From "Small Stories" to "Communities of Care" With/In Narratives of Illness and Death

SMALLCOMM探索了疾病、死亡和丧亲的叙事是如何位于社区网络的交叉点上，并由社区叙事的。社区如何讲述疾病和死亡的经历？在这种情况下，社区意味着什么--谁和什么参与，以及如何参与？出现了什么样的叙事形式、结构和实践？这些叙事是如何与更大的文化剧本接触和背离的？将疾病和死亡叙事作为一种社区实践，其更广泛的文化和理论含义是什么？SMALLCOMM专注于“关怀社区”的概念--基于关系、互惠和解放的情感实践的复杂的人类和非人类网络--SMALLCOMM不仅试图了解这些社区是如何建立的，以及疾病、死亡和死亡如何通过叙事被误解/理解，而且还试图了解叙事如何塑造和动员对痛苦、损失和悲伤经历的实际反应。SMALLCOMM促进了越来越多关于疾病叙事的学术研究，试图解释更大的复杂性(经验以及叙事形式和背景)：(I)将死亡研究引入与关键的医学人文学科的对话；(Ii)侧重于社区的叙事产品和实践；(Iii)为集体叙事开发新的分析框架。它采用了混合方法：(A)解释学-现象学研究在疾病和死亡的文学和视觉叙述选集(2014-2022年)中探索社会和情感互动，以及经验性和解释之间的紧张关系；(B)利用阅读/写作讲习班(以叙事医学和参与性设计方法为基础)进行定性研究，探讨人们集体阐述疾病和死亡的困难经历的方式。将在达勒姆和巴黎的不同社区招募两个小组，以使研究具有可比性和跨文化维度。

SMALLCOMM explores how narratives of illness, death and bereavement are located at the intersection of community networks and narrativized by communities. How do communities narrate experiences of illness and death? What does community mean in this context-who and what is involved, and how? What narrative forms, structures and practices emerge? How do these narratives engage with and depart from larger cultural scripts? What are the wider cultural and theoretical implications of approaching illness and death narratives as a community practice? Focusing on the notion of 'communities of care' -complex human and non-human networks based on relational, reciprocal and emancipative affective practices- SMALLCOMM seeks to understand not only how these communities are built and how illness, dying and death may be mis/understood through narrative, but also how narrative shapes and mobilises practical responses to experiences of pain, loss and grief. SMALLCOMM contributes to a growing body of scholarship on illness narrative that seeks to account for greater complexity (of experience as well as of narrative form and context): (i) bringing death studies in to dialogue with critical medical humanities; (ii) focusing on the narrative products and practices of communities; (iii) developing a new analytical framework for collective narratives. It employs a mixed-method approach: (a) A hermeneutical-phenomenological study explores social and affective interactions, and the tension between experientiality and interpretation, in a selection of literary and visual narratives of illness and death (2014-2022); (b) A qualitative study using reading/writing workshops (built on narrative medicine and participatory design methods) addresses the ways in which people have come collectively to articulate difficult experiences of illness and death. Two groups will be recruited across different communities in Durham and Paris to bring a comparative and cross-cultural dimension to the research.