Thoughts of nurses about mental care for Motor Neuron Disease patients

本研究旨在探讨运动神经元疾病病患之心理健康护理现况及护理人员对心理健康的看法，并探讨理想的护理方法。研究对象为20位有照顾运动神经元疾病病患经验的护理人员（19位女性，1位男性）。资料分析采用定性归纳法。护理经验的平均年限为8.1 ±8.07年，研究确定了20个大类、65个中类和146个小类。大类分为3种类型：“护士认为的精神护理”;“支持护士的事情”;和“阻止精神护理实践的事情”。“护士思考的心理护理”包括【呼吁患者重新审视生命的主要意义】，而护士应该做的重要事情是【做好患者的提神工作】、【减轻患者的痛苦】、【为患者提供诊断后的随访】。此外，护士认为， ...更多信息 需要以一种整体的方式理解为[心灵和身体有关系]，也要有一种[敏感地捕捉病人的感受]的感觉。“支持护士的事情”包括[设计适合患者生活方式的护理]到[与患者和家属合作以达到出院的共同目标]。此外，[克服护士对运动神经元疾病患者的偏见的惊人经历]使护士能够以更深刻的方式了解患者。“妨碍心理护理实践的事情”反映了与护理系统或运动神经元疾病的独特症状相关的问题，例如[照顾日常生活压力]，[每个患者的沟通方式]和[运动神经元疾病患者的护理可能无法提供预期结果]。此外，护士对心理护理的态度也会阻碍[心理护理不佳]、[触动病人的心会使护士焦虑]、[建立相互信任的关系作为心理护理的前提]、[识别病人真实的意图的技术运气不佳]等做法的实施。该研究还表明，发展个性化的教育支持系统对护士了解运动神经元疾病和解决与心理护理相关的问题非常重要。

The purpose of this study was to investigate actual nursing care and nurses' thoughts regarding mental health in patients with motor neuron disease patients and to consider ideal methods. Semi-structured interviews were conducted with 20 nurses (19 women, 1 man) who had experienced with caring for motor neuron disease patients. Data were analyzed by qualitative induction. Mean (±SD) duration of nursing experience was 8.1 ±8.07 years.The study identified 20 large categories, 65 medium categories and 146 small categories. Large categories were classified into 3 types: "Mental care that nurses think about"; "Things that support nurses"; and "Things preventing mental care practice"."Mental care that nurses think about" comprised 【Appeal to patients to re-examine primary life meanings】, and important things nurses should perform were 【Work on patients to refresh themselves 】, 【Reduce patient suffering】, and 【Provide patient follow-up after diagnosis】. In addition, nurses think that patients … More need to be understood in a holistic manner as 【Mind and body have relationship】, and also have a sense of 【Be sensitive to catching patient feelings】."Things that support nurses" comprised 【Devise nursing care to fit the patient's way of life】 to 【Cooperate with the patient and family members to arrive at same aim for discharge from hospital】. In addition, 【Amazing experiences that overcame nurse prejudices regarding motor neuron disease patients】 empower nurses to understand patients in a more profound manner."Things preventing mental care practice" reflected problems related to nursing systems or distinctive symptoms of motor neuron disease such as 【Taking care of pressures of daily life】, 【Communication style specific to each patient】 and 【Nursing for motor neuron disease patients may not provide expected results】. Furthermore, nurse attitudes for mental care block for practices such as 【Poor mental care】, 【Touching patient's heart makes the nurse anxious】, 【Setting a relationship of mutual trust as a premise for mental care】, 【Luck of techniques to identify real intentions of patients】.These results thus suggest that the preparation of nursing systems is expected. The study also indicated that developing individualized educational support systems is important for nurses to understand motor neuron disease and to solve problems related to mental care Less