Health Behaviour of persons with Multiple Sclerosis in Germany: Current status and development of supportive strategies for smoking cessation and dietary behaviour change (BEHAVIMS)

多发性硬化症（MS）是一种慢性神经系统疾病，其表现为遗传脆弱性加上环境因素，导致至少三分之二的MS患者出现严重残疾。然而，有一个缺乏知识的人与MS的实际健康行为。此外，健康行为的循证管理没有被整合到临床MS护理在德国的日期，而患者的兴趣很高。我们的项目旨在缩小研究差距，并解决MS中两个重要的健康行为：吸烟和饮食习惯。具体而言，我们的项目追求以下四个目标：1。描述两个不同患者人群中MS患者的健康行为：德国人群代表性NAKO Gesundheitsstudie和来自大学医院MS日间诊所的临床样本。这里的一个特殊目的是澄清在何种程度上大学队列是代表在MS评估健康行为。根据需求评估和德国范围内为普通人群建立的评估方案“Rauchfrei”，为MS患者制定在线戒烟干预措施。3.通过为MS患者制定基于证据的患者信息和饮食决策辅助工具，促进食品扫盲和知情决策。开发用于MS的饮食评估和食物素养问卷的筛选工具，用于临床研究和护理。

Multiple sclerosis (MS) is a chronic neurological condition which manifests based on genetic vulnerability coupled with environmental factors leading to substantial disability in at least two thirds of persons with MS. Health behaviours like physical activity, non-smoking and diet have the potential to impact positively on MS disease course. However, there is a lack of knowledge about the actual health behaviour of persons with MS. Moreover, evidence-based management of health behaviours is not integrated into clinical MS care in Germany to date, while the interest of patients is high. Our project aims to close research gaps and address two important health behaviours in MS: Tobacco smoking and dietary habits. Specifically, our project pursues the following four objectives: 1. Description of the health behaviour of persons with MS in two different patient populations: The German population-representative NAKO Gesundheitsstudie and a clinical sample from the MS Day Clinic of a university hospital. A special aim here is to clarify to which extent a university cohort is representative in assessing health behaviours in MS. 2. Develop an online smoking cessation intervention for persons with MS based on a needs assessment and the Germany wide established evaluated programme “Rauchfrei” for the general population. 3. Promote food literacy and informed decisions by developing an evidence-based patient information and decision aid on diet for persons with MS. 4. Develop a screening tool for dietary assessment and a food literacy questionnaire in MS to be used in clinical research and care.