CAPNET - Building Research Capacity in Child Abuse Pediatrics

项目总结/摘要 儿童身体虐待是儿童发病率和死亡率的一个重要来源， 成本在美国，每年有超过12万名儿童被确定遭受过身体虐待， 造成数百人死亡，数万人长期身心不健全， 数十亿美元的医疗成本和生产力损失。几十年来，虐待研究一直是一个 资源和调查人员严重不足。2013年，医学研究所（IOM）报告了“新方向”， 在虐待儿童和虐待儿童研究”呼吁新的，复杂的，多学科的研究基础设施- 特别提到需要更多的多中心研究。报告还强调， 统一的定义和措施，可以连接跨多个专业的数据，并招募一个新的骨干， 有能力的调查员。自从国际移民组织的报告发表以来，儿童虐待儿科界已经 致力于为虐待儿童问题可持续研究网络（CAPNET）奠定基础，并取得了成功。 建立网络结构;批准治理文件;起草试点共同数据要素 （CDE）;确定初步研究议程;建立年度研究培训机构。 该应用程序建议通过创建可持续的数据资源来利用这些成就， CAPNET作为更广泛的滥用研究社区的资源。此应用程序创建的资源将 允许多中心的数据收集，存储，质量保证和跨虐待研究人员共享 职业光谱我们的具体目标是：目标1：完善、试点和实施基于网络的多中心数据 虐待儿童研究的收集和质量保证系统。我们将完善CDE草案， 可靠的数据收集和跨专业数据链接。数据协调中心将监督数据 管理、质量和合规，使用中心IRB。这些资源将产生一个强大的数据， 提供给更广泛的研究界，包含来自数千个滥用的核心临床数据 九个参与中心的评估。目标2：协调共享和促进学术上使用多个 中心数据。我们将使用数据共享协议，面对面和远程会议，试点赠款，创新 网络和导师制以及透明的绩效指标，以培养整个职业生涯的研究人员 连续体目标3：开始扩大CAPNET，将儿童福利包括在内。我们将利用社区参与 和建立共识的方法，以发展所需的关系，并确定优先研究 主题和数据域，以解决下一阶段的合作医疗和儿童福利研究。 此应用程序创建的每个资源都将使更广泛的研究社区受益，最终导致 提高研究能力，减少护理差距，改善受虐待儿童的结果。

PROJECT SUMMARY/ABSTRACT Child physical abuse is a significant source of childhood morbidity and mortality, and preventable healthcare costs. Each year, in the US, more than 120,000 children are determined to have suffered physical abuse, resulting in hundreds of deaths and tens of thousands with long-term physical and psychological morbidity, with billions of dollars in healthcare costs and lost productivity. For decades, abuse research has had a dramatic deficit of resources and investigators. In 2013, the Institute of Medicine (IOM) report “New Directions in Child Abuse and Neglect Research” called for new, sophisticated, multidisciplinary research infrastructure – specifically citing the need for additional multi-center research. The report also highlighted the need to create uniform definitions and measures that could link data across multiple professions, and to recruit a new cadre of capable investigators. Since the publication of the IOM's report, the child abuse pediatrics community has worked to lay the foundation for a sustainable research network for child abuse (CAPNET), and has succeeded in: establishing a network structure; ratifying governance documents; drafting pilot common data elements (CDEs); identifying an initial research agenda; and establishing an annual research training institute. This application proposes to leverage these accomplishments by creating sustainable data resources to launch CAPNET as a resource for the wider abuse research community. The resources created by this application will allow multi-center data collection, storage, quality assurance and sharing for abuse researchers across the career spectrum. Our specific aims are: Aim 1: Refine, pilot and implement a web-based, multicenter data collection and quality assurance system for child abuse research. We will refine draft CDEs to ensure feasible, reliable data collection and cross-specialty data linkage. A data coordinating center will oversee data management, quality, and compliance, using a central IRB. These resources will produce a robust data, available to the wider research community, containing core clinical data from several thousand abuse evaluations from nine participating centers. Aim 2: Coordinate sharing and facilitate scholarly use of multi- center data. We will use data sharing agreements, in-person and distance meetings, pilot grants, innovative networking and mentorship and transparent performance metrics to nurture researchers across the career continuum. Aim 3: Begin expansion of CAPNET to include child welfare. We will use community engagement and consensus-building methods to develop the relationships needed, and to identify the priority research themes and data domains to address the next phase of collaborative medical and child welfare research. Each resource created by this application will benefit the wider research community, ultimately resulting in increased research capacity, decreased care disparities and improved outcomes for abused children.