Prepare to Care, A Supported Self-Management Intervention for Head and Neck Cancer Caregivers
Prepare to Care, A Supported Self-Management Intervention for Head and Neck Cancer Caregivers
批准号:
9172396
负责人:
Chandylen Lenae Nightingale
金额:
$7.75万
依托单位国家:
美国
项目类别:
财政年份:
2016
资助国家:
美国
项目状态:
已结题
起止时间:
2016-08-01 至 2018-07-31
关键词:
AddressAdverse effectsAmericanAnxietyBehaviorBiological MarkersBreastCancer PatientCaregiver BurdenCaregiver supportCaregiversCaringChronicClinicClinical OncologyColonCommunitiesCommunity Clinical Oncology ProgramCommunity NetworksComplexDataDeglutitionDeglutition DisordersDevelopmentDiagnosisDiseaseEducationEducational MaterialsEducational process of instructingEmotionalEmotionsFamily memberFatigueFutureGeneral PopulationGoalsGynecologicHead and Neck CancerHealthHealthcare SystemsHydrocortisoneIncidenceInterventionIntervention StudiesInterviewLarge IntestineLearningLifeLife ExperienceLinkMalignant NeoplasmsMedicalMental DepressionMental HealthMethodsModalityMuscle relaxation phaseOutcomePatient CarePatient Self-ReportPatientsPersonal SatisfactionPhysiologicalPilot ProjectsPopulationProceduresProstatePublishingQuality of lifeRadiationRadiation therapyRandomized Controlled TrialsRecurrenceResearchResearch DesignResearch PersonnelResourcesRiskSalivaryScheduleSelf EfficacySelf ManagementSideSiteStressStructureTestingTubeWell in selfWellness Programarmbasecancer diagnosiscareercopingdesignempoweredexperiencefeedingfood preparationforesthead and neck cancer patientimprovedinformal caregiverinnovationmeetingsmelanomamortalitynovelphysical conditioningpost interventionpreferenceprogramspsychologicpsychological distresspsychosocialresponseskillsstress managementtheoriesweb site
中文摘要
项目总结
英文摘要
PROJECT SUMMARY
Patients with head and neck cancer (HNC) can experience life altering side effects during radiotherapy (RT),
resulting in significant care needs and psychological distress that exceeds that of patients with many other
cancer diagnoses. Informal (unpaid) caregivers of patients with HNC have poorer psychological health
compared to patients and the general population. HNC caregivers have unmet informational needs and desire
wellness programs on stress reduction during patient oncologic treatment; however, there are no published
intervention studies designed to meet HNC caregivers’ psycho-educational and stress management needs.
The overall goal of this research is to optimize stress management skills in HNC caregivers by implementing a
supported self-management (SSM) intervention, Prepare to Care, to reduce negative psychological effects
associated with providing care during patient RT. Twenty HNC caregivers of patients undergoing RT will
participate in the SSM intervention during the patient’s RT and complete assessments (burden, psychological
distress, quality of life, and self-efficacy for (a) coping with cancer and (b) abbreviated progressive muscle
relaxation) pre and post- intervention and semi-structured interviews post-intervention. Prepare to Care
includes self-directed educational materials to provide information and teach strategies to manage emotions
and promote healthy behaviors. Materials are provided in hard copy and online, with iPads linked to the study
website available at the clinic during daily RT treatments. Several topics (or, modules) are offered and
selection of modules is supported by weekly assessments with the interventionist to identify caregivers’ current
needs. For Aim 1, we will assess feasibility (accrual, participation, retention) and acceptability of a SSM
intervention for psycho-education and stress management skills building designed for informal caregivers
(n=20) of HNC patients undergoing RT. For Aim 2, we will obtain preliminary data on caregiver intermediate
(self-efficacy for (a) coping with cancer and (b) abbreviated progressive muscle relaxation) and outcome
variables (burden, psychological distress, and quality of life) before and after the intervention. For Aim 3, we
will refine intervention procedures and materials for future studies by examining: a) qualitative data from
caregivers and interventionist notes and b) quantitative data regarding module utilization. Results will provide
feasibility and acceptability data on the first psychosocial intervention developed for HNC caregivers during
patient RT and will directly inform the development of a multisite randomized controlled trial to be implemented
through the Wake Forest NCI Community Oncology Research Program (NCORP) Research Base.
期刊论文(0)
专著(0)
科研奖励(0)
会议论文
Multi-site Community Oncology Planning for the CONNECT Intervention Targeting Lung Cancer Caregivers
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批准号:10730680
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项目类别:
-
资助金额:$28.37万
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财政年份:2023
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负责人:Chandylen Lenae Nightingale
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依托单位:
海外基金