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National Research Roster of Huntington Disease Patients and Families

National Research Roster of Huntington Disease Patients and Families
亨廷顿病患者和家庭国家研究名册
批准号：
7963355
负责人：
TATIANA M. FOROUD
金额：
$78.08万
依托单位：
TRUSTEES OF INDIANA UNIVERSITY
依托单位国家：
美国
项目类别：
财政年份：
2003
资助国家：
美国
项目状态：
已结题
起止时间：
2003-09-30 至 2011-09-29
来源：
https://reporter.nih.gov/project-details/7963355
关键词：
NationalResearchRosterHuntingtonDisease

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中文摘要
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英文摘要
The specific objective of this contract is for the continued maintenance and expansion of the National Research Roster of patients and families affected by Huntington Disease. The Contractor shall collect data on persons with Huntington Disease, persons at risk of the Disease, and people who are related to those with or at risk of the Disease. The Roster will be used to contact potential participants for research studies, to locate individuals of particular research interest, and to provide statistical and demographic data on Huntington Disease. The Roster of patients and families affected by Huntington Disease is expected to continue to be a valuable resource for future research.
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