Mid-Atlantic Pediatric Long COVID Network:Implementing patient-centered and multi-disciplinary practices to improve pediatric long COVID

项目总结 长期的COVID可能会影响儿童身心健康的许多方面。5%到25%的儿童 随着SARS-CoV-2的感染，继续发展为长期冠状病毒感染。持续的健康差距和社会经济 这些因素使某些易受感染的人群面临更高的感染、发病率和死亡率。 冠状病毒2型感染。在儿科，有身体、智力或发育障碍(IDDS)的儿童，儿童 来自资源有限地区(如农村)的儿童，特别是没有保险或保险不足的儿童 新冠肺炎患儿就诊机会有限的弱势群体 后遗症。即使肯尼迪·克里格的儿科新冠肺炎后康复诊所取得了成功 该研究所以其一体化和以人为中心的多学科临床模式获得国际认可 以及临床团队的大量研究、认识和倡导努力，在Long COVID对儿童的关怀。这些差距包括有限的综合医疗保健治疗、导航资源 就学，以及在社区和医疗院及时获得长期COVID护理。 这项提议有两个方面，以多方面和独立的方式解决这些差距。手臂1将 涉及使用创新的综合保健模式来扩大和加强KKI的服务 儿科新冠肺炎后康复诊所。这种模式可以帮助支持长期持久的儿童 或波动的症状，承认学校作为文化中的重要合作伙伴所扮演的关键角色 在儿科患者的健康和康复过程中。《手臂2》将参与一部小说的开发 儿科Long COVID Telementing ECHO(社区卫生保健成果推广)项目。这个 经验丰富的临床团队将为典型发育中的儿童提供有关长期COVID的培训 (贸发局)和患有IDD的儿童通过8-10 将每年改编的课程系列。 与医疗保健研究和质量机构合作，这项提案将实现以下目标 计划目标：(1)扩大和加强现有诊所，以利用创新的综合医疗保健 模式，(2)为更多的长期COVID儿童提供服务，(3)扩大服务范围，(4)加强护理 协调，(5)实施和分享长期COVID管理的最佳做法，(6)支持初级保健 社区通过儿科Long CoVID ECHO项目进行Long CoVID教育和管理(7) 通过混合方法评估项目成功，以及(8)通过 社区合作伙伴。最终，有了这项提议，马里兰州和 将建立中大西洋地区，可以早期有效地治疗儿童长期COVID，提供更大的 在脆弱的儿科人群中获得护理。

PROJECT SUMMARY Long COVID can affect many aspects of a child’s physical and mental health. Between 5 and 25% of children with SARS-CoV-2 infection go on to develop long COVID. Persistent health disparities and socioeconomic factors have put certain vulnerable populations at higher risk of infection, morbidity, and mortality from SARS- CoV-2 infection. In pediatrics, children with physical, intellectual, or developmental disabilities (IDDs), children from resource-limited areas (e.g., rural), and children that are uninsured or underinsured are particularly vulnerable populations that have limited access to specialized pediatric clinics for children with COVID-19 sequelae. Even with the successes of the Pediatric Post-COVID-19 Rehabilitation Clinic at the Kennedy Krieger Institute to garner international recognition for its integrated and person-centered multidisciplinary clinic model and substantial research, awareness, and advocacy efforts of the clinical team, there remain critical gaps in long COVID care for children. These gaps include limited integrative healthcare treatments, resources for navigating schooling, and access to timely long COVID care in the community and medical home. There are two arms to this proposal to address these gaps in multi-faceted and independent ways. Arm 1 will involve using an innovative integrative health model of care to expand and strengthen the services of the KKI Pediatric Post-COVID-19 Rehabilitation Clinic. This model can help support children with long lasting persistent or fluctuating symptoms, acknowledging the critical roles schools serve as an important partner in the cultural context of health and in the recovery process of pediatric patients. Arm 2 will involve the development of a novel Pediatric Long COVID Telementoring ECHO (Extension for Community Healthcare Outcomes) Project. The highly experienced clinical team will create provider education on long COVID in typically developing children (TDC) and children with IDD to educate and mentor multidisciplinary community providers through an 8-10 course series that will be adapted annually. In partnership with the Agency for Healthcare Research and Quality, this proposal will achieve the following program objectives: (1) expand and strengthen the current clinic to utilize an innovative integrative healthcare model, (2) provide services to more children with long COVID, (3) expand services offered, (4) strengthen care coordination, (5) implement and share best practices for long COVID management, (6) support the primary care community in long COVID education and management through the Pediatric Long COVID ECHO project, (7) evaluate project success through mixed methods evaluations, and (8) disseminate project findings through community partners. In the end, with this proposal a network of community providers across Maryland and the Mid-Atlantic region will be established that can treat pediatric long COVID early and effectively, providing greater access to care in vulnerable pediatric populations.