Development of a Statewide Master Person Index

全州范围内的大师人物指数的开发

• 批准号: 7940821
• 负责人: Julio Cesar Facelli
• 金额: $ 150.07万
• 依托单位: UNIVERSITY OF UTAH
• 依托单位国家: 美国
• 财政年份: 2009
• 资助国家: 美国
• 起止时间: 2009-09-30 至 2013-09-29
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7940821
• 关键词: Address; Adopted; Agreement; Architecture; Award; Clinical; Confidentiality; Data; Data Sources; Databases; Development; Ensure; Environment; Goals; Guidelines; Health; Health Personnel; Health Services Research; Healthcare; Individual; Information Networks; Institutes; Institution; Link; Maps; Medical; Methodology; Methods; Modeling; Outcome; Patient Care; Patients; Persons; Policies; Population; Population Database; Provider; Public Health; Qualifying; Recording of previous events; Records; Research; Research Infrastructure; Research Personnel; Resources; Security; Services; System; Technology; Testing; Transcend; Translational Research; United States National Institutes of Health; Universities; Update; Utah; Work; cohort; data modeling; data sharing; design; experience; health care service organization; health record; indexing; interest; meetings; open source; operation; programs; public health relevance; repository

DESCRIPTION (provided by applicant): Our goal is to create a Master Person Index (MPI) that unambiguously identifies each individual who receives health care in the State of Utah. This index will enable qualified clinical and translational research to be performed in an environment with unique attributes: (1) over 80% of all patient care in the State is supplied by three providers, and these encounters (ambulatory and in-patient) are recorded electronically; and (2) extensive experience unmatched in other states of creating a research infrastructure (the Utah Population Database) that provides a demographic and familial description for much of the population of Utah and that is linked to corresponding medical data. We propose to create the technology and policies for a statewide MPI in order to satisfy the critical need to link records across disparate institutions. Each MPI entry will contain only enough information to uniquely identify an individual and map that individual to original data sources. While the MPI will not contain encounter-specific information, it will provide the capability for qualified investigators to link institutional records into patient-specific longitudinal health histories. The outcome of this proposal will be a unique research infrastructure but with strategies and methodologies that can be adopted as a model for other institutions. Its impact would have broad relevance to a variety of research interests supported by NIH Institutes and Centers. To address the challenge of securely and confidentially linking records across disparate institutions, we will establish a statewide Master Person Index that includes a master repository (database) of demographic information from the contributing institutions, and the services surrounding the repository to allow authorized access. We will establish guidelines to ensure institutions the ability to contribute to, use, and safeguard the statewide MPI. We will investigate and implement methods for matching and merging records. We will demonstrate the ability of health care and public health institutions to add new records to the MPI, update existing records, and query the repository for links to corresponding person-records at other institutions. We will utilize the State's health information exchange infrastructure to prove extensibility of the system to the statewide environment. We will develop a governance and financing model that will ensure the long-term viability of the statewide MPI. The outcome of this proposal will be a unique research infrastructure but with strategies and methodologies that can be adopted as a model for other institutions. PUBLIC HEALTH RELEVANCE: A statewide MPI will satisfy the critical need to link records across disparate institutions in order to provide the capability for qualified investigators, clinicians and public health officials to link institutional records into patient- specific longitudinal health histories. The development of this critical resource will have a significant statewide impact on the entire population of the Utah for research, clinical and public health outcomes. We also anticipate a national impact because of our goal to provide MPI guidelines and methodologies that could be adopted by other states and regions, and because use of the MPI will facilitate studies with broader applicability of research results.

描述（由申请人提供）：我们的目标是创建一个主人的人索引（MPI），明确识别每个人谁在犹他州接受医疗保健。该指数将使合格的临床和转化研究能够在具有独特属性的环境中进行：（1）该州80%以上的患者护理由三家提供商提供，这些接触（门诊和住院）以电子方式记录;和（2）在创建研究基础设施方面的丰富经验在其他州是无与伦比的（犹他州人口数据库），其提供了犹他州的大部分人口的人口统计和家族描述，并且其链接到相应的医疗数据。我们建议为全州范围的MPI创建技术和政策，以满足跨不同机构链接记录的关键需求。每个MPI条目将仅包含足够的信息来唯一地标识个人并将该个人映射到原始数据源。虽然MPI将不包含特定于患者的信息，但它将为合格的研究者提供将机构记录链接到患者特定纵向健康史的能力。这一建议的成果将是一个独特的研究基础设施，但其战略和方法可以作为其他机构的榜样。它的影响将对NIH研究所和中心支持的各种研究兴趣具有广泛的相关性。为了解决在不同机构之间安全和保密地链接记录的挑战，我们将建立一个全州范围的主人员索引，其中包括一个来自贡献机构的人口统计信息的主存储库（数据库），以及围绕存储库的服务，以允许授权访问。我们将制定指导方针，以确保机构有能力为全州的MPI做出贡献，使用和维护MPI。我们将研究和实现匹配和合并记录的方法。我们将展示医疗保健和公共卫生机构向MPI添加新记录、更新现有记录以及查询存储库以获取其他机构相应人员记录的链接的能力。我们将利用国家的健康信息交换基础设施，以证明系统的可扩展性，以全州的环境。我们将制定一个治理和融资模式，以确保全州MPI的长期可行性。这一建议的成果将是一个独特的研究基础设施，但其战略和方法可以作为其他机构的榜样。 公共卫生关系：全州范围的MPI将满足将不同机构的记录联系起来的关键需求，以便为合格的调查人员、临床医生和公共卫生官员提供将机构记录联系到患者特定纵向健康史的能力。这一关键资源的开发将对犹他州的研究、临床和公共卫生成果的整个人口产生重大的全州影响。我们还预计会产生全国性的影响，因为我们的目标是提供其他州和地区可以采用的MPI指南和方法，而且MPI的使用将促进研究，使研究结果具有更广泛的适用性。