Childhood Cancer Survivor Program to Empower Action in Care (CC-SPEAC)

描述（由申请人提供）：候选人Lisa Sharp博士是一名临床健康心理学家，她的职业目标是通过在少数民族和服务不足的群体中过渡到以患者为导向的癌症预防和生存进行独立研究。拟议的奖项将使她能够填补研究方法/设计，癌症预防/控制流行病学和干预发展方面的教育空白。这些技能将通过教学课程、实地经验、跨学科合作以及正式和非正式的跨学科指导来发展。主要发起人是Marian Fitzgibbon博士，她是一位临床心理学家，专门从事以社区为基础的，针对少数群体的风险降低干预。共同发起人是儿科癌症成年幸存者专家Kevin Oeffinger医学博士、识字专家Tim Shanahan博士和定性方法专家Nadine Peacock博士。本研究包括三个组成部分：焦点小组、干预改进和随机对照试点研究。参与者将是儿童癌症的成年幸存者，来自三种种族背景（黑人、西班牙裔和白人）的男性和女性。该试点旨在评估社区干预的可接受性/可行性，以使儿童癌症幸存者更积极地参与癌症后续护理。结果测量的试点数据将为准确的功率分析和样本量计算提供数据，以支持随后的疗效试验。结果包括：对晚期影响和随访护理的了解、对复发的恐惧、与医生沟通的感知效能、获得儿童医疗记录的机会、获得医疗记录的自我效能以及在六个月随访访谈中完成的医疗保健访问次数。

DESCRIPTION (provided by applicant): The Candidate, Lisa Sharp, Ph.D., is a clinical health psychologist with the career goal of conducting independent research by transitioning to patient-oriented cancer prevention and survivorship in minority and underserved groups. The proposed award will enable her to fill educational gaps in research methods/design, cancer prevention/control epidemiology, and intervention development. These skills will be developed through didactic course work, field experiences, interdisciplinary collaboration, and both formal and informal cross-disciplinary mentoring. The primary sponsor is Marian Fitzgibbon, Ph.D., a clinical psychologist who specializes in community-based, risk reduction interventions for minority populations. The co-sponsors are Kevin Oeffinger, MD, an expert in adult survivors of pediatric cancer, Tim Shanahan, PhD, an expert in literacy, and Nadine Peacock, Ph.D., an expert in qualitative methods. The proposed study includes three components: focus groups, intervention refinement, and a randomized controlled pilot study. Participants will be adult survivors of childhood cancer, males and females from three ethnic backgrounds (Black, Hispanic, and White). The pilot is designed to assess the acceptability/feasibility of a community-based intervention to engage childhood cancer survivors more actively in cancer follow-up care. Pilot data on outcome measures will provide data for accurate power analyses and sample size calculation to support a subsequent efficacy trial. Outcomes include: knowledge of late effects and follow-up care, fear of relapse, perceived efficacy to communicate with physician, access to childhood medical records, self-efficacy to obtain medical records, and the number of completed health care visits at a six month follow-up interview.