权益分类	功能权益	普通用户	{{item.name}}会员
{{category.name}}	{{benefitItem.name}}

Parental adherence to CF homecare: research chaplaincy career commitment

家长对 CF 家庭护理的遵守：研究牧师职业承诺

基本信息

批准号：
8683200
负责人：
Daniel Huck Grossoehme
金额：
$ 9.83万
依托单位：
CINCINNATI CHILDRENS HOSP MED CTR
依托单位国家：
美国
项目类别：
财政年份：
2010
资助国家：
美国
起止时间：
2010-08-13 至 2015-05-31
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/8683200
关键词：
Adherence Adult Affect American Antibiotics Attitude Award Behavior Behavioral Model Belief Caring Child Child health care Childhood Chronic Care Chronic Disease Chronically Ill Collaborations Competence Counseling Cross-Sectional Studies Cystic Fibrosis Data Data Analyses Diagnosis Disease Distal Doctor of Philosophy Emotional Family Goals Health Home Care Services Home environment Hospitalization Inpatients Institution Intervention Interview Intravenous Lead Life Link Mediating Medical Mentored Patient-Oriented Research Career Development Award Mentors Mentorship Methods Motivation Outcome Outcomes Research Parents Patients Play Positioning Attribute Prevalence Publications Publishing Quality of life Questionnaires Religion Religion and Psychology Religion and Spirituality Research Research Design Research Methodology Research Personnel Resources Role Schools Self Efficacy Self Management Sickle Cell Anemia Site Social support Solid Spirituality Structure Telephone Testing Time Training Work base career career development children with cystic fibrosis coping diaries experience improved innovation patient home care patient oriented programs skills

项目摘要

DESCRIPTION (provided by applicant): Cystic fibrosis (CF) is a life-shortening disorder, the course of which is exacerbated by nonadherence to recommended medical treatments at home. While much is known about factors affecting adherence, less is known about the role of other factors, including spirituality. Objectives: The Candidate's long-term goal is to develop an independent research career as an academic research chaplain focused on the role of child health outcomes and spirituality. The specific outcomes for this are award are to: a) enhance my understanding and competence in mixed-methods research and outcomes research and b) obtain the necessary professional and academic skills to succeed as an independent investigator. Training: For my career development, I plan to take further training in specific qualitative and quantitative methods and data analysis. My mentorship team is comprised of experts in the fields of outcomes research, qualitative and quantitative methods, CF, and spirituality research: Michael Seid, PhD (sponsor), Joel Tsevat, MD, MPH (co-sponsor), Dennis Drotar, PhD (co-sponsor), Kenneth Pargament, PhD, Annette Mahoney, PhD, George Fitchett, D Min, PhD. Jeffrey Jacobson, PhD, Rhonda VanDyke, PhD and James Acton, MD. Research Design & Methods: The central hypothesis is that spirituality is a factor in the lives of parents of children with CF, spiritual constructs are related to adherence, and that this effect is at least partially mediated by attitudes towards treatment, subjective norms, and self-efficacy. This proposal consists of 3 projects involving a total of 124 parents of children with CF. Project 1 is a longitudinal qualitative study with 24 parents using semi-structured interviews to determine the role of spirituality for parents in relation to their child's health and their adherence intentions. Project 2 is a quantitative cross-sectional study of 100 parents using questionnaires and the Daily Phone Diary to quantify the degree to which spiritual variables are related to adherence intentions among parents of children with CF. Project 3 is a quantitative cross-sectional study of 100 parents using the data collected in Project 2 to determine the extent to which the relationship between spiritual variables and parental adherence are mediated by attitudes, norms and self-efficacy. The Candidate's contribution will be to integrate spirituality into an already existing behavioral model of adherence, and to understand how a parent's spirituality impacts their adherence intentions and behaviors. The proposed research is significant because this understanding will enable us to improve existing adherence interventions and thus child health outcomes.

描述(申请人提供)：囊性纤维化(CF)是一种缩短生命的疾病，其病程会因不坚持在家中接受推荐的药物治疗而加剧。虽然人们对影响坚持的因素知道得很多，但对包括灵性在内的其他因素的作用却知之甚少。目标：候选人的长期目标是发展一个独立的研究生涯，成为一名学术研究牧师，专注于儿童健康结果和灵性的作用。该奖项的具体成果是：a)提高我在混合方法研究和成果研究方面的理解和能力；b)获得作为一名独立调查员取得成功所需的专业和学术技能。培训：为了我的职业发展，我计划在具体的定性和定量方法和数据分析方面进行进一步的培训。我的导师团队由成果研究、定性和定量方法、CF和灵性研究领域的专家组成：Michael Seid，博士(发起人)，Joel Tsevat，医学博士，公共卫生硕士(共同发起人)，Dennis Drotar，博士(共同发起人)，Kenneth Pargment，博士，Annette MaHony，博士，George Fitchett，D Min，博士。杰弗里·雅各布森博士、朗达·范戴克博士和詹姆斯·阿克顿博士。研究设计与方法：本研究的中心假设是，精神状态是儿童慢性萎缩性脑病患者父母生活中的一个因素，精神结构与坚持性有关，并且这种影响至少部分地受治疗态度、主观规范和自我效能的影响。这项提案由3个项目组成，共涉及124名儿童的父母。项目1是对24位家长进行的纵向定性研究，采用半结构化访谈的方式，以确定父母的灵性对孩子的健康和遵守意愿的影响。项目2是一项对100名父母的定量横断面研究，使用问卷和每日电话日记来量化精神变量与儿童坚持意愿的关系程度。项目3是一项对100名父母的定量横断面研究，使用项目2中收集的数据来确定精神变量与父母忠诚度之间的关系在多大程度上受到态度、规范和自我效能感的调节。候选人的贡献将是将灵性整合到已经存在的忠贞行为模式中，并了解父母的灵性如何影响他们的忠贞意图和行为。拟议的研究具有重要意义，因为这种理解将使我们能够改善现有的遵守干预措施，从而改善儿童健康结果。

项目成果

期刊论文数量（8）

专著数量（0）

科研奖励数量（0）

会议论文数量（0）

专利数量（0）

Screening for Spiritual Struggle in an Adolescent Transgender Clinic: Feasibility and Acceptability.

在青春期跨性别诊所进行精神斗争的筛查：可行性和可接受性。

DOI：
10.1080/08854726.2015.1123004
发表时间：
2016
期刊：
Journal of health care chaplaincy
影响因子：
1.9
作者：
Grossoehme DH;Teeters A;Jelinek S;Dimitriou SM;Conard LA
通讯作者：
Conard LA

Parents' religious coping styles in the first year after their child's cystic fibrosis diagnosis.

DOI：
10.1080/08854726.2010.480836
发表时间：
2010
期刊：
Journal of health care chaplaincy
影响因子：
1.9
作者：
Grossoehme DH;Ragsdale J;Cotton S;Wooldridge JL;Grimes L;Seid M
通讯作者：
Seid M

Relationship of adherence determinants and parental spirituality in cystic fibrosis.

囊性纤维化中依从性决定因素与父母精神的关系。

DOI：
10.1002/ppul.21614
发表时间：
2012
期刊：
Pediatric pulmonology
影响因子：
3.1
作者：
Grossoehme,DanielH;Opipari-Arrigan,Lisa;VanDyke,Rhonda;Thurmond,Sophia;Seid,Michael
通讯作者：
Seid,Michael

Overview of qualitative research.