Mid-Atlantic Pediatric Long COVID Network:Implementing patient-centered and multi-disciplinary practices to improve pediatric long COVID

中大西洋儿童长期新冠肺炎网络：实施以患者为中心的多学科实践，以改善儿童长期新冠肺炎

• 批准号: 10865202
• 负责人: Laura A Malone
• 金额: $ 94.38万
• 依托单位: HUGO W. MOSER RES INST KENNEDY KRIEGER
• 依托单位国家: 美国
• 财政年份: 2023
• 资助国家: 美国
• 起止时间: 2023-09-30 至 2028-09-29
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10865202
• 关键词: Mid; Atlantic; Pediatric; Long; COVID

PROJECT SUMMARY Long COVID can affect many aspects of a child’s physical and mental health. Between 5 and 25% of children with SARS-CoV-2 infection go on to develop long COVID. Persistent health disparities and socioeconomic factors have put certain vulnerable populations at higher risk of infection, morbidity, and mortality from SARS- CoV-2 infection. In pediatrics, children with physical, intellectual, or developmental disabilities (IDDs), children from resource-limited areas (e.g., rural), and children that are uninsured or underinsured are particularly vulnerable populations that have limited access to specialized pediatric clinics for children with COVID-19 sequelae. Even with the successes of the Pediatric Post-COVID-19 Rehabilitation Clinic at the Kennedy Krieger Institute to garner international recognition for its integrated and person-centered multidisciplinary clinic model and substantial research, awareness, and advocacy efforts of the clinical team, there remain critical gaps in long COVID care for children. These gaps include limited integrative healthcare treatments, resources for navigating schooling, and access to timely long COVID care in the community and medical home. There are two arms to this proposal to address these gaps in multi-faceted and independent ways. Arm 1 will involve using an innovative integrative health model of care to expand and strengthen the services of the KKI Pediatric Post-COVID-19 Rehabilitation Clinic. This model can help support children with long lasting persistent or fluctuating symptoms, acknowledging the critical roles schools serve as an important partner in the cultural context of health and in the recovery process of pediatric patients. Arm 2 will involve the development of a novel Pediatric Long COVID Telementoring ECHO (Extension for Community Healthcare Outcomes) Project. The highly experienced clinical team will create provider education on long COVID in typically developing children (TDC) and children with IDD to educate and mentor multidisciplinary community providers through an 8-10 course series that will be adapted annually. In partnership with the Agency for Healthcare Research and Quality, this proposal will achieve the following program objectives: (1) expand and strengthen the current clinic to utilize an innovative integrative healthcare model, (2) provide services to more children with long COVID, (3) expand services offered, (4) strengthen care coordination, (5) implement and share best practices for long COVID management, (6) support the primary care community in long COVID education and management through the Pediatric Long COVID ECHO project, (7) evaluate project success through mixed methods evaluations, and (8) disseminate project findings through community partners. In the end, with this proposal a network of community providers across Maryland and the Mid-Atlantic region will be established that can treat pediatric long COVID early and effectively, providing greater access to care in vulnerable pediatric populations.

项目概要 长期新冠病毒会影响孩子身心健康的许多方面。 5% 至 25% 的儿童 感染 SARS-CoV-2 的人会继续发展为长期的新冠病毒 (COVID)。持续存在的健康差异和社会经济差异 一些因素使某些弱势群体面临 SARS 感染、发病和死亡的更高风险 CoV-2 感染。在儿科领域，患有身体、智力或发育障碍 (IDD) 的儿童、 来自资源有限地区（例如农村）的儿童，以及没有保险或保险不足的儿童尤其容易受到影响 无法获得针对感染 COVID-19 的儿童的专门儿科诊所的弱势群体 后遗症。尽管肯尼迪克里格医院的儿科 COVID-19 后康复诊所取得了成功 研究所以其以人为本的综合多学科临床模式获得国际认可 以及临床团队的大量研究、认识和宣传工作，长期来看仍然存在重大差距 新冠肺炎儿童护理。这些差距包括有限的综合医疗保健治疗、导航资源 学校教育，以及在社区和医疗之家获得及时的长期新冠肺炎护理。 该提案有两个方面，以多方面和独立的方式解决这些差距。第 1 臂将 涉及使用创新的综合健康护理模式来扩大和加强 KKI 的服务 COVID-19 后儿科康复诊所。这个模型可以帮助支持孩子们持久的坚持 或波动的症状，承认学校作为文化中重要合作伙伴的关键作用 儿科患者的健康状况和康复过程。 Arm 2 将涉及一部小说的开发 儿科长期新冠肺炎远程指导 ECHO（社区医疗保健成果扩展）项目。这 经验丰富的临床团队将为典型发育儿童提供有关长期新冠肺炎的教育 (TDC) 和 IDD 儿童通过 8-10 个项目来教育和指导多学科社区提供者 每年都会调整的课程系列。 与医疗保健研究和质量局合作，该提案将实现以下目标 计划目标：(1) 扩大和加强现有诊所，利用创新的综合医疗保健 模式，(2) 为更多患有长期新冠肺炎的儿童提供服务，(3) 扩大提供的服务，(4) 加强护理 协调，(5) 实施和分享长期新冠肺炎管理的最佳实践，(6) 支持初级保健 通过儿科长期新冠病毒 ECHO 项目对社区进行长期新冠病毒教育和管理，(7) 通过混合方法评估来评估项目的成功，以及 (8) 通过以下方式传播项目结果： 社区合作伙伴。最后，通过这项提案，马里兰州和美国各地的社区提供者网络得以建立。 将建立大西洋中部地区，可以及早有效地治疗儿科长期新冠肺炎，提供更大的帮助 弱势儿科人群获得护理的机会。