Social media use and social support among adolescent siblings of children with cancer

项目摘要/摘要 作为一个被诊断患有癌症的孩子的兄弟姐妹，可能是一种孤独和令人不安的经历。有必要， 父母、其他家庭和他们的社交网络成员将注意力转向与医生和 被诊断为癌症的儿童的支持需求。患有癌症的儿童的兄弟姐妹表现出了各种各样的 不良的心理社会适应不良，包括焦虑、抑郁、疏远、学校功能不佳和 生活质量较低。与此同时，高达85%的青少年报告访问和使用社交媒体，其中许多 声称他们一天上网好几次。新出现的研究表明，这些由社交媒体中介的 关系和交互(即，社交网络)可以作为该年龄段的关键支持来源， 并对健康结果产生更广泛的影响。根据压力缓冲假说， 社会支持是影响青少年心理社会结果和适应家庭生活的关键因素。 受癌症影响。这项提议涉及两个关键的研究目标，这些目标尚未 在患有癌症的儿童的兄弟姐妹中进行了调查。1)描述社交媒体在 SoCwC的自我认同的社会支持网络和2)调查SM使用如何影响关系 在线社会支持和心理社会适应之间的关系。混合方法方法将利用半 与兄弟姐妹进行有组织的访谈，以绘制他们的社会生态网络，观察社交媒体互动， 这将为社会支持、社交媒体使用和心理社会适应的量化评估提供信息。 这项研究将确定如何在未来以有意义的方式利用社交媒体支持 对癌症儿童的兄弟姐妹进行干预、研究和支持。 培训计划：奖励期间拟实现的培训目标为：1)获取理论知识 与社会关系的相互作用和对心理社会的压力有关的实质性知识 儿童的适应；2)应用和完善与工作和参与有关的基本研究技能 儿童、青少年及其家庭受癌症影响的研究；3)设计和开发一种安全和 高效的数据库和将用于筛选、同意和收集数据的在线调查。学以致用 结构方程模型对收集的数据进行调查；4)学习评估社会 可以在我未来的研究计划中应用的网络和社交媒体数据。 环境：犹他大学护理学院有一个著名的护理博士项目 感谢他们为NIH提供的资金及其对癌症和家庭护理研究的关注。此外，该大学还提供 为专业发展和培训提供多个跨学科协作的机会 研究包括与山间医疗保健和亨茨曼癌症研究所的合作。

Project Summary/Abstract Being a sibling of a child diagnosed with cancer can be a lonely and unsettling experience. Necessarily, parents, other family and members of their social networks turn their attention to meeting the medical and support needs of the child diagnosed with cancer. Siblings of children with cancer have demonstrated a variety of poor psychosocial maladjustments including anxiety, depression, alienation, poor school functioning and lower quality of life. At the same time, up to 85% of adolescents report social media access and use, with many stating they are online multiple times a day. Emerging research suggests that these social media-mediated relationships and interactions (i.e., social networks) may serve as critical sources of support for this age group, and influence health outcomes more generally. According to the stress-buffering hypothesis, the perception of social support is a key factor in psychosocial outcomes in adolescents and their adjustment to living in a family affected by cancer. This proposal addresses two critical research objectives that have not been investigated among siblings of children with cancer. 1) Describe the role of social media within SoCwC’s self-identified social support network and 2) Examine how SM use influences the relationship between online social support and psychosocial adjustment. A mixed method approach will utilize semi- structured interviews with siblings to map their social eco-networks, observation of social media interactions, which will inform a quantitative assessment of social support, social media use and psychosocial adjustment. This study will identify ways in which social media support can be leveraged in meaningful ways for future interventions, study, and support among sibling of children with cancer. Training Plan: The proposed training aims to be achieved during the award period are: 1) Acquire theoretical and substantive knowledge relevant to the interplay of social relationships and stress on the psychosocial adjustment of children; 2) Apply and refine essential research skills related to working with and engage children, adolescents, and their families affected by cancer in research; 3) Design and develop a secure and efficient database and an online survey that will be used to screen, consent, and collect data. Learn and apply structural equation modeling to survey data gathered; 4) Learn research methods for assessing social networks and social media data that can be applied in my future program of research. Environment: The College of Nursing at the University of Utah has a strong nursing PhD program well known for their NIH funding and its focus on cancer and family caregiving research. Further, the University provides numerous opportunities for interdisciplinary collaboration for training for professional development and research including affiliation with Intermountain Healthcare and Huntsman Cancer Institute.