CONTEXTUAL MODEL OF FAMILY COPING WITH CYSTIC FIBROSIS

本研究的目的是制定一个衡量情况的标准- 慢性病儿童的具体压力源和应对策略， 他们的父母 以前关于压力和应对的研究受到了 使用定义不明确的结构，以及未能考虑上下文 压力源的严重程度和发展任务等因素， 个人和家庭。 为了改善这些不足之处， 研究将对具体问题进行情景分析， 与慢性儿童疾病和正常发育相关的需求。 研究1的具体目标是：1）评估问题， 两个发展队列囊性变儿童的应对行为 纤维化（CF）和他们的父母，2）开发衍生评级 针对特定问题的具体应对策略的有效性， （3）探讨问题严重程度、应对方式选择与心理健康的关系 战略和功能成果。 60名患有CF的儿童（30岁学龄 和30名青少年）和他们的父母从莱利儿童医院， 印第安纳州大学医学中心和匹兹堡儿童医院， 匹兹堡大学医学院将参与研究1。 结构化访谈、每日日记和标准化问卷将 用于编制问题情况清单。 收视率 各种应对策略的能力将来自对 CF儿童、父母和医疗保健专业人员。 以下 构建问题清单和评分员手册，研究2将 采用双波纵向设计，目的如下：1） 评估该措施的标准导向效度，2）为了测试 应对行为对抑郁发生频率和严重程度的中介作用 具体问题和相关结果，以及3）评估 不同性别的人对压力的感知和应对策略的使用差异 家庭成员 来自莱利的60名患有CF的青少年及其父母 儿童医院将被要求完成问题清单， 标准化问卷调查，以及两个活动模式指标 在6-8个月的时间里。 通过将问题直接与有效的 应对行为的儿童和家庭，这项研究将提供 制定预防性行为干预措施的基础。

The purpose of the current study is to develop a measure of situation- specific stressors and coping strategies for chronically ill children and their parents. Prior research on stress an coping has been limited by the use of poorly defined constructs and a failure to consider contextual factors such as the severity of the stressor and the developmental tasks of the individual and family. To ameliorate these inadequacies, the proposed study will employ a situational analysis of the specific problems and demands associated with chronic childhood illness and normal development. The specific objectives of study 1 are: 1) to assess the problems and coping behaviors of two developmental cohorts of children with cystic fibrosis (CF) and their parents, 2) To develop empirically-derived ratings of the effectiveness of specific coping strategies for particular problems, and 3) To examine relationships among problem severity, choice of coping strategies, and functional outcomes. Sixty children with CF (30 school age and 30 adolescents) and their parents from Riley Hospital for Children, Indiana University Medical Center and Children's Hospital of Pittsburgh, Pittsburgh University School of Medicine will participate in Study 1. Structured interviews, daily diaries and standardized questionnaires will be used to develop the inventory of problem situations. Ratings of the competence of various coping strategies will be derived from judgments of children with CF, parents, and health care professionals. Following construction of the problem inventory and raters manual, Study 2 will employ a two-wave longitudinal design with the following objectives: 1) To assess the criterion-oriented validity of the measure, 2) To test the mediating effects of coping behaviors on the frequency and severity of specific problems and related outcomes, and 3) To assess the impact of discrepancies in perception of stress and use of coping strategies among family members. Sixty adolescents with CF and their parents from Riley Hospital for Children will be asked to complete the problem inventory, standardized questionnaires, and the Activity Pattern Indicators at two points over a 6-8 month period. By linking problems directly to effective coping behaviors for both the child and family, this study will provide the basis for developing preventive behavioral interventions.