Assessing the well-being implications of the COVID-19 restrictions on individuals affected by Parkinson's

帕金森病患者在2019冠状病毒病大流行中处于明显不利地位。特别是，随之而来的社会限制取消了许多现有的支助，而个人认为这些支助对他们的福祉至关重要。虽然我们与英国主要慈善机构英国帕金森氏症协会收集了一些关于这一流行病对福祉的社会影响的临时数据，但这些影响不是一成不变的，它们对福祉的影响也不是一成不变的。因此，这个拟议的项目将使用这些已经收集的数据作为该应用程序中三项研究中的两项研究的基线：一项是对帕金森病患者及其护理人员的定量调查，另一项是对帕金森病患者的深入经验进行定性研究。对于这些研究，将收集进一步的数据，以获得在广泛的社会变化背景下同一个人福祉的长期图景。数量调查数据（共两次行政调查）将进一步进行统计分析和确定福利变化的预测因素。定性数据（总共四个行政部门）将使用解释性现象学分析进行分析。还计划进行进一步的第三项研究，即深入的定性研究；这将侧重于照顾者/伴侣的经验，也将重复和纵向分析（共两个管理部门）。研究结果将用于帮助英国帕金森氏症协会做出回应，为会员提供适当的支持，为其他第三部门组织（如专业组织）以及卫生和社会保健政策制定者提供信息，并提供理论见解。

Individuals affected by Parkinson's have been significantly disadvantaged by the COVID-19 pandemic. In particular, the consequent social restrictions have removed many existing supports which individuals have considered vital for their well-being. While we, with Parkinson's UK, a leading UK charity, have collected some provisional data on the social effects of the pandemic on well-being, these effects are not static and neither are their impacts on well-being. Consequently this proposed project will use these data already collected as a baseline for two of the three studies within this application: one is a quantitative survey of both individuals with Parkinson's and their carers and the second is a qualitative study on the in-depth experiences of individuals with Parkinson's. For these studies further data will be collected to get a longer-term picture of the same individuals' well-being in the context of the widespread social changes. The quantitative survey data (two administrations in total) will be subject to further statistical analysis and identification of the predictors of change in well-being. The qualitative data (four administrations in total) will be analysed using interpretative phenomenological analysis. A further third study, an in-depth qualitative study, is also planned; this will focus on the experiences of carers/partners and will also be repeated and analysed longitudinally (two administrations in total). The results will be used to help inform responses from Parkinson's UK to provide appropriate support for members, to inform other third sector organisations (e.g., professional organisations) and health and social care policy-makers and to provide theoretical insights.