Innovative Faith-Based Education on Advance Directives in Asian American Communit

亚裔美国人社区中预先指示的创新信仰教育

• 批准号: 8147757
• 负责人: Angela Sun
• 金额: $ 17.76万
• 依托单位: CHINESE COMMUNITY HEALTH RESOURCE CENTER
• 依托单位国家: 美国
• 财政年份: 2010
• 资助国家: 美国
• 起止时间: 2010-09-30 至 2012-08-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/8147757
• 关键词: Address; Adult; Advance Care Planning; Advance Directives; African American; American; Antibiotics; Asian Americans; Asians; Attitude; Back; Belief; Cardiopulmonary Resuscitation; Caring; Categories; Cessation of life; Chinese People; Church; Collaborations; Communities; Community Health; Data; Decision Making; Development; Dialysis procedure; Disease; Do Not Resuscitate Order; Economic Burden; Education; Ensure; Ethnic group; Family; Family health status; Family member; Focus Groups; General Population; Goals; Group Interviews; Health; Health Educators; Health Personnel; Health Promotion and Education; Healthcare; Healthcare Power of Attorney; Healthcare Systems; Hispanic Americans; Hydration status; Individual; Intervention; Interview; Knowledge; Lead; Leadership; Legal; Life; Literature; Living Wills; Measures; Mechanical ventilation; Medical; Methods; Not Hispanic or Latino; Nursing Homes; Pain; Participant; Patient Self-Determination Act; Patients; Personal Satisfaction; Persons; Play; Population; Prevalence; Proxy; Psyche structure; Public Health; Publishing; Quality of life; Relative (related person); Religion and Spirituality; Reporting; Research; Research Personnel; Research Project Grants; Role; Solutions; Specific qualifier value; Surveys; Telephone; Terminal Disease; Work; World Health Organization; base; community based participatory research; design; effective intervention; end of life; ethnic minority population; experience; faith-based intervention; falls; health care service organization; health disparity; improved; informant; innovation; intervention program; member; nutrition; physical state; post intervention; prevent; public health relevance; response; social; theories; therapy design

DESCRIPTION (provided by applicant): ABSTRACT Background: Asian Americans have been shown to have cultural barriers that can impede their use of advance medical directives. This can prevent them from receiving appropriate health care according to their values at the end of life. Objectives: 1) To establish collaborations between Chinese and Vietnamese churches, health education/promotion organizations, and health care organizations to educate and promote the use of advance directives 2) To develop, implement, and evaluate a culturally and spiritually appropriate intervention to increase the acceptance and use of advance medical directives. Methods: We will conduct a church-wide survey to assess the prevalence of advance directives among Chinese and Vietnamese church congregants. We will use the community-based participatory research approach and the Theory Reasoned Action theoretical framework to identify the barriers and facilitators to the use of advance directives. In collaboration with church leaders and members, we will develop a culturally and spiritually appropriate intervention to increase the use of advance directives. Chinese and Vietnamese church members who are 50 years or older will be invited to participate in an educational program intervention about advance care planning. A pre-intervention and end-of-intervention survey will be administered to participants to assess their knowledge and attitudes about advance directives. Three months after the intervention, participants will be contacted by phone to determine whether they had completed an advance directive or discussed advance care wishes with family members or health care providers. We will revise the intervention design if the findings from key informant and focus group interviews suggest otherwise. Results: We will present prevalence estimates for advance directives among Chinese and Vietnamese church congregants. We will compare pre-intervention and post-intervention survey responses to measure change in knowledge and attitudes about advance directives, and will report relative proportions of congregants who have completed advance directives as a measure of the impact of the intervention. Conclusions/ Significance: This project will fill a current gap in the literature about the use of advance directives among Chinese and Vietnamese adults. It will describe the impact of a culturally tailored faith-based intervention to improve advance care planning in populations with known cultural barriers. PUBLIC HEALTH RELEVANCE: PROJECT NARRATIVE Impact of the study on public health Disparities in health care and cultural barriers have been shown to contribute to the low rates of completion of Advance Directives among ethnic minorities, thereby diminishing the quality of life in patients and adding to the economic burden of the health care system. The proposed study will provide a viable solution to the problem and build a collaborative framework for faith-based organizations to partner with health care providers to improve advance care planning and end of life care for one of the fastest growing population in the US - the Asian Americans.

摘要背景：亚裔美国人有文化障碍，这可能会阻碍他们使用预先医疗指示。这可能使他们在生命结束时无法获得符合其价值观的适当保健。目标：1)建立中国和越南教会、健康教育/促进组织和卫生保健组织之间的合作，以教育和促进预先指示的使用2)制定、实施和评估文化上和精神上适当的干预措施，以增加预先医疗指示的接受和使用。方法：我们将在全教会范围内进行调查，以评估中国和越南教会会众中预先指示的流行程度。我们将使用基于社区的参与性研究方法和理性行动理论框架来确定使用预先指示的障碍和促进因素。我们将与教会领袖和会友合作，制定文化和精神上适当的干预措施，以增加预先指示的使用。50岁以上的中国和越南教会成员将被邀请参加一个关于提前护理计划的教育项目干预。干预前和干预结束时的调查将对参与者进行评估，以评估他们对预先指示的知识和态度。干预三个月后，将通过电话联系参与者，以确定他们是否完成了预先指示或与家庭成员或卫生保健提供者讨论了预先护理愿望。如果从关键信息提供者和焦点小组访谈中得出的结论与此相反，我们将修改干预设计。结果：我们将提出中国和越南教会会友中预先指示的患病率估计。我们将比较干预前和干预后的调查结果，以衡量对预先指示的知识和态度的变化，并将报告完成预先指示的会众的相对比例，作为干预影响的衡量标准。结论/意义：本项目将填补目前关于中国和越南成年人使用预先指示的文献空白。它将描述根据文化量身定制的基于信仰的干预措施对改善已知文化障碍人群的预先护理计划的影响。