Disability Expertise and Design Justice for Post-COVID Equity

该项目将分析新冠肺炎疫情期间残疾人和慢性病患者的生活，以了解他们的经历，并捕捉他们为在新的困难条件下生存而制定的策略。残疾人，特别是有色人种和那些住在养老院的人，感染新冠肺炎和死亡的风险最大。记录和解释残疾专门知识以及边缘化群体应对这一流行病的方法，将为帮助解决残疾人在应对新冠肺炎后的健康风险以及与未来的流行病和社会危机有关的不平等问题提供重要信息。研究人员将与社区成员合作，收集记忆、故事、艺术品和其他材料，以建立一个可公开访问的档案，称为“残疾COVID编年史”。社交媒体上的对话、数字公共会议的记录以及街头艺术和行动的照片也将被收集、解释和保存，否则这些都是短暂的。这份档案对学者和那些致力于在未来为残疾公民创造更好条件的人来说将是有价值的。项目成果将通过公共和学术出版物以及社交媒体、活动和城市合作伙伴关系广泛传播。该项目将收集和分析与新冠肺炎设计相关的问题(例如，集合生活、远程工作、远程治疗)的数据，并从“设计正义”的角度比较和分析案例，重点是远程技术和基础设施的创新使用。它聚焦于专家和残疾人预计将受到新冠肺炎长期影响的四个社会群体。这些群体包括：(1)可以作为病毒后症状和生存模式的慢性疲劳综合症患者，他们在远程工作和远程亲密方面拥有长期的专长；(2)智障成年人及其家人，他们的高感染率和死亡率突显了集体住房的危险，他们正在积极设计新的长期辅助生活设计；(3)黑人残疾人也是活动家，他们强调种族和残疾在COVID健康风险中的交集，并正在开发无障碍的物理和数字工具来支持在线宣传和抗议；(4)面临精神健康挑战的黑人主题。该项目还将考虑移动危机干预、训练有素的精神健康患者的同行咨询以及应对这些挑战的团体开创的远程治疗等新的远程实践的潜力，以帮助支持残疾人社区。调查结果将发表在学术期刊、公众可访问的白皮书和公共媒体上。这一奖项反映了NSF的法定使命，并通过使用基金会的智力优势和更广泛的影响审查标准进行评估，被认为值得支持。

This project will analyze the lives of disabled and chronically ill people during the COVID-19 pandemic to understand their experiences and capture the strategies that they have developed for surviving under new, difficult conditions. Disabled people, especially people of color and those living in nursing homes, have been at greatest risk of infection and death from COVID-19. Documenting and interpreting disability expertise and the methods by which by which marginalized groups respond to the pandemic will provide crucial information for helping to address the inequities for people with disabilities as they manage health risk post-COVID and in relation to future pandemics and social crises. Researchers will collaborate with community members to collect memories, stories, artwork, and other materials to build a publicly accessible archive know as the “Disability COVID Chronicles.” Conversations on social media, records of digital public meetings, and photographs of street art and actions that are otherwise ephemeral will also be collected, interpreted, and preserved. This archive will be of value for scholars and for those working to achieve better conditions for disabled citizens in the future. Project findings will be widely disseminated in public and academic publications and through social media, events, and city partnerships.This project will collect and analyze data about COVID-19 design related issues (e.g., congregate living, telework, tele-therapy) and compare and analyze cases from a “design justice” perspective, focusing on innovative uses of remote technology and infrastructure. It focuses on four social groups that experts and the disabled anticipate will experience prolonged impacts from COVID-19. These groups include: (1) People with chronic fatigue syndrome who can serve as models of post-viral syndromes and survivorship with longstanding expertise in remote work and tele-intimacy; (2) Adults with intellectual disabilities and their families, whose high infection and death rates have highlighted the hazards of congregate housing, and who are actively generating new designs for long-term assisted living; (3) Black Disabled Lives Matter activists who underscore the intersection of race and disability in COVID health risks and are developing accessible physical and digital tools for supporting online advocacy and protests; and (4) Black subjects facing mental health challenges. The project will also consider the potentials for new remote practices in mobile crisis intervention, peer counseling by trained mental health patients, and teletherapy pioneered by groups responding to these challenges to help support the disabled community. Findings will be published in academic journals and publicly accessible white papers and public media.This award reflects NSF's statutory mission and has been deemed worthy of support through evaluation using the Foundation's intellectual merit and broader impacts review criteria.