Engaging food hypersensitive communities in citizen science

当你有食物过敏(FH)时，吃户外准备的食物会危及生活质量，并导致压力和焦虑，因为这与意外或不必要的过敏原摄入的可能性增加有关。鉴于FSA的目标是保护英国消费者免受FH带来的健康风险，这对FSA来说是一个重大挑战。FH的公民科学家处于理想的位置，可以积极参与解决这个问题，并围绕他们在家外准备的食物的经历提供详细的第一手观察和思考。符合ECSA公民科学十项原则的公民科学方法，让那些从定义上讲是为了避免过敏原的人参与进来，可以提供关于外出就餐的详细、相关和有重点的信息，涉及餐馆、咖啡馆、工作场所、学校、医院以及在家中吃别人准备的食物的社交场合。与致力于改善这一领域政策和实践的专家和利益相关者组织接触是这一试点研究项目的关键，他们作为合作者的投入是得出和实现该项目目标的基础：(1)从对食物过敏的公民那里收集关于他们在食用户外准备的食物时如何评估过敏原风险的关键信息，以及(2)评估未来让FH患者担任公民科学家的可行性。这些目标将在3个工作包(WPS)工作包1(M1-2)中实现。我们将与主要利益攸关方和公民一起举办研讨会，共同设计公民科学家将被要求收集的数据。我们同意我们的合作者的意见，即一个由75-100人组成的公民科学团队将包括(A)16岁以上患有先天性巨结肠的人和(B)患有先天性巨结肠的16岁以下儿童的父母。我们将努力确保参与者在食物过敏的性质和严重程度、地理位置和社会人口学特征方面的组合，这些参与者将通过我们的合作者和现有的联系人招募。工作包2(M3-6)我们将通过要求公民科学家在活动时或之后不久通过他们的手机/平板电脑或PC在线提供关于他们外出就餐经验的信息来吸引他们。在WP1中设计的信息将使用公民科学设置中经常使用的软件(ESRI Survey123)收集。他们还可以上传照片，以配合他们记录的其他信息。我们将在整个过程中协调和支持公民科学参与者，并鼓励和认可他们的贡献。将邀请10%的公民科学家在简短的采访中进行反思。工作包3(M7)我们将举办一个在线研讨会，与公民科学家进行对话，以反映和反馈项目结果。与项目合作者和合作伙伴一起举办的第二次在线研讨会将讨论项目的发现、公民科学家对这些发现的思考，以及对相关行业、政策和实践者利益攸关方的影响。

Eating food prepared outside the home when you have a food hypersensitivity (FH) risks quality of life and causes stress and anxiety, because it is associated with an increased likelihood of accidental or unwanted consumption of allergens. This is a significant challenge to the FSA given that their aim is to protect the UK consumer from the health risks posed by FH. Citizen scientists with FH are ideally placed to actively engage with addressing this issue and contribute detailed first-hand observations and reflections around their experiences of eating food prepared away from the home. A citizen science approach that is compliant with the ECSA ten principles of citizen science, engaging those that by definition are motivated to avoid allergens, can provide detailed, relevant and focused information about eating outside the home encounters spanning restaurants, cafes, work places, schools, hospitals as well as at social occasions in homes eating food that is prepared by others. Engaging with experts and stakeholder organisations that are committed to improving policy and practise in this area is key to this pilot research project and their input as collaborators is foundational to deriving and addressing the aims of the project: to (1) collect key information from citizens with a food hypersensitivity about how they assess allergen risk when eating food prepared outside the home, and (2) assess the future feasibility of engaging those with FH as citizen scientists. These aims will be addressed in 3 work packages (WPs)Work Package 1 (M1-2) We will hold workshops with key stakeholders and citizens to codesign the data that the citizen scientists will be asked to collect. We have agreed with our collaborators that a citizen science team of between 75-100 people will consist of (a) people with a FH aged over 16 and (b) parents of children aged under 16 with a FH. We will seek to ensure a mix of participants in terms of nature and severity of food hypersensitivity, geographic location and socio-demographic characteristics who will be recruited through our collaborators and through existing contacts.Work Package 2 (M3-6) We will engage the citizen scientists by asking them to contribute information about their eating out experience online via their phones/tablets or PC at the time of, or soon after the event. The information designed in WP1 will be collected using software often used in citizen science settings (ESRI Survey123). They can also upload photos to accompany other information that they record. We will coordinate and support the citizen science participants throughout and offer encouragement and acknowledgement of their contributions. Reflection will be invited from 10% of the citizen scientists in short interviews. Work Package 3 (M7) We will hold an online workshop to have a dialogue with the citizen scientists to reflect and feedback on project findings. A second online workshop with project collaborators and partners will discuss the project findings, the reflections of citizen scientists on these, and what the implications are for relevant industry, policy and practitioner stakeholders.