Childhood Cancer Survivor Program to Empower Action in Care (CC-SPEAC)

儿童癌症幸存者计划，以加强护理行动 (CC-SPEAC)

• 批准号: 7469749
• 负责人: Lisa K Sharp
• 金额: $ 14.34万
• 依托单位: UNIVERSITY OF ILLINOIS AT CHICAGO
• 依托单位国家: 美国
• 财政年份: 2008
• 资助国家: 美国
• 起止时间: 2008-08-01 至 2013-07-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7469749
• 关键词: Address; Adult; Age; Appendix; Award; Awareness; Behavioral Research; Cancer Patient; Cancer Survivor; Cancer Survivorship; Caring; Childhood; Clinical; Communication; Communities; Data; Doctor of Philosophy; Early Diagnosis; Education; Epidemiology; Equation; Excess Mortality; Face; Female; Focus Groups; Fright; Funding; Goals; Grant; Health; Health Care Visit; Health Personnel; Healthcare; Hispanics; Institute of Medicine (U.S.); Intervention; Interview; Investments; Knowledge; Late Effects; Malignant Childhood Neoplasm; Malignant Neoplasms; Medical; Medical History; Medical Records; Medical Surveillance; Mentors; Minority; Morbidity - disease rate; National Cancer Advisory Board; Numbers; Outcome; Outcome Measure; Participant; Patient Education; Patients; Physicians; Pilot Projects; Population; Preventive; Price; Provider; Psychologist; Purpose; Qualitative Methods; Quality of Care; Randomized; Relapse; Reporting; Research; Research Methodology; Research Personnel; Risk; Risk Reduction; Sample Size; Screening for cancer; Second Primary Cancers; Self Efficacy; Side; Solutions; Survivors; Testing; Time; Underrepresented Minority; United States; Work; anticancer research; base; body system; cancer prevention; cancer type; career; childhood cancer survivor; design; efficacy trial; experience; follow-up; improved; interdisciplinary collaboration; literacy; male; patient oriented; prevent; programs; skills; survivorship; therapy development

DESCRIPTION (provided by applicant): The Candidate, Lisa Sharp, Ph.D., is a clinical health psychologist with the career goal of conducting independent research by transitioning to patient-oriented cancer prevention and survivorship in minority and underserved groups. The proposed award will enable her to fill educational gaps in research methods/design, cancer prevention/control epidemiology, and intervention development. These skills will be developed through didactic course work, field experiences, interdisciplinary collaboration, and both formal and informal cross-disciplinary mentoring. The primary sponsor is Marian Fitzgibbon, Ph.D., a clinical psychologist who specializes in community-based, risk reduction interventions for minority populations. The co-sponsors are Kevin Oeffinger, MD, an expert in adult survivors of pediatric cancer, Tim Shanahan, PhD, an expert in literacy, and Nadine Peacock, Ph.D., an expert in qualitative methods. The proposed study includes three components: focus groups, intervention refinement, and a randomized controlled pilot study. Participants will be adult survivors of childhood cancer, males and females from three ethnic backgrounds (Black, Hispanic, and White). The pilot is designed to assess the acceptability/feasibility of a community-based intervention to engage childhood cancer survivors more actively in cancer follow-up care. Pilot data on outcome measures will provide data for accurate power analyses and sample size calculation to support a subsequent efficacy trial. Outcomes include: knowledge of late effects and follow-up care, fear of relapse, perceived efficacy to communicate with physician, access to childhood medical records, self-efficacy to obtain medical records, and the number of completed health care visits at a six month follow-up interview.

描述（由申请人提供）：候选人 Lisa Sharp 博士是一名临床健康心理学家，其职业目标是通过转向以患者为导向的少数族裔和服务不足群体的癌症预防和生存来进行独立研究。拟议的奖项将使她能够填补研究方法/设计、癌症预防/控制流行病学和干预开发方面的教育空白。这些技能将通过教学课程、现场经验、跨学科合作以及正式和非正式的跨学科指导来发展。主要发起人是玛丽安·菲茨吉本 (Marian Fitzgibbon) 博士，她是一位临床心理学家，专门研究针对少数群体的基于社区的风险降低干预措施。共同发起人包括儿科癌症成年幸存者专家 Kevin Oeffinger 医学博士、识字专家 Tim Shanahan 博士和定性方法专家 Nadine Peacock 博士。拟议的研究包括三个组成部分：焦点小组、干预细化和随机对照试点研究。参与者将是儿童癌症的成年幸存者，来自三个种族背景（黑人、西班牙裔和白人）的男性和女性。该试点项目旨在评估基于社区的干预措施的可接受性/可行性，以使儿童癌症幸存者更积极地参与癌症后续护理。结果测量的试点数据将为准确的功效分析和样本量计算提供数据，以支持后续的疗效试验。结果包括：对后期影响和后续护理的了解、对复发的恐惧、与医生沟通的感知有效性、获取儿童病历、获取病历的自我效能以及六个月随访访谈中完成的医疗保健就诊的次数。