Research Community Development Grant: Collaborative Research: Knowledge of HIV/AIDS: Expertise, Participation, and the Archive in the Long Pandemic

该研究社区发展（RCD）项目汇集了跨学科科学技术研究（STS）领域的艾滋病毒/艾滋病社会科学和人文学者。核心目标是支持社区形成、思想交流和促进新的前沿研究，以综合这一长期流行病的知识。将组织活动，将过去艾滋病毒/艾滋病社会研究的结果与该领域的当代轨迹联系起来，重点围绕三个核心主题：档案、专门知识和参与。关于北美艾滋病毒/艾滋病流行病的社会和人文学术研究有不同的阶段。1996年以前，在艾滋病毒得到有效治疗之前，有大量关于这一流行病的学术研究。然而，在更有效的治疗方法出现之后，公众对艾滋病毒/艾滋病的关注出现了下降和分散——有时是错误的理由，认为流行病已经结束（或至少管理良好），同时公众对艾滋病的关注出现了“第二次沉默”。生物医学创新带来的治疗方法可以使艾滋病毒感染者的寿命与艾滋病毒阴性者的寿命相当。然而，抗逆转录病毒疗法不是治愈，它们有副作用，需要获得资源和稳定才能继续治疗（从医疗保险到住房），依赖于制药业，总的来说，没有在当地或全球结束大流行。艾滋病毒/艾滋病流行四十年来，尽管许多国家宣布将在2030年之前终结其艾滋病毒/艾滋病流行，但目前还看不到真正的终结。艾滋病毒已成为一种长期的流行病，它既是一种特殊的流行病，同时也与许多正在发生的人权、经济和公共卫生危机重叠。该RCD项目旨在通过创建基础设施来支持围绕这些主题的学术社区，从而克服由于STS及其组成学科对艾滋病毒/艾滋病的第二次沉默而导致的知识分裂。该项目将通过一系列三次年度研讨会组建一个富有成效的研究社区；通过建立一个在线协调论坛；通过小额资助支持新的研究合作；通过创建一个强大的导师项目，将早期的职业学者与更成熟的学者配对。该项目将支持专注于疾病社会研究的下一代学者，并将寻求对长期存在的和新出现的流行病形成一般性见解。该奖项反映了美国国家科学基金会的法定使命，并通过使用基金会的知识价值和更广泛的影响审查标准进行评估，被认为值得支持。

This Research Community Development (RCD) project brings together social scientific and humanistic scholars of HIV/AIDS situated within the interdisciplinary field of Science and Technology Studies (STS). The core goal is to support community formation, the exchange of ideas, and to foster novel cutting edge research to synthesize knowledge of this long pandemic. Activities will be organized to bridge past findings of social studies of HIV/AIDS with contemporary trajectories in the field focused around three core themes: the archive, expertise, and participation. Social and humanistic scholarship on the HIV/AIDS epidemic in North America has distinct phases. The period prior to 1996, before effective treatments for HIV, was marked by a wide array of scholarship on the pandemic. However, public attention to HIV/AIDS experienced a decline and fragmentation after more effective treatments became available – sometimes with the mistaken rationale that the pandemic was over (or at least well-managed) and coupled to a “second silence” in public attention to AIDS. Biomedical innovation has resulted in treatments that can enable a person living with HIV to live a lifespan comparable to that of an HIV-negative person. However, antiretroviral therapies are not cures, they come with side effects, require access to resources and stability to remain in care (from health insurance to housing), are dependent on the pharmaceutical industry, and overall, have not ended the pandemic locally or globally. Four decades into the pandemic, even as many countries proclaim that they will end their HIV/AIDS epidemics by 2030, there is no actual end in sight. HIV has become a long pandemic, one that is both exceptional while also overlapping with many ongoing human rights, economic and public health crises. This RCD project aims to overcome the intellectual fragmentation that accompanied the second silence on HIV/AIDS in STS and its constituent disciplines by creating infrastructure to support a scholarly community around these topics. This project will assemble a productive research community via a series of three annual workshops; by developing an online forum for coordination; by supporting new research collaborations with small grants; and by creating a robust mentorship program that will pair early career scholars with more established scholars. The project will support the next generation of scholars focused on social studies of illness and will seek to develop general insight for both long-standing and emerging pandemics.This award reflects NSF's statutory mission and has been deemed worthy of support through evaluation using the Foundation's intellectual merit and broader impacts review criteria.