HCC: Small: Designing Health Data-Tracking Technologies for Children

数据跟踪技术，如智能手表，健身带和病人监测设备已被广泛采用，以管理儿童的健康和保健。如果成功，跟踪技术和做法可以鼓励儿童的自我意识，增强健康知识，并培养代理和控制感。然而，跟踪儿童的健康状况是复杂的，需要儿童，父母和医疗保健提供者之间的合作，以及可以为不同年龄和不同健康状况的儿童提供服务的设计。许多现有的系统无法满足这些挑战，主要是为一般健康和满足父母而不是儿童的跟踪需求而设计的。该项目旨在通过系统的方法来研究这些挑战，以检查针对不同年龄，健康状况和合作模式的儿童的数据跟踪技术的设计。该项目将重点关注四个相互交织的研究主题：数据需求和数据素养;数据工作和数据表示;针对儿童、父母或医疗保健提供者的不同跟踪模式;以及不同健康状况下的不同数据需求。为了支持最后一项研究，并提高研究结果的普遍性，该项目将解决三个不同的健康问题：儿童的一般健康，哮喘作为一种常见的慢性病，以及一组具有相似特征的罕见疾病。该项目将包括三个相互关联的阶段：第一，一项访谈研究，检查儿童，父母和医疗保健提供者的数据素养，跟踪经验和技术使用;第二，一项共同设计研究，探索父母和儿童的数据需求，数据工作和数据表示;第三，一项设计和部署研究，检查利益相关者的现场健康跟踪经验，并征求反馈意见，以进一步改进该奖项反映了NSF的法定使命，并通过使用基金会的知识价值和更广泛的影响审查标准进行评估，被认为值得支持。

Data-tracking technologies such as smartwatches, fitness bands, and patient monitoring devices have been widely adopted to manage children’s health and wellness. When successful, tracking technologies and practices can encourage children’s self-awareness, enhance health knowledge, and foster a sense of agency and control. However, tracking health for children is complex, requiring collaboration between children, parents, and healthcare providers, as well as designs that can serve children of different ages and children with varying health conditions. Many existing systems fail to meet these challenges, being mainly designed for general wellness and to meet parents’ tracking needs rather than children's. This project aims to study these challenges through a systematic approach to examining the design of data-tracking technologies for children of different ages, health contexts, and modes of collaboration. Results from the work will be shared broadly with patient advocacy groups and health organizations.The project focuses on four intertwined research topics: data needs and data literacy; data work and data representations; different modes of tracking intended for children, parents, or healthcare providers; and varying data needs with different health conditions. To support the last, and to increase the generalizability of the findings, the project will address three diverse health contexts: children’s general wellness, asthma as an example of a common chronic illness, and a set of rare diseases that share similar characteristics. The project will consist of three interconnected stages: first, an interview study examining data literacy, tracking experiences, and technology use with children, parents, and healthcare providers; second, a co-design study exploring parents and children’s data needs, data work, and data representations; and third, a design and deployment study examining stakeholders’ in situ experiences of health tracking and soliciting feedback for further improvement in the designs.This award reflects NSF's statutory mission and has been deemed worthy of support through evaluation using the Foundation's intellectual merit and broader impacts review criteria.