Feasibility study to explore the development of an innovative subscription-based dementia resource centre to support families navigating cognitive impairment

痴呆症指南针是一个在过去十年里一直在运作的社会事业，为有认知问题的人、他们的照顾者和家庭提供支持。随着人口老龄化，我们看到被诊断为痴呆症的人的数量正在增加，并希望创造一种可持续的资源来扩大我们的能力和覆盖范围。痴呆症是一种进行性疾病，随着时间的推移会恶化。随着情况的变化，适应这种情况所需的支持也会发生变化。然而，人们告诉我们他们所需要的那种灵活的支持目前根本不存在。在过去的十年里，与痴呆症患者及其家人合作时，我们经常被告知，可用的支持开始得太晚，而且不够灵活，无法随着人们的需求而变化，造成与认知超负荷和护理负担相关的不必要的健康影响。我们想要改变这一点。这就是为什么我们提议发展一个以社区为基础的资源中心。这不是一个‘医疗’设施。它更像是会员健身房或酒店，在那里，PLWCI和他们的家人可以在需要的时候，无论白天还是晚上，获得成人学习和社交参与，以及预防性健康和治疗。与健身房一样，它将通过远低于兼职和全职护理费用的月费支付(目前，全日制住宿护理费用每年约为44,000英镑)。我们还不知道这些成本会是多少。该项目的一部分将与患有认知问题的人、他们的家人、卫生专业人员、研究人员和相关领域的领导人合作解决这一问题。通过使用灵活的设施，家庭可以降低这些成本。更重要的是，人们将能够在家中生活更长时间，可以得到适合他们生活的全天候支持，可以参与研究表明可以减缓疾病进展的活动和学习。这是一种创新的服务提供模式。我们想要证明，目前有一个市场需求没有得到满足。我们希望我们的设施将成为一个示范模式，将鼓励其他市场供应，满足日益增长的需求。这就是为什么作为我们计划的一部分，我们将与研究机构合作，评估我们为我们服务的人民所做的事情的有效性。

Dementia Compass is a social venture that has worked for the past decade providing resources to support people living with cognitive issues, their carers, and families.With an ageing population, we are seeing an increase in the number of people with a diagnosis of dementia and want to create a sustainable resource to expand our capacity and reach.Dementia is a progressive disease that worsens over time. As it changes, so too does support required to live well with the condition.However, the sort of flexible support that people tell us that they need simply does not exist at the moment. Over the last decade, working with people who have dementia and their families, we have often been told that support available begins too late and is not flexible enough to change with people's needs creating unnecessary health implications linked to cognitive overload and care burden.We want to change that.That is why we are proposing developing a community-based resource centre. This is not a 'medical' facility. It is more like a members' gym or a hotel, where PLWCI and their families can access adult learning and social engagement along with preventative health and therapy when they need it, day or night.And, like a gym, it will be paid for by a monthly subscription that is far lower than the costs of part-time and full-time care (at present, fulltime residential care costs around £44,000 each year). We don't know what these costs will be yet. Part of this project will be working with people living with cognitive issues, their families, health professionals, researchers and leaders in allied fields to work that out.By having access to a flexible facility, families can reduce these costs. More importantly, people will be able to remain living in their homes for longer, can get 24/7 support that fits their lives, and can engage in activities and learning which research has shown can slow disease progression.This is innovative because it is an entirely new model for service delivery. We want to prove that there is a market need that is not currently being met. Our hope is that our facility will be a demonstrator model which will encourage other market provision, meeting the growing need. That is why as part of our plans we will work with research bodies to evaluate the effectiveness of what we do for the people we serve.