Individual Infection Control Interview Knowledge Leadership Link Medical Methods Modeling New York City Oxygen Pain Pain management Palliative Medicine Patient Care Patients Persons Play Police Policies Preparation Process Provider Public Health Quarantine Race Readiness Research Role SARS-CoV-2 transmission Schools Site Social Distance Surveys Symptoms System Telephone Time United States Visit Vulnerable Populations barrier to care care coordination care seeking death anxiety emergency preparedness end of life end of life care ethnic minority population experience future pandemic health care disparity hospice environment implementation facilitators improved innovation insight older patient pandemic disease personal protective equipment programs prospective psychologic racial minority population response socioeconomic disparity symptom management telehealth televisit tool

项目摘要

Abstract The Coronavirus Disease 2019 (COVID-19) pandemic has thus far caused 100,000 deaths in the U.S. and has disproportionately impacted vulnerable subpopulations, including those with underlying serious illness and those from racial and ethnic minority groups. As of June 2020, New York City (NYC) has seen 16,000 deaths and remains the global epicenter of the pandemic. Although public health containment and mitigation policies including social distancing, infection control, and self-quarantine are considered to have reduced transmission of COVID-19, they also brought about significant disruption in the way individuals sought and accessed care, particularly those with serious illness. Hospice organizations have played a key role in supporting seriously ill patients in their homes throughout the pandemic by ensuring effective symptom management (e.g., pain and dyspnea); psychological support for patients, caregivers, and healthcare professionals; and support for complex decision-making. Yet there has been scant evidence on hospice practices during COVID-19 and less guidance for hospice organizations throughout the U.S. to improve preparedness. Indeed, at the height of the pandemic, concomitant with the surge in demand for hospice care in NYC, we experienced a shortfall in hospice delivery, exposing latent vulnerabilities in the capacity of the existing system to respond to a crisis that demanded a coordinated, synchronized approach. In this innovative mixed methods study, we seek to gain an in-depth understanding of the challenges of delivering end-of-life care in NYC during the COVID-19 pandemic triangulating the experiences of patients, caregivers, and healthcare providers. Specifically, we will link clinical notes of patient encounters across Mount Sinai clinical programs and community hospice to create longitudinal trajectories of patients’ end-of-life care during the pandemic to elucidate barriers in access to hospice care and care coordination deficiencies experienced by patients and families during this time. We will augment this information with insights from in-depth interviews of key stakeholders including frontline clinical providers, program leadership, staff, and caregivers. Our interviews with interdisciplinary hospice personnel, will identify new policies and practices hospices enacted in response to COVID-19, barriers and facilitators to implementation, perceived impact, and sustainability. Finally, through a national survey of hospices, we will determine how implementation of policy and practice changes varied across the U.S. The proposed project is innovative for its rapid, mixed methods approach to studying a highly vulnerable population during a pandemic to inform current and future care planning and policy, using analyses of retrospective and prospective data in combination with qualitative interviewing. Results will contribute new scientific knowledge as to how hospices adapted care processes to improve patient and family end-of-life care during an emergency, inform the development of educational tools to promote emergency preparedness, and dissemination of guidance for hospices regarding strategies and adaptations to improve end-of-life care.

摘要