Stakeholder-driven, consensus development methods to design an ethical framework and guidelines for engaged research.
Stakeholder-driven, consensus development methods to design an ethical framework and guidelines for engaged research.
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DOI：
10.1371/journal.pone.0199451
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发表时间：
2018
期刊：
影响因子：
3.7
通讯作者：
Nisbeth KS
中科院分区：
文献类型：
--
作者：
Corbie-Smith G;Wynn M;Richmond A;Rennie S;Green M;Hoover SM;Watson-Hopper S;Nisbeth KS
研究人员越来越多地寻求让社区、患者和利益攸关方作为伙伴参与卫生研究的过程和成果。然而，目前还没有一个由利益相关者驱动的道德框架来支持这类学术研究。我们采用了一种迭代的、利益相关者参与的方法来开发一个数据驱动的框架，用于从事学术的道德审查和行为。我们使用共识发展会议方法和改进的德尔菲调查来吸引240名社区成员、伦理学家和学术研究人员。这一多阶段过程产生了一个包含4个领域的框架：公平和公正研究愿景、关系动态、社区知情的风险/利益评估和问责制。在该框架内，4个交叉考虑因素和15个声明阐明了利益相关者对从事学术的道德审查和行为的优先事项。虽然研究结果是有希望的，但该研究的局限性在于它侧重于利益相关者的观点，而不是实际评估或应用该领域的研究结果。利益相关者参与框架为参与奖学金的道德实践和政策的进一步阐明提供了一个平台。
Increasingly, researchers seek to engage communities, patients, and stakeholders as partners in the process and products of health research. However, there is no existing stakeholder-driven ethical framework for such engaged scholarship. We employed an iterative, stakeholder-engaged method to develop a data-driven framework for the ethical review and conduct of engaged scholarship. We used consensus development conference methods and a modified Delphi survey to engage 240 community members, ethicists, and academic researchers. This multi-staged process produced a framework with 4 domains: vision of equitable and just research, relationship dynamics, community-informed risk/benefits assessment, and accountability. Within the framework, 4 cross-cutting considerations and 15 statements explicate the stakeholders’ priorities for the ethical review and conduct of engaged scholarship. Though the findings are promising, the study is limited in that it focuses on stakeholder perspectives, but does not actually evaluate or apply the findings in the field. The stakeholder-engaged framework provides a platform for further articulation of ethical practices and policy for engaged scholarship.
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DOI：
10.1525/jer.2012.7.2.3
发表时间：
2012-04
期刊：
Journal of empirical research on human research ethics : JERHRE
影响因子：
--
作者：
Anderson EE;Solomon S;Heitman E;DuBois JM;Fisher CB;Kost RG;Lawless ME;Ramsey C;Jones B;Ammerman A;Ross LF
通讯作者：
Ross LF
履行道德责任：超越保护人类受试者免受研究伤害的最低标准。
DOI：
10.1353/cpr.2015.0021
发表时间：
2015
期刊：
Progress in community health partnerships : research, education, and action
影响因子：
--
作者：
Hébert JR;Satariano WA;Friedman DB;Armstead CA;Greiner A;Felder TM;Coggins TA;Tanjasiri S;Braun KL
通讯作者：
Braun KL
影响因子：
12.7
作者：
Quinn, SC
通讯作者：
Quinn, SC
影响因子：
1.2
作者：
James, D.;Warren-Forward, H.
通讯作者：
Warren-Forward, H.
影响因子：
12.7
作者：
Kass, NE
通讯作者：
Kass, NE