CAREER: Mobile and Ubiquitous Computing Technologies for Young Children with Chronic Health Conditions

一个具有影响力和重要性的新兴领域是将移动的和无处不在的计算技术应用于慢性医疗保健。慢性疾病的长期性使得记录保存和长期分析诊断和评估措施变得极其重要和具有挑战性。捕获和访问技术，即，能够记录和访问记录数据的无处不在的计算技术对于监测慢性病干预措施的有效性特别有希望。随着时间的推移，健康和行为数据可以被捕获、分析和挖掘，为跟踪干预措施的进展提供有价值的证据。本研究将探讨新颖的移动的和无处不在的计算技术在幼儿长期护理记录保存中的作用。具体而言，这项研究解决了三个主要挑战。首先，必须开发技术干预措施，以支持更好的记录保存和相关的可视化和假设检验，使护理人员能够了解他们的药物和行为干预的影响。其次，这些干预措施必须在短期内得到理解，以支持临床疗效的测试，也要在这些慢性病患者的一生中得到理解，这些患者的慢性病可以持续几十年。第三，这些技术的重点不仅必须是获取和允许获得适当的数据，而且必须是实现这些目标，同时减轻家庭的广泛负担。

An emergent area of impact and significance is the application of mobile and ubiquitous computing technologies to chronic healthcare. The long-lasting nature of chronic medical conditions makes record-keeping and long-term analysis of diagnostic and evaluative measures extremely important and challenging. Capture and access technologies, i.e., ubiquitous computing technologies that enable recording and access to recorded data, are particularly promising for monitoring the effectiveness of interventions for chronic conditions. Health and behavioral data can be captured, analyzed, and mined over time, providing valuable evidence for tracking the progress of interventions. This research will examine the role that novel mobile and ubiquitous computing technologies can play in record-keeping for chronic care of young children. Specifically, this research addresses three major challenges. First, technological interventions must be developed that support better record keeping and associated visualization and hypothesis testing to allow caregivers to understand the impacts of their pharmaceutical and behavioral interventions. Second, these interventions must be understood in the short-term to support testing of clinical efficacy and also over the lifetime of these patients whose chronic conditions can span several decades. Third, the focus of these technologies must be not only on capturing and allowing access to appropriate data but also in accomplishing these goals while easing the extensive burden on families.