Managing Health Information in Your Life

管理您生活中的健康信息

• 批准号: 7901797
• 负责人: WANDA PRATT
• 金额: $ 20.76万
• 依托单位: UNIVERSITY OF WASHINGTON
• 依托单位国家: 美国
• 财政年份: 2009
• 资助国家: 美国
• 起止时间: 2009-09-15 至 2011-09-14
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7901797
• 关键词: Achievement; Activities of Daily Living; Acute; Affect; Behavior; Cancer Patient; Caring; Chronic; Clinic; Cognitive; Data; Effectiveness; Environment; Evaluation; Event; Family; Friends; Funding; Grant; Health; Healthcare; Home environment; Improve Access; Information Management; Information Technology; Insurance Benefits; Knowledge; Laboratories; Learning; Life; Medical; Methodology; Modeling; Nature; Patients; Play; Research; Research Design; Research Personnel; Role; Techniques; Technology; Terminology; Time; United States National Library of Medicine; Work; base; cancer care; design; field study; insight; malignant breast neoplasm; meetings; new technology; patient home care; prototype; success; tool

As cliniciansare forced to decrease time spent with patients and the specialization and fragmentation of care increases, patients are required to play an increasingly prominent role in their health care. Yet, few information tools exist to support patients in this active role. In particular, patients often must coordinate their health care across multiple clinicians, learn new health terminology, make treatment choices, manage their home care, track insurance benefits, etc. At the same time, patients are trying to maintain their normal professional and personal lives, but the intense information management demands placed on them can interfere with all those activities. Little is known about this information management work of patients, but such knowledge must be a first step towards developing the tools that patients need to support their active role. The long-term objective of this research is both to understand patients' information management work and to develop new technology that will support that work. Specifically, we propose to (1) develop a model of patients' personal health information management work, (2) develop new technology that supports patients in that work, and (3) evaluate the effectiveness of our new technology in helping patients manage their personal health information, participate in their own health care, and maintain their daily life activities. Our study design is distinctive because we includepatients in all facets of our research, including field studies of patients' information work in the home and the clinic, collaborative technology design of new information technology to support patients' work, and evaluation of the technology in the home.

由于临床医生被迫减少与患者相处的时间以及护理的专业化和分散化 随着医疗费用的增加，患者需要在医疗保健中发挥越来越重要的作用。然而，很少有 信息工具的存在可以支持患者发挥这一积极作用。特别是，患者通常必须协调他们的 跨多个临床医生的医疗保健，学习新的健康术语，做出治疗选择，管理他们的 家庭护理、追踪保险福利等。同时，患者也在努力维持正常的生活 职业和个人生活，但对他们的强烈信息管理要求可能会 干扰所有这些活动。人们对患者的这项信息管理工作知之甚少，但是 这些知识必须是开发患者支持其积极活动所需工具的第一步。 角色。本研究的长期目标既是了解患者的信息管理工作 并开发支持这项工作的新技术。具体来说，我们建议（1）开发一个模型 患者个人健康信息管理工作，（2）开发支持患者个人健康信息管理的新技术 有效，(3) 评估我们的新技术在帮助患者管理个人信息方面的有效性 健康信息，参与自己的健康护理，维持日常生活活动。我们的研究 设计的独特之处在于我们将患者纳入研究的各个方面，包括实地研究 家庭和诊所的患者信息工作、新信息的协作技术设计 支持患者工作的技术，以及在家中评估技术。