Innovative Faith-Based Education on Advance Directives in Asian American Communit

亚裔美国人社区中预先指示的创新信仰教育

• 批准号: 8049784
• 负责人: Angela Sun
• 金额: $ 17.77万
• 依托单位: CHINESE COMMUNITY HEALTH RESOURCE CENTER
• 依托单位国家: 美国
• 财政年份: 2010
• 资助国家: 美国
• 起止时间: 2010-09-30 至 2012-08-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/8049784
• 关键词: Address; Adult; Advance Care Planning; Advance Directives; African; African American; American; Antibiotics; Asian Americans; Asians; Attitude; Back; Belief; Cardiopulmonary Resuscitation; Caring; Categories; Cessation of life; Chinese People; Church; Collaborations; Communities; Community Health; Data; Decision Making; Development; Dialysis procedure; Disease; Do Not Resuscitate Order; Economic Burden; Education; Ensure; Ethnic group; Family; Family member; Focus Groups; General Population; Goals; Group Interviews; Health; Health Educators; Health Personnel; Health Promotion and Education; Healthcare; Healthcare Power of Attorney; Healthcare Systems; Hispanic Americans; Hydration status; Individual; Intervention; Interview; Knowledge; Lead; Leadership; Legal; Life; Literature; Living Wills; Measures; Mechanical ventilation; Medical; Methods; Not Hispanic or Latino; Nursing Homes; Pain; Participant; Patient Self-Determination Act; Patients; Persons; Play; Population; Prevalence; Proxy; Psyche structure; Public Health; Publishing; Quality of life; Relative (related person); Religion and Spirituality; Reporting; Research; Research Personnel; Research Project Grants; Role; Social Well-Being; Solutions; Specific qualifier value; Surveys; Telephone; Terminal Disease; Work; World Health Organization; abstracting; base; community based participatory research; design; effective intervention; end of life; end of life care; ethnic minority population; experience; faith-based intervention; falls; health care service organization; health disparity; improved; informant; innovation; intervention program; member; nutrition; physical state; post intervention; prevent; response; theories; therapy design

DESCRIPTION (provided by applicant): ABSTRACT Background: Asian Americans have been shown to have cultural barriers that can impede their use of advance medical directives. This can prevent them from receiving appropriate health care according to their values at the end of life. Objectives: 1) To establish collaborations between Chinese and Vietnamese churches, health education/promotion organizations, and health care organizations to educate and promote the use of advance directives 2) To develop, implement, and evaluate a culturally and spiritually appropriate intervention to increase the acceptance and use of advance medical directives. Methods: We will conduct a church-wide survey to assess the prevalence of advance directives among Chinese and Vietnamese church congregants. We will use the community-based participatory research approach and the Theory Reasoned Action theoretical framework to identify the barriers and facilitators to the use of advance directives. In collaboration with church leaders and members, we will develop a culturally and spiritually appropriate intervention to increase the use of advance directives. Chinese and Vietnamese church members who are 50 years or older will be invited to participate in an educational program intervention about advance care planning. A pre-intervention and end-of-intervention survey will be administered to participants to assess their knowledge and attitudes about advance directives. Three months after the intervention, participants will be contacted by phone to determine whether they had completed an advance directive or discussed advance care wishes with family members or health care providers. We will revise the intervention design if the findings from key informant and focus group interviews suggest otherwise. Results: We will present prevalence estimates for advance directives among Chinese and Vietnamese church congregants. We will compare pre-intervention and post-intervention survey responses to measure change in knowledge and attitudes about advance directives, and will report relative proportions of congregants who have completed advance directives as a measure of the impact of the intervention. Conclusions/ Significance: This project will fill a current gap in the literature about the use of advance directives among Chinese and Vietnamese adults. It will describe the impact of a culturally tailored faith-based intervention to improve advance care planning in populations with known cultural barriers. PUBLIC HEALTH RELEVANCE: PROJECT NARRATIVE Impact of the study on public health Disparities in health care and cultural barriers have been shown to contribute to the low rates of completion of Advance Directives among ethnic minorities, thereby diminishing the quality of life in patients and adding to the economic burden of the health care system. The proposed study will provide a viable solution to the problem and build a collaborative framework for faith-based organizations to partner with health care providers to improve advance care planning and end of life care for one of the fastest growing population in the US - the Asian Americans.

描述（由申请人提供）： 摘要背景：事实证明，亚裔美国人存在文化障碍，可能会阻碍他们使用预先医疗指示。这可能会妨碍他们在临终时根据自己的价值观获得适当的医疗保健。目标： 1) 建立中国和越南教会、健康教育/促进组织和医疗保健组织之间的合作，以教育和推广预先医疗指示的使用。 2) 制定、实施和评估文化和精神上适当的干预措施，以提高预先医疗指示的接受和使用。方法：我们将进行一项全教会调查，以评估中国和越南教会会众中预先指示的流行程度。我们将使用基于社区的参与式研究方法和理论推理行动理论框架来确定使用预设医疗指示的障碍和促进因素。我们将与教会领袖和成员合作，制定文化和精神上适当的干预措施，以增加预先指示的使用。 50 岁或以上的中国和越南教会成员将被邀请参加有关预先护理计划的教育计划干预。将对参与者进行干预前和干预结束调查，以评估他们对预设医疗指示的了解和态度。干预后三个月，将通过电话联系参与者，以确定他们是否已完成预先指示或与家庭成员或医疗保健提供者讨论预先护理愿望。如果关键知情人和焦点小组访谈的结果表明并非如此，我们将修改干预设计。结果：我们将提供中国和越南教会会众中预先指示的流行率估计。我们将比较干预前和干预后的调查答复，以衡量对预先指示的知识和态度的变化，并将报告已完成预先指示的会众的相对比例，以衡量干预的影响。结论/意义：该项目将填补目前关于中国和越南成年人使用预先医疗指示的文献空白。它将描述基于信仰的文化定制干预措施的影响，以改善具有已知文化障碍的人群的预先护理计划。 公共卫生相关性：项目叙述该研究对公共卫生的影响 医疗保健方面的差异和文化障碍已被证明是导致少数族裔预先指示完成率较低的原因之一，从而降低了患者的生活质量并增加了医疗保健系统的经济负担。拟议的研究将为该问题提供可行的解决方案，并为信仰组织与医疗保健提供者合作建立一个协作框架，以改善美国增长最快的人口之一——亚裔美国人的预先护理计划和临终关怀。