Childhood Cancer Survivor Program to Empower Action in Care (CC-SPEAC)

描述(申请人提供)：候选人丽莎·夏普博士是一名临床健康心理学家，她的职业目标是通过过渡到以患者为中心的癌症预防和少数群体和服务不足的群体的生存来进行独立研究。拟议的奖项将使她能够填补研究方法/设计、癌症预防/控制流行病学和干预开发方面的教育空白。这些技能将通过教学课程工作、实地经验、跨学科协作以及正式和非正式的跨学科指导来发展。主要赞助人是玛丽安·菲茨吉本博士，她是一名临床心理学家，专门研究以社区为基础的、针对少数族裔人群的降低风险干预措施。共同发起人包括儿童癌症成年幸存者专家凯文·奥芬格医学博士、识字专家蒂姆·沙纳汉博士和定性方法专家纳丁·皮科克博士。这项拟议的研究包括三个部分：焦点小组、干预改进和随机对照先导研究。参与者将是儿童癌症的成年幸存者，来自三个种族背景的男性和女性(黑人、西班牙裔和白人)。该试点旨在评估社区干预的可接受性/可行性，以使儿童癌症幸存者更积极地参与癌症后续护理。关于结果衡量的试点数据将为准确的功率分析和样本量计算提供数据，以支持随后的疗效试验。结果包括：对晚期效应和后续护理的了解，对复发的恐惧，与医生沟通的感知有效性，获得儿童医疗记录的自我效能，以及在六个月的后续访谈中完成的医疗访问次数。

DESCRIPTION (provided by applicant): The Candidate, Lisa Sharp, Ph.D., is a clinical health psychologist with the career goal of conducting independent research by transitioning to patient-oriented cancer prevention and survivorship in minority and underserved groups. The proposed award will enable her to fill educational gaps in research methods/design, cancer prevention/control epidemiology, and intervention development. These skills will be developed through didactic course work, field experiences, interdisciplinary collaboration, and both formal and informal cross-disciplinary mentoring. The primary sponsor is Marian Fitzgibbon, Ph.D., a clinical psychologist who specializes in community-based, risk reduction interventions for minority populations. The co-sponsors are Kevin Oeffinger, MD, an expert in adult survivors of pediatric cancer, Tim Shanahan, PhD, an expert in literacy, and Nadine Peacock, Ph.D., an expert in qualitative methods. The proposed study includes three components: focus groups, intervention refinement, and a randomized controlled pilot study. Participants will be adult survivors of childhood cancer, males and females from three ethnic backgrounds (Black, Hispanic, and White). The pilot is designed to assess the acceptability/feasibility of a community-based intervention to engage childhood cancer survivors more actively in cancer follow-up care. Pilot data on outcome measures will provide data for accurate power analyses and sample size calculation to support a subsequent efficacy trial. Outcomes include: knowledge of late effects and follow-up care, fear of relapse, perceived efficacy to communicate with physician, access to childhood medical records, self-efficacy to obtain medical records, and the number of completed health care visits at a six month follow-up interview.