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中文摘要
翻译
摘要 技术和数据管理(TDM)核心提供两项基本功能, EAS方案项目的成功:(1)数据的管理和整合;(2)提供 为数据操作提供咨询和技术支持。TDM核心的目标如下:目标1.至 实施和监督中央数据存储库和管道,以促进无缝交换、集成 以及EAS核心和项目之间的数据管理。目标2.提供咨询和技术支持 支持促进从不同数据源(例如,诊所、自我报告、 可穿戴设备、传感器、生物标志物),并执行运行和维护中央 数据基础设施和管理系统。目标3.评分和评估基本心理测量学特性 (例如,临床测量的条目和分数分布、相关性、可靠性)、传统心理社会 跨项目进行规模和动态评估,以便为以下项目提供整洁且可供分析的数据集 统计核心中的进一步验证和分析。目标4.支持和便利数据传播和 联盟与科学界和公众的合作。符合美国国家卫生研究院的数据政策 管理和共享(非-OD-21-013),并遵循 传播委员会,TDM核心将支持数据、协议、测量和测试的共享 程序和相关数据字典与更广泛的研究社区和公众,通过存放 使用各种已建立的存储库和平台的数据和元数据。TDM核心遵循博览会 科学数据管理原则(可查找、可访问、可互操作和可重复使用),并将制定 并运行中央数据管理和技术支持系统,以满足科学目标和 EAS P01的研究需求,同时也促进了与更广泛的 研究团体和公众。
英文摘要
ABSTRACT The Technology and Data Management (TDM) Core serves two primary functions that are essential for the success of the EAS program project: (1) the management and integration of data, and (2) providing consultative and technical support for data operations. The aims of the TDM Core are as follow: Aim 1. To implement and oversee a central data repository and pipeline to facilitate the seamless exchange, integration and management of data among EAS Cores and Projects. Aim 2. To provide consultative and technical support to facilitate data collection and integration from different data sources (e.g., clinic, self-reports, wearable devices, sensors, biomarkers), and execute an operation plan for running and maintaining the central data infrastructure and management system. Aim 3. To score and evaluate basic psychometric properties (e.g., items and scores distributions, correlations, reliability) of clinical measures, conventional psychosocial scales and ambulatory assessments across Projects in order to provide tidy and analysis-ready datasets for further validation and analyses in the Statistical Core. Aim 4. To support and facilitate data dissemination and consortium collaborations with the scientific community and the public. In line with NIH Policy for data management and sharing (NOT-OD-21-013), and following the governance procedures distributed by the Dissemination Committee, the TDM Core will support the sharing of data, protocols, measurement and testing procedures, and relevant data dictionaries with the broader research community and lay public, by depositing data and metadata using various established repositories and platforms. The TDM Core follows the FAIR principles for scientific data management (Findable, Accessible, Interoperable, and Reusable), and will develop and operate a central data management and technical support system that will meet the scientific aims and research needs of the EAS P01, while also facilitating collaborations and dissemination with the broader research community and public.
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Creation of the Einstein Aging Study Data Warehouse
Technology Core
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