Technology-Mediated Support Among Siblings of Children with Cancer.

Technology-Mediated Support Among Siblings of Children with Cancer.
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癌症儿童兄弟姐妹中的技术介导支持。

DOI:
10.1089/jayao.2022.0151
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发表时间:
2023
影响因子:
2
通讯作者:
Cloyes,KristinG
Cloyes,KristinG
中科院分区:
医学4区
文献类型:
--
作者:
Wawrzynski,SarahE;Alderfer,MelissaA;Waters,AustinR;Linder,Lauri;Reblin,Maija;Guo,Jia-Wen;Litchman,Michelle;Cloyes,KristinG

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目的:儿科癌症的诊断可能会使健康的兄弟姐妹获得有限的支持。技术介导的人际互动在青少年和年轻的癌症患者中已经被注意到,并且可能是癌症儿童的青少年兄弟姐妹的有效支持来源。在这项研究中,我们了解青少年兄弟姐妹如何使用技术连接到他们的支持网络,以及他们的兄弟姐妹的癌症diagnosis.Methods后,他们的技术使用的变化:参与者包括一个国家的样本(N= 24)的12-17岁的青少年谁有一个兄弟姐妹诊断为癌症在过去的2年(长达3年,如果仍然接受根治性治疗为重点)。Ecomaps与参与者共同创建,以确定社会支持的来源和互动方式。访谈转录,编码,内容分析,并concretively summarized.Results:青少年的兄弟姐妹(平均= 14.2年)认为技术作为一种工具,以保持支持他们建立的个人网络,而不是一种方式来扩大社会支持的来源。大多数人没有在他们已知的网络之外寻求关于癌症的支持或信息,更喜欢来自父母或信任的网络成员的信息。Sixth确定视频通话作为一个重要的资源与父母,他们生病的兄弟姐妹,和其他人获得情感上的支持和companishment.Conclusions:研究结果表明,青少年的兄弟姐妹的儿童使用技术连接与他们建立的网络支持,一个重要的发现,为这一人群设计的评估和干预措施。未来的调查应探讨这些差异,确定未满足的需求,并提供可接受的有效干预措施,以增加支持。
Purpose:A diagnosis of pediatric cancer can leave healthy siblings with limited access to support. Technology-mediated interpersonal interactions have been noted among adolescent and young adults with cancer and may be an effective source of support for adolescent siblings of children with cancer. In this study, we understand how adolescent siblings use technology to connect with their support network and how their technology use changes after their sibling's cancer diagnosis.Methods:Participants included a national sample (N= 24) of adolescents aged 12–17 who had a sibling diagnosed with cancer in the last 2 years (up to 3 years if still receiving curative-focused treatment). Ecomaps were cocreated with participants to identify sources of social support and modality of interactions. Interviews were transcribed, coded, content analyzed, and descriptively summarized.Results:Adolescent siblings (mean = 14.2 years) perceived technology as a tool to maintain support from their established personal network, rather than a way to expand sources of social support. Most did not seek support or information about cancer outside their known network, preferring information to come from parents or trusted network members. Siblings identified video calls as an important resource for connecting with parents, their sick brother or sister, and others to receive emotional support and companionship.Conclusions:Findings suggest that adolescent siblings of children use technology to connect with their established network for support, an important finding for designing assessments and interventions for this population. Future inquiry should explore these differences, identify unmet needs, and inform acceptable, effective interventions to augment support.
DOI: --
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影响因子: 1.7
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