Managing Health Information in Your Life
管理您生活中的健康信息
基本信息
- 批准号:7919076
- 负责人:
- 金额:$ 5.45万
- 依托单位:
- 依托单位国家:美国
- 项目类别:
- 财政年份:2009
- 资助国家:美国
- 起止时间:2009-09-30 至 2011-09-29
- 项目状态:已结题
- 来源:
- 关键词:AchievementActivities of Daily LivingAcuteAffectBehaviorCancer PatientCaringChronicClinicCognitiveDataEffectivenessEnvironmentEvaluationEventFamilyFriendsFundingGrantHealthHealthcareHome environmentImprove AccessInformation ManagementInformation TechnologyInsurance BenefitsKnowledgeLaboratoriesLearningLifeMedicalMethodologyModelingNaturePatientsPlayResearchResearch DesignResearch PersonnelRoleTechniquesTechnologyTerminologyTimeUnited States National Library of MedicineWorkbasecancer caredesignfield studyinsightmalignant breast neoplasmmeetingsnew technologypatient home careprototypesuccesstool
项目摘要
As cliniciansare forced to decrease time spent with patients and the specialization and fragmentation of care
increases, patients are required to play an increasingly prominent role in their health care. Yet, few
information tools exist to support patients in this active role. In particular, patients often must coordinate their
health care across multiple clinicians, learn new health terminology, make treatment choices, manage their
home care, track insurance benefits, etc. At the same time, patients are trying to maintain their normal
professional and personal lives, but the intense information management demands placed on them can
interfere with all those activities. Little is known about this information management work of patients, but
such knowledge must be a first step towards developing the tools that patients need to support their active
role. The long-term objective of this research is both to understand patients' information management work
and to develop new technology that will support that work. Specifically, we propose to (1) develop a model of
patients' personal health information management work, (2) develop new technology that supports patients in
that work, and (3) evaluate the effectiveness of our new technology in helping patients manage their personal
health information, participate in their own health care, and maintain their daily life activities. Our study
design is distinctive because we includepatients in all facets of our research, including field studies of
patients' information work in the home and the clinic, collaborative technology design of new information
technology to support patients' work, and evaluation of the technology in the home.
由于临床医生被迫减少与患者在一起的时间,
随着患者数量的增加,患者需要在医疗保健中发挥越来越重要的作用。然而,
现有的信息工具可支持患者发挥这一积极作用。特别是,患者通常必须协调他们的
跨多个临床医生的医疗保健,学习新的健康术语,做出治疗选择,管理他们的
家庭护理,跟踪保险福利等,同时,患者正在努力保持他们的正常
职业和个人生活,但对他们的强烈信息管理要求,
干扰所有这些活动。对患者的这种信息管理工作知之甚少,但
这些知识必须是开发患者所需工具的第一步,
作用本研究的长期目标是了解病人的信息管理工作
并开发新技术来支持这项工作。具体而言,我们建议(1)建立一个模型,
病人的个人健康信息管理工作,(2)开发新的技术,支持病人在
(3)评估我们的新技术在帮助患者管理个人健康方面的有效性。
健康信息,参与自己的保健,维持自己的日常生活活动。我们的研究
设计是独特的,因为我们包括患者在我们的研究的各个方面,包括实地研究,
病人的信息工作在家庭和诊所,协同技术设计的新信息
支持患者工作的技术以及家庭技术评估。
项目成果
期刊论文数量(8)
专著数量(0)
科研奖励数量(0)
会议论文数量(0)
专利数量(0)
Healthcare in the pocket: mapping the space of mobile-phone health interventions.
- DOI:10.1016/j.jbi.2011.08.017
- 发表时间:2012-02
- 期刊:
- 影响因子:4.5
- 作者:Klasnja, Predrag;Pratt, Wanda
- 通讯作者:Pratt, Wanda
Catalyzing Social Support for Breast Cancer Patients.
- DOI:10.1145/1753326.1753353
- 发表时间:2010-04
- 期刊:
- 影响因子:0
- 作者:Skeels MM;Unruh KT;Powell C;Pratt W
- 通讯作者:Pratt W
Blowing in the Wind: Unanchored Patient Information Work during Cancer Care.
- DOI:10.1145/1753326.1753355
- 发表时间:2010-04
- 期刊:
- 影响因子:0
- 作者:Klasnja P;Hartzler AC;Unruh KT;Pratt W
- 通讯作者:Pratt W
Locating Patient Expertise in Everyday Life.
在日常生活中找到患者的专业知识。
- DOI:10.1145/1531674.1531718
- 发表时间:2009
- 期刊:
- 影响因子:0
- 作者:Civan,Andrea;McDonald,DavidW;Unruh,KentonT;Pratt,Wanda
- 通讯作者:Pratt,Wanda
The Invisible Work of Being a Patient and Implications for Health Care: "[the doctor is] my business partner in the most important business in my life, staying alive"
作为病人的无形工作及其对医疗保健的影响:“[医生是]我一生中最重要的事业的商业伙伴,即保持生命”
- DOI:10.1111/j.1559-8918.2008.tb00093.x
- 发表时间:2008
- 期刊:
- 影响因子:0
- 作者:Unruh,KentonT;Pratt,Wanda
- 通讯作者:Pratt,Wanda
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{{ truncateString('WANDA PRATT', 18)}}的其他基金
Patients as safeguards: Understanding the information needs of hospitalized patie
患者作为保障:了解住院患者的信息需求
- 批准号:
8672281 - 财政年份:2014
- 资助金额:
$ 5.45万 - 项目类别:
Patients as safeguards: Understanding the information needs of hospitalized patie
患者作为保障:了解住院患者的信息需求
- 批准号:
9100660 - 财政年份:2014
- 资助金额:
$ 5.45万 - 项目类别:
Patients as safeguards: Understanding the information needs of hospitalized patie
患者作为保障:了解住院患者的信息需求
- 批准号:
9302304 - 财政年份:2014
- 资助金额:
$ 5.45万 - 项目类别:
Workshop on Interactive Systems in Healthcare (WISH) 2012
医疗保健交互式系统研讨会 (WISH) 2012
- 批准号:
8461455 - 财政年份:2012
- 资助金额:
$ 5.45万 - 项目类别:
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