eHealth Literacy Barriers and Solutions for Consumer Use of a Health Portal

消费者使用健康门户的电子健康素养障碍和解决方案

• 批准号: 8145185
• 负责人: DAVID R KAUFMAN
• 金额: $ 17.67万
• 依托单位: COLUMBIA UNIVERSITY HEALTH SCIENCES
• 依托单位国家: 美国
• 财政年份: 2010
• 资助国家: 美国
• 起止时间: 2010-09-30 至 2012-09-29
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/8145185
• 关键词: Address; Cognitive; Communities; Computer Literacy; Decision Making; Development; Diagnosis; Diagnostic; Dimensions; Educational Materials; Electronics; Evaluation; Goals; Growth; Guidelines; Health; Health Technology; Health education; Healthcare; Healthcare Systems; Hospitals; Information Resources; Institutional Review Boards; Internet; Intervention; Knowledge; Linguistics; Manuals; Mediating; Mediator of activation protein; Methods; Metric; Modification; Participant; Plant Roots; Play; Readability; Research; Research Activity; Resources; Review Literature; Role; Series; Signal Transduction; Site; Social Work; Solutions; Source; Structure; System; Technology; Universities; Validity and Reliability; Vocabulary; base; cohort; design; health application; health literacy; heuristics; improved; literacy; skills; systematic review; task analysis; tool; web site

DESCRIPTION (provided by applicant): The Internet provides unprecedented consumer access to high quality health information, and progressively serves as a mediator of health education, decision making and management. The evolving healthcare system increasingly necessitates that health consumers play a more active role in managing their health. However, there are numerous barriers that preclude health consumers from fully benefiting from the range of technology- based consumer health applications. In recent years, health literacy has emerged as a useful predictor to differentiate between those consumers who are more or less likely to benefit from these applications. Although the scope of health literacy is considerable, other literacies are also critical for productive use of Internet- mediated health technologies. eHealth literacy encompasses the set of knowledge and skills that allow consumers to fully engage in and benefit from eHealth tools. The overall objective of this study is to develop a set of analytic tools based on an eHealth literacy framework and apply it to a consumer health portal in view to characterize the complexity and challenges consumers are likely to confront in using the various information resources and tools offered by the system. Towards that end, we are partnering with a "state of the art" web portal, ConsumerReportsHealth.org. The site aims to help consumers make the best healthcare decisions based on the best available research evidence. The first goal is to establish the reliability and validity of the framework and we are proposing to undertake a set of formative research activities including inter-rater reliability and predictive validity studies. We have developed a set of cognitive task analytic methods for evaluating the eHealth literacy complexity of tasks on a given site. We propose to analyze 20 tasks of varying levels of complexity on the ConsumerReportsHealth.org site. The tasks include health information seeking, decision-making (e.g., weighing treatment options), and rating (hospitals and doctors) tasks. We will also apply two automated diagnostic tools: a readability assessment metric, which integrates linguistic features of a document to determine its level of readability, and a vocabulary complexity analysis tool, which signals which health terms in a document are unlikely to be understood by a health consumer. On the basis of our analysis of complexity, we will select 10 tasks of 3 levels of complexity to be used in a cognitive study with health consumers. We will conduct cognitive studies in which 2 cohorts of 20 subjects (40) are asked to perform the set of 10 tasks identified above. The first cohort will be drawn from paid subscribers to ConsumerReportsHealth.org and are likely to be more educated and have higher levels of computer literacy than the second cohort who will be drawn from Union Settlement Association, a social service and community center in East Harlem. Institutional Review Board will be sought at the two sites and at Columbia University. A primary strength of this proposal is that we are addressing an issue of considerable and growing importance using a theoretically-grounded framework that greatly expands the scope of eHealth literacy assessment.

描述（由申请人提供）：互联网为消费者提供了前所未有的高质量健康信息，并逐渐成为健康教育、决策和管理的媒介。不断发展的医疗保健系统越来越需要健康消费者在管理自己的健康方面发挥更积极的作用。然而，存在许多障碍阻碍健康消费者充分受益于一系列基于技术的消费者健康应用。近年来，健康素养已成为区分那些或多或少可能从这些应用程序中受益的消费者的有用预测指标。尽管健康素养的范围很广，但其他素养对于有效利用互联网介导的卫生技术也至关重要。电子医疗素养包括一系列知识和技能，使消费者能够充分参与电子医疗工具并从中受益。本研究的总体目标是开发一套基于电子健康素养框架的分析工具，并将其应用于消费者健康门户，以描述消费者在使用系统提供的各种信息资源和工具时可能面临的复杂性和挑战。为此，我们正在与“最先进”的门户网站 ConsumerReportsHealth.org 合作。该网站旨在帮助消费者根据现有的最佳研究证据做出最佳的医疗保健决策。第一个目标是建立框架的可靠性和有效性，我们建议开展一系列形成性研究活动，包括评估者间的可靠性和预测有效性研究。我们开发了一套认知任务分析方法，用于评估给定站点上任务的电子医疗素养复杂性。我们建议分析 ConsumerReportsHealth.org 网站上 20 项不同复杂程度的任务。这些任务包括健康信息查找、决策（例如权衡治疗方案）和评级（医院和医生）任务。我们还将应用两种自动诊断工具：可读性评估指标，它集成文档的语言特征来确定其可读性水平；以及词汇复杂性分析工具，它表明文档中的哪些健康术语不太可能被健康消费者理解。根据我们对复杂性的分析，我们将选择 3 个复杂程度的 10 项任务用于健康消费者的认知研究。我们将进行认知研究，要求 2 组 20 名受试者 (40 人) 执行上述 10 项任务。第一组将来自 ConsumerReportsHealth.org 的付费订阅者，他们可能比第二组来自东哈莱姆区社会服务和社区中心联合安置协会 (Union Settlement Association) 的受教育程度更高、计算机水平更高。将在这两个地点和哥伦比亚大学寻求机构审查委员会的支持。该提案的主要优点是，我们正在使用一个基于理论的框架来解决一个相当重要且日益重要的问题，该框架大大扩展了电子卫生保健素养评估的范围。