Childhood Cancer Survivor Program to Empower Action in Care (CC-SPEAC)

描述（由申请人提供）：候选人，丽莎夏普，博士，是一名临床健康心理学家，其职业目标是通过过渡到以患者为导向的癌症预防和少数群体和服务不足群体的生存来进行独立研究。拟议的奖项将使她能够填补研究方法/设计，癌症预防/控制流行病学和干预发展的教育空白。这些技能将通过教学课程工作，实地经验，跨学科合作以及正式和非正式的跨学科指导来开发。主要赞助商是Marian Fitzgiant博士，她是一位临床心理学家，专门从事以社区为基础的、针对少数群体的减少风险干预措施。共同赞助者是凯文Oeffinger，医学博士，在成人幸存者的儿童癌症，蒂姆沙纳汉，博士，在识字专家，和纳丁孔雀，博士，定性方法的专家。拟议的研究包括三个组成部分：焦点小组，干预措施的完善，和随机对照试点研究。参与者将是来自三个种族背景（黑人、西班牙裔和白色）的儿童癌症成年幸存者，男性和女性。试点项目旨在评估以社区为基础的干预措施的可接受性/可行性，以使儿童癌症幸存者更积极地参与癌症后续护理。关于结局指标的初步数据将为准确的把握度分析和样本量计算提供数据，以支持后续的疗效试验。成果包括：对迟发效应和随访护理的了解、对复发的恐惧、与医生沟通的感知功效、获得儿童医疗记录的途径、获得医疗记录的自我功效以及在六个月随访访谈时完成的医疗保健访问的次数。

DESCRIPTION (provided by applicant): The Candidate, Lisa Sharp, Ph.D., is a clinical health psychologist with the career goal of conducting independent research by transitioning to patient-oriented cancer prevention and survivorship in minority and underserved groups. The proposed award will enable her to fill educational gaps in research methods/design, cancer prevention/control epidemiology, and intervention development. These skills will be developed through didactic course work, field experiences, interdisciplinary collaboration, and both formal and informal cross-disciplinary mentoring. The primary sponsor is Marian Fitzgibbon, Ph.D., a clinical psychologist who specializes in community-based, risk reduction interventions for minority populations. The co-sponsors are Kevin Oeffinger, MD, an expert in adult survivors of pediatric cancer, Tim Shanahan, PhD, an expert in literacy, and Nadine Peacock, Ph.D., an expert in qualitative methods. The proposed study includes three components: focus groups, intervention refinement, and a randomized controlled pilot study. Participants will be adult survivors of childhood cancer, males and females from three ethnic backgrounds (Black, Hispanic, and White). The pilot is designed to assess the acceptability/feasibility of a community-based intervention to engage childhood cancer survivors more actively in cancer follow-up care. Pilot data on outcome measures will provide data for accurate power analyses and sample size calculation to support a subsequent efficacy trial. Outcomes include: knowledge of late effects and follow-up care, fear of relapse, perceived efficacy to communicate with physician, access to childhood medical records, self-efficacy to obtain medical records, and the number of completed health care visits at a six month follow-up interview.