COVID-19, Social Distancing and Spouse/Partner Caregiving for those with Alzheimer's Disease
COVID-19, Social Distancing and Spouse/Partner Caregiving for those with Alzheimer's Disease
批准号:
10192917
负责人:
Toni Calasanti
金额:
$21.44万
依托单位国家:
美国
项目类别:
财政年份:
2019
资助国家:
美国
项目状态:
已结题
起止时间:
2019-02-01 至 2022-01-31
关键词:
AIDS/HIV problemAdministrative SupplementAdultAffectAlzheimer&aposs DiseaseAlzheimer&aposs disease caregiverAlzheimer&aposs disease related dementiaAreaBehavioralCOVID-19COVID-19 pandemicCaregiver BurdenCaregiver supportCaregiversCaringCognitiveCommunitiesContainmentCouplesDistressElderlyExhibitsFoundationsFundingFutureGaysGenderGender IdentityHealthHeterosexualsHome environmentHusbandIndividualInterventionInterviewKnowledgeLeadLesbianLife Cycle StagesMeasuresMediationMemoryMental HealthOutcomeParentsPatternPerceptionPolicy MakerQuality of lifeResearchResourcesRespondentSame-sexSex OrientationShapesShelter facilitySocial DistanceSocial supportSourceSpouse CaregiverSpousesStructureTimeVulnerable PopulationsWifeWorkbasecare recipientscaregivingcombateffective interventionexperiencehuman old age (65+)informal caregivinginformal supportmenpandemic diseaseparent grantphysical conditioningpreventresponseskills
中文摘要
项目摘要
这份行政补充材料扩展了对同性和异性恋老年人的定性研究,
照顾患有阿尔茨海默病和相关痴呆症的配偶/伴侣的成年人。的
原始研究旨在确定护理人员如何利用现有的性别剧目-集
在生命过程中学到的技能和资源,确认在
与性别分工的关系-在从事护理工作方面。结果是,
方法影响到这些护理人员认为有问题的护理工作的特定领域,
他们可能应对这些挑战的方式,以及这些战略在多大程度上有助于
护理人员有效地执行他们的工作。这项研究探讨了性取向如何塑造性别
剧目,鉴于男女同性恋夫妇之间的劳动分工必须谈判,
并探讨这是如何塑造成功的方法和经验。
COVID-19的出现和社交距离等遏制措施
创造了一种所有AD护理人员都必须与之抗衡的局面,无论性别或性取向如何,
方向;然而,他们这样做的方式可能会表现出一些差异。这
行政补充建立在母研究的基础上,并寻求探讨
COVID-19和跨时间和跨群体的社交距离。拟议
补充研究将涉及重新采访母研究中以前的受访者,
确定护理人员认为具有挑战性的相似性和差异,
他们用来应对这些困难的策略。了解COVID-19和
社会距离塑造了这些社交体验,
LG和异性配偶/伴侣进行的调查,同时也揭示了
性别和性取向塑造了照顾者认为具有挑战性的东西,
他们用来科普这些,以及他们可以利用的资源。获得的知识
将对政策制定者和实践者产生影响,
制定有效的干预措施,以支持照顾者,并防止消极的身体和精神
健康成果。
英文摘要
Project Summary
This administrative supplement extends a qualitative study of same-sex and heterosexual older
adults who care for their spouses/partners with Alzheimer's disease and related dementias. The
original research seeks to pinpoint how caregivers draw upon existing gender repertoires – sets
of skills and resources learned over the life course that affirm gender identities formed in
relation to the gender division of labor—in performing their care work. The resulting caregiving
approaches influence the particular areas of care work that these caregivers find problematic,
the ways they might respond to these challenges, and the extent to which such strategies help
caregivers effectively perform their work. This study asks how sexual orientation shapes gender
repertories, given that the division of labor among gay and lesbian couples must be negotiated,
and examines how this shapes caregiving approaches and experiences.
The emergence of COVID-19 and such containment measures as social distancing have
created a situation with which all AD caregivers must contend, regardless of gender or sexual
orientation; however, the ways in which they do so likely exhibit some differences. This
administrative supplement builds upon the parent study and seeks to explore the impact of
COVID-19 and social distancing across time and caregiving groups. The proposed
supplemental study will involve re-interviewing previous respondents from the parent study to
identify similarities and differences in terms of what caregivers find challenging, and the
strategies they use to deal with these difficulties. Understanding the ways that COVID-19 and
social distancing shape these caregiving experiences will provide much needed information on
caregiving performed by LG and heterosexual spouses/partners while also revealing how
gender and sexual orientation shape what caregivers perceive to be challenging, the strategies
they use to cope with these, and the resources they have available to them. Knowledge gained
from the study will have implications for both policy-makers and practitioners who seek to
develop effective interventions to support caregivers and prevent negative physical and mental
health outcomes.
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