Emergency preparedness and support of caregivers of persons with dementia: The Disaster PrepWise study

痴呆症患者护理人员的应急准备和支持：Disaster PrepWise 研究

• 批准号: 10624468
• 负责人: Sato Ashida
• 金额: $ 60.52万
• 依托单位: UNIVERSITY OF IOWA
• 依托单位国家: 美国
• 财政年份: 2022
• 资助国家: 美国
• 起止时间: 2022-06-01 至 2027-05-31
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10624468
• 关键词: Address; Aging; Alzheimer' s disease related dementia; Area; Behavior; COVID-19 pandemic; Caregiver support; Caregivers; Caring; Communities; Control Groups; Data; Dementia; Dementia caregivers; Disasters; Distress; Elderly; Elements; Emergency Care; Emergency Situation; Ensure; Family; Feeling; Floods; Foundations; Fright; Future; Geography; Goals; Health; Health Personnel; Home; Household; Individual; Infrastructure; Intervention; Iowa; Knowledge; Life; Mediating; Medical; Mental Health; Modeling; Modernization; Outcome; Participant; Patients; Perception; Personal Satisfaction; Persons; Pharmaceutical Preparations; Pilot Projects; Practical Robust Implementation and Sustainability Model; Printing; Process; Public Health; Randomized; Randomized, Controlled Trials; Reach, Effectiveness, Adoption, Implementation, and Maintenance; Readiness; Reporting; Research; Resources; Rural; SARS-CoV-2 infection; Security; Self Efficacy; Social Network; Social isolation; Social support; Stress; Surveys; System; Testing; Tornadoes; Training; United States National Institutes of Health; Vulnerable Populations; Work; arm; care giving burden; caregiving; coping; efficacy evaluation; efficacy testing; emergency preparedness; experience; extreme weather; family support; group intervention; hazard; hybrid type 2 design; implementation evaluation; implementation strategy; improved; informal support; innovation; intervention participants; intervention program; medical supply; pandemic disease; physical conditioning; pilot test; pragmatic trial; programs; promote resilience; resilience; response; rural area; rural setting; service providers; skills; social stigma; stress reduction; support network; usability; volunteer

Individuals with Alzheimer’s disease or related dementias (ADRD) and their families are especially vulnerable during a disaster. Disasters it limit caregivers’ ability to continue with care due to disaster related stress and reduced access to resources and support. The COVID-19 pandemic showed the extreme vulnerability of persons with ADRD and their caregivers as they struggled to access support and resources due to fear associated with COVID-19 infection; such impact was exacerbated in rural areas where caregivers are geographically isolated and disaster management resources are scarce. With the number of federally declared disasters increased dramatically over the past 50 years, active public health efforts are needed to support caregivers develop emergency caregiving plans usable in disasters such pandemics and extreme weather emergencies. The long-term goal of this project is to enhance emergency preparedness and support networks of caregivers of individuals with ADRD to increase their resilience and minimize distress by implementing an intervention program, Disaster PrepWise (DPW). In the DPW program, a trained Medical Reserve Corp (MRC) volunteer will provide step-by-step guidance to caregivers to jointly develop emergency preparedness plans and personal support networks. The objectives for this proposed study are to 1) test the impact of DPW on caregiver outcomes (i.e., resilience, stress) and perceptions that may mediate the association between DPW and outcomes (caregiver self-efficacy, preparedness, social support); and 2) evaluate implementation strategies in a real-world setting to optimize future dissemination. We will conduct a randomized control trial of 200 caregivers of persons with ADRD involving two arms: DPW intervention group and information-only control group (print information on disaster preparedness). Assessments will occur before randomization (baseline), and 3- and 6-month after the baseline. This study is innovative in its use of highly personalized disaster preparedness program with built-in assistance to support caregivers; the support will be provided through an existing national-level public health infrastructure (MRC) that has a great potential to reach older adults and caregivers in rural areas. The knowledge and data obtained through this study will lay the foundation for a future larger-scale multi-state pragmatic trial to assess dissemination potentials.

阿尔茨海默氏病或​​相关痴呆症（ADRD）及其家人在灾难中特别容易受到伤害。灾难限制了护理人员由于与灾难相关的压力以及减少获得资源和支持的机会而继续护理的能力。 COVID-19的大流行表明，由于与Covid-19的感染相关的恐惧，ADRD及其护理人员及其护理人员的极端脆弱性；这种影响在地理位置隔离且灾难管理资源很少的粗糙地区加剧了这种影响。在过去的50年中，随着联邦宣布的灾难的数量急剧增加，需要积极的公共卫生工作来支持护理人员开发紧急护理计划，可用于灾难和极端天气紧急情况。该项目的长期目标是增强ADRD个人护理人员的紧急准备和支持网络，以通过实施干预计划（灾难准备（DPW））来提高其韧性并最大程度地减少困扰。在DPW计划中，训练有素的医疗储备公司（MRC）志愿者将为护理人员提供逐步指导，以共同制定应急准备计划和个人支持网络。这项拟议的研究的目标是1）测试DPW对护理人员结果的影响（即韧性，压力）和可能介导DPW与结果之间的关联（护理人员的自我效能，准备，社会支持）之间的关联的看法； 2）在现实环境中评估实施策略，以优化未来的传播。我们将对200名涉及两个武器的人的照顾者进行随机控制试验：DPW干预小组和仅信息对照组（有关灾难准备的印刷信息）。评估将在随机化之前（基线），基线后3个月和6个月进行。这项研究在使用高度个性化的灾难准备计划的情况下具有创新性，并在支持护理人员的情况下进行了内置帮助；该支持将通过现有的国家级公共卫生基础设施（MRC）提供，该基础设施（MRC）具有巨大的潜力，可以在粗糙地区吸引老年人和看护人。通过这项研究获得的知识和数据将为未来的大规模多州务实试验奠定基础，以评估传播潜力。