SCC-CIVIC-PG Track B: Co-Designing Protocols for Data Creation, Analysis, and Use among Local Care Networks in Seattle and Boston to Enhance Disaster Resilience

危机促使现有的和潜在的人群参与集体行动——要求个人集中注意力、独特技能和宝贵的信息资源，以便有效应对一系列事件，包括全球卫生大流行病、野火、地震等。一旦召开会议，危机信息学中的一个开放问题是如何最好地组织和协调潜在群体以进行有效反应，特别是那些代表传统上代表性不足的人群的群体？当群体之间存在信息不对称（优势和劣势），不利于有效合作时，这个问题变得更加突出。在新冠肺炎疫情背景下，克服信息不对称，有效共享和汇集信息资源至关重要。特别是，有必要更好地将市政府的战略外展和正式信息传播活动与侧重于分配地方资源的由公民领导的合作团体结合起来。本项目认为后者是“护理网络”，即围绕正在发生的全球卫生大流行暴露或加剧的特定脆弱性聚集在一起的个人。根据定义，医疗网络的运作独立于正式的政府机构，有时是因为公共部门未能照顾到历史上服务不足的社区。为了研究将来自医疗网络的信息与自上而下、集中的政府COVID-19应对措施整合的可能性，拟议的以研究为中心的试点项目旨在与西雅图和波士顿的医疗网络、公共图书馆和市政府共同设计用于数据创建、分析和使用的模块化协议原型。这些议定书将对各种灾害和危机具有灵活性，并可在不那么极端的情况下使用，以建立对未来流行病或其他危机事件的复原力。这些协议还将专门处理隐私保护和数据格式，以及数据素养、收集、存储、清理、分析、可视化、使用和删除，这些都是有意义的数据交换所必需的。在为期四个月的计划拨款期间，将组建个人倡议小组，研究小组将收集和评估西雅图和波士顿市政311、Twitter和其他有关COVID-19的公开数据的相关性。将对有关该流行病的自上而下和自下而上的主要信息来源进行编目，在全额奖励期间，将优先考虑在规划赠款中指定的以外的护理网络的潜在参与。参与的护理网络将参与进来，以便收集有关它们正在收集的数据类型的信息，它们是否与谁共享这些数据，以及它们在与地方政府交换信息时对隐私保护的偏好。该规划赠款下的参与活动将包括社区和城市合作伙伴之间的远程视频会议，以及PI团队，高级人员，学术合作者和顾问。促进将吸引更多以社区为基础的参与者或相关利益攸关方，并为未来的试点建议提供基础。该奖项反映了美国国家科学基金会的法定使命，并通过使用基金会的知识价值和更广泛的影响审查标准进行评估，被认为值得支持。

Crises catalyze existing and latent groups of people to engage in collective action - asking individuals to pool their undivided attention, unique skills, and valuable informational resources together in order to respond effectively to a range of events, including global health pandemics, wildfires, earthquakes, etc. Once convened, an open question within crisis informatics is how to best organize and coordinate latent groups for effective response, especially those representing traditionally underrepresented populations? This question becomes all the more salient when there are information asymmetries (advantages and disadvantages) between groups that prohibit effective cooperation. In the context of Covid-19 it's critical that information asymmetries are overcome to effectively share and pool informational resources. In particular, there is a need to better align the strategic outreach and formal information dissemination activities of municipal governments with citizen-led cooperative groups focused on distribution of local resources. This project considers the latter to be “networks of care” - individuals coalescing around particular situated vulnerabilities that are revealed or exacerbated by the ongoing global health pandemic. Networks of care, by definition, operate independent from formal government agencies, sometimes because the public sector has failed to care for historically underserved communities. To study the potential integration of information from networks of care with top-down, centralized, governmental COVID-19 responses, the proposed research-centered pilot project seeks to prototype modular protocols for data creation, analysis, and use - co-designed with care networks, public libraries, and municipal government in Seattle and Boston. These protocols will be flexible to a variety of disasters and crises, and usable in less extreme contexts to build resilience to future pandemics or other crisis events. These protocols will also specifically address privacy protections and data formats, as well as data literacy, collection, storage, cleaning, analysis, visualization, use, and deletion that are necessary for meaningful data exchange.During the four month planning grant the PI team will be assembled and the research team will collect and assess the relevance of municipal 311, Twitter, and other open data about COVID-19 in Seattle and Boston. Major top-down and bottom-up sources of information about the pandemic will be catalogued, and care networks beyond those named in this planning grant will be prioritized for potential engagement during a full award. Participating care networks will be engaged so as to gather information about the types of data they are collecting, whether they share any of that data and with whom, and their preferences for privacy protections in exchanging information with local governments. Engagement activities under this planning grant will include remote video-conferencing meetings among the community and city partners, as well as the PI team, senior personnel academic collaborators and consultants. Facilitation will elicit further community-based participants or relevant stakeholders and provide the basis for a future pilot proposal.This award reflects NSF's statutory mission and has been deemed worthy of support through evaluation using the Foundation's intellectual merit and broader impacts review criteria.